Hi there, Maybe its my own fault but i have had most of my symptoms now for a long time but have only started going to the doctors the last few weeks due to my symptoms becoming very bad.I am struggling every morningand im severely sore all over to the point im in bed until 2pm most days in the last couple weeks. Ive had about 7 days off in the last two weeks and have explained the situation to my boss. My issue is my boss txt me earlier saying i should go on unpaid offcial leave for a couple weeks to rest and chase up my doctor. As far as im aware a diagnosis can take 2 years or more so what do i do? Do i carry on working and get sacked for taking too much time off or do i quit my job and get no financial support what so ever? Ive always been so hard working and hate taking time off but i physically cannot do it at the moment. Has anyone been in this situation? Please let me know your storys or advice etc kind regards Hugh
hello hugh....if you have had a good family doctor who knows you and you have had these symptoms for a long time...your doctor should be able to tell you if it is fibro right away...i would only take a day off and get a thorough check up with your dr.
don't do the 2 week thing yet!
Hi Hugh
If you are going to leave your job ask your boss to write you a letter stating why he thinks it is the best thing for you to do in your situation ,this should cover you for claiming benefits,if you choose to leave on your own accord then you will not get any financial support for 8 weeks! If your boss sacks you then you will receive help straight away!Sounds like your still trying to find a painkiller that works the same as me ,i have tried many but always end up with the horrid side effects,at the moment im on Codiene but seeing my GP this week again about trying something else,as the pain is sometimes unbearable especially at night when trying to sleep ,good luck with everything hope this helps !
it took me 6 yrs to finaly find out what was wrong with me , and that was thru my own reasearch , i then went to the doctors and said i think i gave fibro he said yes i think you have ,tested me by pressing me on the tender spots , and the said il send you to a rheumotolgist
were i was given the diognoses . does take about 6 weeks to get appointment with them. if pain is the worst thing for you at the moment invest in an infrared lamp one on a stand i brought a philips on ajustable stand that does ease the stiffness and pain. but u have to do it at least twice a day . plant based magneisum is also very good, for pain and fatigue.
you are entitled to bennifit if diognosed but it is a battle ,you must get help it took me two attemps ,but got it in the end but no idea if with all the changes if i will get it when it runs out next year.hope iv helped a bit
Hello Hugh, I too struggle day to day with work, its getting harder and harder to get through the day. I work in customer care field and the more I am listening to callers, I can feel my body change. I am on intermittant fmla for Dr appts and just when I am unable to function. This can no go on forever, im taking more and more time off. I do know there are a few people at my job that have Fibromyalgia and everybody deals with it differently. The pain and fatigue I feel on a daily basis does affect my job and if i notice it i know upper management does. Hope things go well for you.
info web page webMD and put fibromialgia in there search bar.
good straight forward advice.
also iv just remembered after a real struggle
a supplement that hepled me for quite a while in the begining
its called D-ribose powder look the supplement up and read about it make your own mind up. weather its worth a try,
the biggest problem is avoiding stress , it seems us sufferers are weighed down with stress ,emotional, family, or work , i know the more stress i have the worse my symptoms . mine has been worse since my son son left special needs school 7yrs ago .
i will look it up. thank you
My stress at home is very limited, its work for me, customers and the company itself. So monday through friday its like my body goes through torture then on the weekends its alittle calmer. I had a hystorectomy in 2010 and I was lost on the table then had to have a blood transfusion, since then that is when my symptoms started. I seriously thought I was losing my mind.
i thought the same i thought i was going nuts in the begining i was at the doctors all the time with differant symptoms i swear they thought i was some kind of nutter, it was searching the net that after sometime gave me my answers the doctor and the specialist just confirmed it. , my symptoms got much worse after my hyestorectomy ,esp the i b s .
we have got to remember that doctors will throw any drug they can at you ,they get bonuses from medical companys to push there drugs ,holidays ,cars etc, if you have noticed the flu vaccince is pushed very hard at everyone even toddlers, because for every so many used they are paid a bonus, i am afraid the days of doctor finlay the caring doctor in most cases are gone. rest assured you arent losing your mind
but remember in most cases we have fibro with lots of other symptoms not lots of conditions , thats why alot of the time the meds dont work.
did you know that they are finding girls in america that have had that drug to help prevent cervical cancer, have devoloped conditions like ours but a lot worse,and these are girls that were fighting fit,before cheer leaders and swimmers etc ,makes you wonder whats going on out there.
Very true, and yes I am dealing with IBS as well, and no I did not know that, since I work on the computor allday, I tend to stay away from it after I get off work. My body seems to calm down.
i find when my i b s flares that watered down yogurt settles it, i did use imodeum for a long time because i didnt no better,
pint class a quater of a tub of live yogurt topped up with cold bottle still water stirwell have for breakfast. and i use carb vegetabilis 30x to help digestion its a homepathic remedy .but i still have to avoid curries which i love because extra heat in my stomach sets it of
have u thought of trying one of those necklaces that are supposed to protect you from back ground radition from your computer. some people swear by them
I have found, no red meat, no curry, and bland salsas works for my system. I have not tried the necklace, but I will look it up. I appreciate talking with you, I am working as we speak and you have help me through the first part of my day.
Hi, I was ill for 4mths & bedridden , sent to hospital & saw 4 different consultants & the last 1 did a simple pressure points examination & bloods tests & that's how I found out it was Fybro , that was 4 yrs ago. I was a director & company secretary worked 7dys a week & had 2 children. I never stopped , I started to get tired , & in a lot of pain , never took time off them my body just shut down & took to my bed for 4mths until I went to the hospital. I had to give up work 2yrs later I was told
Sorry! Pressed finished to soon. T
Have to ask hubby for spending money. So finding it difficult to live at the moment on 1 wage, which causes a lot of stress which can also bring on the conditions. So wishing you all the luck on trying to keep on working with this horrible condition.
thankyou everyone for your comments and sharing your personal experiences. please keep them coming they really do help thanks again
Good morning, I don't know exactly where you are but, hopefully you had a good night. Not a good start to the morning for me, lots of pain but, still having to work. My company is going through a merge and I am hoping to be layed off w/severence.I know I am probably the only one in the world that is hoping to be layed off but, that is how I am feeling right now.
yes you see a pattern you over worked your self and your body stopped you because you wouldnt take a rest. just like me and most people with this debilitating condition
i am in scarborough , yes since i started rubbing in the oil iv found. i sleep every night i, get atleast 6-8hrs which is amazing because before i was lucky to get 5hrs a night which would be all broken up it was terriable a couple of hrs in my recliner couple in bed then back to the chair i was totaly exshated . thats another problem sorted , ibs sleep and pain all under control fingers crossed it will stay that way ,just got to get the bouts of fatigue thats not linked to lack of sleep sorted and get some stamia and some strenght back in my legs,
my daughter has moved in her flat and her dog will be going come weekend so thats a whole load of stress of. hope you get layed of for your sake keep draging yoursef round will and pushing yourself will put you in a wheel you must listen to your body look what happens when we dont .