Hi I'm new on here. I was diagnosed in Australia with fibromyalgia & arthritis in hips, knees,hands & feet. Also suffer with anxiety and depression. I was receiving disability living allowance. I returned to uk a few years ago to be close to my family for support. As I'm not able to work I have been receiving ESA but had to go tribunal & lost case. I am expected to look for work. I am British citizen. I am so depressed I have a very caring GP but feel the fibromyalgia is not taken seriously I'm in so much pain all the time.i could go on for ever with areas that I get pain. Don't know what to do.
Hi i am also new on here. I get pain everyday as well, I have 3 kids all still young, my youngest is 3 yrs old so resting for me is not an option and i also feel really depressed. I am finding life very hard at the moment coping with my my fibro and such young children. Your very lucky you have a caring gp , mine is rubbish so i also feel your frustration.
I am currently on income support but have to go to job centre this wk where they want me to start looking for work but like you always in a lot of pain and unable to do so but fear they wont listen.
Maybe we could help and advise each other on this horrible illness ?
Beccy
Hi Jeanette
I live inmanchester in the uk i too have fibro/gad/depression all diagnosed by docs/specialists/therapists. I do use this forum as i find it helps a lot to see that there are others out there and that you are not on your own! I have been on ESA for a while and went for my medical last week im still waiting to hear from them and i am scared to death! as i know i cant work i am notable to do sumple things like wash myown hair and i need help cooking shopping etc... i am in so much pain all the time and my anxiety is so high. I dont understand these people that so called access us for the medical. If your won doctors/specialists say that you are unwell and unfit for work that should be enough for these people!!? what areyou going to do next???
hi beccy,
i dont understand how can we work when we cant even walk propely? talk properly? forget things constantly? have to lie down all the time? burst in tears on and off through the day? how do they think that employers are going to take this illness? i cant believe just how bad things are for us all it feels like we are all not taken seriously if we do not hve cancer or another RECOGNISED ILLNESS sorry for the rant i really feel for you
I am in the middle of a huge house move, My husband works away all week and I am left to do everything. None of our children or him take fibro seriously. His last wife died of cancer, which is something he could see and relate to. I am so exhausted, feel sick all the time, in pain, and so many other symptoms but none of them want to listen or help. It all came to a head last week and me and husband had a terrible row. I told him I felt ill. He said YOUR ALWAYS ILL, EVERY SINGLE DAY YOUR ILL. I said im so sorry its not cancer. I have realised that no matter what I say, no one is taking any notice and they never will. None of our children are helping us with the packing, I am resentful too as my husbad is giving HIS children an early inheritance from our sale. I have no say in this. Its only here that people understand this horrible condition we have. I am totally exhausted physically and mentally with no support. My husband has finally shown he doesnt take this condition seriously.