I can't keep living this way, everything I stop the val cyclo virtual I week later it comes back..this time I had a rash under my left breast, 2 weeks ago it was under my right breast...I start the meds asap, because before I caught on to this issue..I was laid up for a week unable to function with stabbing back pain..and Dr's. Refused to diagnose it as shingles because of no rash
I am so sorry. So many dr's don't understand this disease. On their defense, it is very hard to diagnose because so many things could be causing severe back pain. I went to the chiropractor with my stabbing, burning back pain, and once my rash broke out a couple days later, he was hitting his head in frustration. "Of course, he said. Everything you were describing was classic shingles pain. My younger age (42 at the time) and nibrash threw him off completely. I sent you another response to your other entry earlier. I hope you try it.
I'm so sorry, don't give up, please try to get to accident and emergency in any hospital nearby, I'm in similar situation, I'm actually struggling to write this to you from the itching and stabbing pain. Best wishes.
Thank u oelady I need a lot for support and networking, for I am in tears and alone with my lil pup
I often feel living in ohio, the onset is not so much stress but severe weather patterns and allergy triggered....I am on val cyclo virtual, aches, lethargic abd feeling weak..and 3 years later no results
I am often wondering how does a person continue to work and pay bills?..especially since I do hair and it kills your back on a good day...it's been 37 years I have done hair, no benefits, no good health care, no dollar amount justify the when your back hurts and the same people moan and complain about stupid issues..the more I lay here and cry the worse I am feeling..I also noticed I get outbreaks after being on antibiotics
Dear Dana,
First, I am so sorry for your suffering with this disease. Physicians can be abysmally ignorant regarding Herpes Zoster Shingles.
Herpes Zoster Shingles without the rash is called "Zoster Sine Herpete."
I think "Shoe Lady" gave you a diet to follow to try and decrease the episodes of Herpes Zoster Shingles. It builds on the idea of the following:
Google Herpes and follow high Lysine low Arginine diet. Shoe Lady's diet is more sophisticated than this diet.
I am a Nurse Practitioner in the States and have had Herpes Zoster Shingles in my right ear every three to five weeks for the past twentyone years and twice in my right eye.
Preceding the pain and rash, the following symptoms can occur: headache, aches and pains, fever, sweating and chills, malaise and fatigue, exhaustion, lymph node swelling adjacent to the rash and pain. When these symptoms occur, that is when you start the Valcyclovir. Do not wait for the pain or rash of shingles, as the antivirals are only helping to stop the replication of the virus.
My suggestion is that you get a consultation of a university associated neurologist. If you know a registered nurse who can help you with this, so much the better. Ask around.
May I ask where you live? Are you immunocompromised? Are you under a lot of stress?
Best Wishes
Merry Juliana
HI Merry, I appreciate all of the information from everyone, thank you all, and prayers for everyone to rid of this terrible disease, Merry I live in sagamore hills, Ohio, I am healthy aside from a struggle through the change of life, I was anemic at one point, I had blood work, and showed nothing missing, I take a multi vitamin everyday and juice everyday with spinach, fruits and veggies, I do believe I amet still in a tate of shock on this couch gorgeous 3 days
Sorry lol..typo on tablet, I am not gorgeous, I am inshock
Sorry merry for so many posts , my head us all over the board,.yes some stress that I have calmed down from, my boyfriend of 18 years lost his son, so he isn't the same person, mean, bitter, hateful...he refuses help, my son is 28 and lazy when it comes to helping around the house, I have gad my own beauty shop inow home for 37 years..I am exhausted and fatigue, and my 3rd batch of valcyclvir
I am forcing down sweet potatoes as we speak,, I do need a simpler diet plan , I was eating lot more chocolate because of stress, aside from the chocolate I still juice daily
Do not eat chocolate of any kind. No cocoa powder, no peanut butter. Very high in argenine. Stimulates shingles. Keep juicing!!!
Yes i am still juicing ...I'm a mess in tears...tired and stressed pills galore..accidently gave my dog the wrong pill...gave him a flea pill...was supposed to give him heartworm.....praying he lives....I'm a mess...2 flea pills in 12 days
HI shoelady, I googled high lysebene low arginine , but some said chocolate was a lysene...so now I am quite confused as of what I should eat
Dana,
Chocolate is high in arginine and low in lysine.
Merry Juliana
Oh dear!! I have never seen that before, anywhere. Maybe you were dreaming😜
I will try and find the link of the chart I use.
Hi merry and shoelady....i am finished with my meds, but now the dr. Has given me one 500 milligram of vacyclovir a da y. For maintenenc i am starting to feel sore again in my lower back and with high himidity i am very tired ..i am so afraid on the maintenence dose it will come back,,,still feeling tingling under m6 right breastboned
The problem is, it is so hard to tell the difference between PHN and a possible new episode. Most people wwould say m, start another round of the antiviral just in case it is flaring up again. However, PHN causes pain and tingling and it can increase and decrease in severity. This exact scenario is what makes me crazy!!! You are not alone, and unfortunately I do not have a solid answer for you. I am freaked out about taking too much medication, so I always lean towards holding off until I am sure that is progressing into an outbreak. i wish I had a better answer for you. (My mother in law had shingles 30 years ago and she has taken a maintenance dose of 1 a day ever since. She is doing great and does not have any adverse effects from the antiviral)
Yes shoelady i am the same way, all these pills freak me out too, i am worried vecause i am already on bexium for mt sensitive stomach, And this daily dosage isnt cuttin g it, i feel like giving up, only thing left is to , realized i wont gave a stomach left now....i think it has travelled to my esophagus because about midday its itchy shingles inside...byvthe time i finished work doing hair i was in agony...a lil better this morning , but its suill there
Shoelady..merry....does this make sense?.?...i spent alot of time and money in the vitamin stores....i had bought a few months back somthing called..MEGAFOODS. TURMERIC whole body strength..for inflammation..started it yesterday and feeling better then i wascwith the nreve pain..