I feel a failure.

Women's health
1

I feel such a failure. I'm a trained nurse I give other people advice all the time yet I cannot help myself...let alone others. This is so difficult. I thought I was healthy. I eat well and have a positive disposition...well I used to. Will I ever be the same again????????? I feel really really low. Are there any words of encouragement? Help!

2

Hi.  I saw a lovely piece of advice from another poster on here to a young sufferer which hope they won't mind me repeating to you as it sounds like you could use it:

"Everyone has some imperfection...none of us are perfect. Love yourself for all the positive things about you...that is what others love you for.  Accept the things you can not change as fretting about them will just take you to a dark place...and that more than anything would make others not attracted to you. Smile at yourself in the mirror every morning and say "I like myself"...and believe it. Hugs to you!" (posted by renee77108)  I hope you feel better about things soon.  I know it isn't easy.

3

oh thank you so much....

that has really helped so much. somehow you gave me the opportunity to shed a few tears...i think that more than anything is what i need......x

4

It certainly helps just to release the tension sometimes as well as knowing you're not alone! x

 

5

Hi Lizzie,  I have put this reply to several forums, LS is awful but I am sure it is caused by an allergy. I am convinced mine is the water, where I live we have flouride, I went on holiday for a week and it was wonderful no problems. On arriving home it all came back. I now drink bottled or filtered water and things have improved. Please make a note of what you eat and drink and if anything causes burning etc within half an hour you will know what to avoid. Hope this helps, you are not alone.Also try zinc cream and zinc and copper tablets as it helps with healing.

6

yes thats it !

thank you diva. x

i've commented on your horse thread....really hope you can get back in the saddle. xx

7

thank you so much anita.

this information is inspiring. allergens sounds extremely likely. what about gluten and dairy as allergens too?

but your info about water is inspiring. we need to campaign to stop floride being dumped in our water supplies!!

8

For me personally it seems to just be the water,Ihave even got my daughter to fit a water filter and use a jug forwhen I visit. I think flouride souldbe banned it is illegal to put it in the sea as its a polutant but ok for us to drink it

9

exactly!!

think i may write to my local council enviromental health dept> i will quote the specifics of your case...its more than anecdotal. maybe you could ask your GP to confirm for the authorities too. stop us going like the US where they know but don't really care about their citizens if profit is involved!

10

Hi lizzie. I have found that cutting out sugar dairy and gluten helps immensely x

11

thanks so much phil...i've been considering this and will get going and let you know how i get on. any idea about time scales? x

12

Hi Lizzie if you cut out dairy gluten sugar the result is almost immediate. The flare ups are dulled down if that makes sense and are more bearable. I also use alternative medicine. Because this is an autoimmune condition that is caused by chemicals in food plus our water and off course stress. I take Vit c and zinc plus probiotics these help to readjust our immunity system as it has gone ballistic fighting off the chemicals etc. I also use one of hannys tried and trusted remedies and that is bicarbonate of soda, it works well for me.

13

I believe LS and LP are caused through viruses as well, have you ever had a problem lizzie with smear test in the past only I think there's a link, I had an abnormal smear and some treatment then was diagnosed with lichen planus x

14

I've kind started already....have found a bone broth recipe and i'm getting stuck in. I am looking at probiotics...VSL#3 has 450 billion CFU's per dose, this sounds pretty high, i'm using one with 70 billion CFU's per 2 capsule serving at the mo. there are others that i've encountered. would love to have a discussion about this. I'll be brave and start a new topic...SO much to discuss! the kind comments on here have really boosted me. THANK YOU ALL SO MUCH!

liz

15

thank you so much karen ...yes i think bacteria and viruses are getting through our digestive tracts these days because they are undefended due to low stomach acid. sounds odd i know but they are getting through the bowel wall as well as the vaginal and urethral openings that you mention. i think you are spot on that there's a link. Where do you have LP? Is it intrauterine or confined to the vagina?

16

It takes a long period of time to really put a handle on this debilitating disease, I admit.  However,  cheer determination, finding out everything you can about it, and then diligently sticking to what works for you, in the end, makes it pretty liveable.  

Please don't despair.  You will get there.  

17

Thank you so much and its very nice to meet you hanny. Yes I already feel cheered up and  fired with enthusiasm to look this up and to get a handle on it. Ok I'll apply some sheer determination and mental energy to the problem. Its great to see all the shared ideas. I've been buzzing around the site and already feel i have some great tips. THANK YOU SO MUCH

18

You're most welcome.  I hope you soon will find your own unique well being with LS.  

19

Thanks again...Am going to try to make this into an adventure...especially with all these hands to hold!!

20

Sorry your feeling so low it is hard i know. You will find your own way of living with this condition.  I use steriod cream and sudacrem to sooth soreness.  Awful  when it flares up.  I am going to try Paladin.Stress and feeling run down are triggers for it to flare up for me.Being able to talk on this web site is very helpful. Points of view and advice.