I am 48 I have had lichin since about 40. I have 5 autoimmune disorders. 1st, find out which other ones you have...you never have just one autoimmune disorder. I have arthritis, hashimitos, fibromayalgia, lichen sclerosis, and intercystial cystitis.
I have a great ob gyn. I am using clobestesol on the affected areas and got 75% improvement. Now I have the itching, cant orgasm, redness, bleeding. Now I am using a compounded testosterone dhea estrogen compound, haven'tgone back to doctor yet but I have more creams then you can imagine. clobetesol is the best though. I had a hysterectomy 7 years ago. I had two c sections. I still have sex at least once a week but it is becoming harder and harder. Thank god my husband needs viagra so we are both screwed up 
. keep going to doctor. In US, I probably have better healthcare, it is not socialized and I am government employee with good coverage. they do as many tests as needed, biopsies, cell scrapes sent to lab. Her name is Cinde ordelheide, she is a NP, and is the best. She recommended vibrators, she has me on testosterone compound liquid, estrogen compound, clobetesol, and vivelle dot hormone patches. get your hormones checked too!!
Indeed, most of the women I got to know on this site have often more than one autoimmune disorder. As if we are collectors, mmm (ha) Not really funny of course. If only some smart scientist could figure out how this actually works or what exactly causes these autoimmine disorders .... a lot of people would be better off.
collectors...ha! I like it!!
oh but the theory of autoimmunity is already well known and researched...it arises from intestinal permeability and thats what has to be fixed! The Paleo Mom (herself a research scientist) has repaired a laundry list of her own conditions. One included Lichen Planus as far as i remember. Done finished fixed better!
It should be such that whatever knowledge is used can be useful to all.
That would be 'exceptional'.
Not sure I understand your point above?
...but she's written a book and has a web site so is really very accessible if that's what you mean?
Perhaps it is better to say: I hope 'getting-well' knowledge will soon become mainstream.
ok good lingo disguise technique! well probably it'll be we ourselves who'll work it out and 'take control'... not in the interest of others truely to do that....only us!
are you doing your own research? have you checked out any websites of interest?
I think I'm lucky to have the guidance I have. I discuss any findings with my naturepath or/and family physician. Which has brought me to this point.
There was a time that I researched to the hills. I grew tired of that. Now it is more accidental discoveries and this website has helped me greatly.
I should add: if only to affirm that I'm sort of on the right track.
Think you're very much on the right track...and yes lucky to have acess to good advice but you did seek it out...which led to finding it...so you've got good instincts too.
am sure you'll be taking whatever next steps suit you at the right time for you. sorry i haven't been of much help! but best wishes
I think we're pretty much on the same track. Do you have a good doctor to turn to?
Thanks hanny...yes not bad. I have consulted a naturopath in the past she was very good infact her advice was invaluable but i neglected to keep it up...just having flax oil daily. Big mistake I made to neglect that and to let a good diet slide. My GP is supportive and lets me have the tests I seek. Think this is prob in exchange for me saying I'll get the dessicated hormone myself (if I do decide to go for it)... but should i get some adrenal support too...not keen on idea of hydrocortisone!
As far as the adrenal glands - have you done the saliva test? I think it's better to first find out whether there is an imbalance between thyroid and adrenals. Do you see symptoms that the synthetic thyroid meds are giving you side affects?
Thanks hanny. absolutely thats what i need to know so GP has referred me to an endo (endocrinologist) ...i'll prob have to do some sort of battle as he's conventional...but am asking for iodine levels...via urine test, thyroid anti-bodies and Ig via blood tests I think, then progesterone via saliva and can they check my oestrogen by saliva too?
I may be oestrogen dominant? do you know if you were? will also try to get a prescription for NDT ..the desiccated thyroid...but aware that stimulating the thyroid and increasing my metabolic rate could strain the adrenals...so adjustments going to be needed if i take that route...so instead i may just try supplementation and diet techniques. i've got plenty of levothyroxin but am taking care to have that with food and to try not to depend on it. xx you ok? there's a great load of thyroid info at the mo with shaun croxton of underground wellness and i've just registered for a de-tox programme with sara gottfried...excited about that!
Hi Marey--My understanding is that levothyroxin needs to be taken without food or it may impair absorption. Is there some advice you've been given that says otherwise? Also, have you been following the estogen cream discussion? That might be a good place to explore some of the hormone questions, too! --Suzanne
hi suzanne.......yes i heard that about levo from conventional sources...so i'm kinda doing the opposite for two reasons...one to protect myself from the impact of a synthetic product in my system....and two to protect the gut lining as i've heard levo can cause damage in the long term...so just wanting to have something else in the gut at the same time to help reduce any neg impact...if that makes sense...not so worried about maximising uptake. taking minimum dose did lower my TSH so am confident i can fix that aspect...now wanting to play around with supplements to try to get off thyroxin altogether...whilst exploring NDT in the interim possibly...yes follwing your other discussion with much interest and just contributed...see you over there...so great to have you back!
Thanks for the reply, Marey. Yes, it would be good to figure out how to normalize thyroid naturally. Have you had any positive tests for thyroid antibodies? My understanding is that the antibodies in Hashimoto's, for example, may permanently damage some of the thyroid functioning (I think that's where I am), but if straightforward low thyroid, natural tx can be very helpful.
NDT...Natural Dessicated Thyroid? That's what you would recommend?
I know you've been encouraging me to get the antibody test done...thank you. The brain fog has been a real barrier.
I had a second set of tests done (the first was around the time i joined the site)...didn't appreciate the limitations placed on my GP (if i did remember earlier to ask him for antibody tests in the 2nd round...but we've been working through slowly the things that came up then and I think there was quite a lot of info in those blood results ...which terri had a look at).
As far as I remember testing protocols are the same whether you go private or remain in the public system. For example I made enquires with a paleo stlyed GP operating privately but he requires patients to come armed with the tests....I think you have to go to the same labs used by the NHS but you pay privately for the priviledge and he can't help til you've got those results and won't even see you til you have them..so I might as well organise the tests and obtain the standard observations before looking further afield.
So I went back to the GP again..saw a locum..and am being referred to an endocrinologist to org the iodine test plus antibodies and Ig....and i can ask for a prescription for NDT...it may be poss.