I FEEL IT COMING IN THE NIGHT........

Bones, joints and muscles
1

I penned this when I felt a flare coming on.....best description I could give it.

I FEEL IT COMING IN THE NIGHT

I TREMLE AND SHAKE

TRYING MY BEST TO PREPARE

 FOR THE VISCIOUS ONSLAUGHT OF PAIN

A DARK CLOAK FALLS OVER ME AND

THE ALL TOO FAMILIAR SERENADE BEGINS

UPPER BODY MUSCLES  SCREAM  LIKE A MEZZO SOPRANO

AS THEY CURL INTO SPASMS

AS A TOY BEING WOUND TOO TIGHT

THE LOWER BODY BENDS IN SUBMISSION

WITH MUSCLE WEAKNESS AND TORMENT

AN ALL TOO FAMILIAR DANCE…..

AN ERUPTION OF MISERY  INTO THE ARMS AND LEGS

A FEELING OF ANGST OVERALL

REMORSELESS,RELENTLESS  PAROXYSM OF PAIN

 LIKE FIREWORKS ERUPTINGIN THE SKY

TIME HAS NO SENSE OR MEANING IN THIS MOMENT

PAIN REIGNS IN THIS KINGDOM—THERE IS  NO ESCAPE

AND I AM AT WAR…………..

MY ADVERSARIES HAVE A SIGNATURE STYLE  AND LABEL…

 FIBROMYALGIA AND POLYMYALGIA

Wanda (Canada)

Describing what it feels like when the flare erupts

 

 

2

This kind of experience sounds terrible Wannie - you really DO need some respite or 'escape' from this awful 'nightmare' of pain. I hope some adjustment with your medication helps !! I certainly wouldn't be worried about taking a higher dose of pred if it helped to improve things at all - rather that than this !!

All good wishes for some improvement !

3

Thank you.........higher doses of pred do serious damage to my bones so I have to be careful. 

It is a lousy experience, but it feels just that way a cloak of darkness advancing in the night, coming for me. Yikes!!!!

Have a good one --trying to stay upbeat but some days it gets to you.

thanks

4

That IS a difficult situation wannie - I just hope somebody here might be able to suggest something to assist you - I don't know enough about the bone density problem to do this - but I'm sure many others do and will be thinking hard on your behalf. 

All my best wishes to you !

5

Sorry wannie, my PMR comes on in the night. Go to bed feeling fine wake in the morning and cannot move. I thank God I live in the era of Predinisone. Good Luck!