Hi Lou
Thanks greatly for keeping me in your thoughts daily.
Again i spent the majority of the day in my bedroom and in bed.
I had to get up to answer emails and write some more to try to keep por active.
I emailed the THT who up to today had left me in the dark after asking them to respond to me on more than 4/5 ocassions , today there was an email which triggered conversation between ourslevs and then escualted into a phone call, while on the phone to them my so called GP who I have never met phoned so i had 2 phones in my hand at the one time
The THT has called my GP wanting info about me, My Gp didnt give them any instead called me.
So i learned instead of the THT making contact with me they are doing things behind the scene that I am had o way of being aware with, the GP was and has now asked for palative care for me, but this too looks like her attempt to get me some immediate help will again fall on deaf ears.
When it gets to the stage a sick person cant eat or manage to prepare food themselves, is unable to manage thier medication to stabilize their health and cannot care to clean themsleves then in my eyes there is a problem that needs to be addressed , but in the NHS eyes it is me that has decided not to take my meds when the dr is prescribing them, they totally overlook one of the main side effects of what depression can do to the mind and body.
So I am expecting to be told it is up to me to manage my daily life, which I cannot and as the days pass my home becomes more dirty as I am , while i cant get myself into the shower.
I am struggling managing appointmemts and missing them all the time now
I am exhausted and my body aches and screams in emotional pain.
Yet I am capable to care for myself i am told by the Professionals , added to all this I explained while thet THT was on the other phone listening to my conversation with the head of the medical GP Surgery of my frustration that for one I have never met her before , and for months when I attend the GP surgery I am seen by an unknown new doctor who knows nothing about me or my history of health problems.
Time and time again I am seen by diffferent and obscure Drs and I feel grossly let down, She then went on to say she herself is on leave from later thgis week and will not return to the surgery until Augast.
So what is the point fo having a GP for me and why do all these Orgainsations insist i take my needs which i do anyway to my GP when in fact i dont actually have a GP.
I keep running out of prozac, and diazipam .
I am unable to manage the infection of my lymph nodes thats poison to my tummy and i am dosceating puss when i use my bowels.
I should be taking antibiotics but i am severley depressed and i can barley manage to take the prozac.
The Dr suggested i up the dosgae,
I was always on 20 mg ad ay for 12 years, last year it became 40 mgs, and now she is saying she can up my dosgae of prozacto 60-80 mgs a day.
I told her this was not an answer to my care needs.
I feel completely left behind by the NHS which is crippled by govt cut backs , i again emailed my local MP to ask why I am not having my emails over the past 6 weeks answered and why i have not been given an appointment to see him.
Its quite simple really as they live in anopther world.
The THT have again looked elswhere for outside help for me, they have gone back to Stonewall Housing to the Housing Adviser who i have already been under and got me no where .
You see these so called charities and organizations have so much to say abouthtemselves but at the end of the day they pass the buck, they lack vision and insight and leave behind the core reason they were set up to fill a gap.
They become businesses where staff are paid grossly over rated salaries and they lose sight of who they are and what they are there fore.
I need respite again.
But dare i even ask for that as that only led me to being left with doors slammed in my face and there is no funding available to get eople like myself into respite to rest and be given some chance to recover.
What ever i do it leads to me taking diasipam to stop the pain and distress.
I continue not to be able to eat .
I forget what a home cooked meal is.
I look ill, i have weight loss and feel so dirty.
This is what life in our world has become.
Not due to people who actually care like yourself but through decisions that are made in powerful places and on Executive Board Offices that really have no idea at all about living with illness whatever it may be.
They are not coming from where i am coming from and probably will never experience it in their lifetime.
They are in the fortunate position to look after themselves .
Hugs
PJ