Ich habe seit 11 Jahren Prurigo nodularis. Ich hatte ti...

Haut-, Nagel- und Haargesundheit
21

Thank you Manuel for your information; I beleive everything you say is true.

I have had PN for 3 years and have tried at least 100 different cures, including several of the ones you and the others here have mentioned. Most of the things I tried were natural and some were prescriptions. Nothing helped much and some seemed to make the PN worse.

A very good friend of mine STONGLY suggested Prednisone because it worked for a similar condition he had. I asked one doctor to prescribe it for me but instead he prescribed a useless, expensive ointment. I hate to take ANY medicine but I would be willing to try Prednisone if it really works! The only other choice left, that I haven't tried yet, would be a strong detox.

22

Hello Jinny,

I guess I haven't tried enough of the Aloe. It grows in my yard so I'll try it again.

Thanks!

23

Read my comment, it may help you

24

Talk to your doctor about ciclosporina. It works but its too strongm but its works

Good luck

25

Good luck everyone. Never give up.

26

Hello

I'm so sorry to hear of your troubled skin. My brother was just diagnosed with this.

Can you please give me an update on your condition. Treatments anything that has helped if anything has thus far. I hope something has helped and your skin is feeling good again

Thank you Sincerely Cheryl

27

It brings tears to my eyes to I have had it for 13 years and it has scarred me all over my body I live by the beach and can't enjoy it but these possible healings have given me hope being healed from this would be better than winning the lottery I would love to come out of my solitude box

28

ATTENTION PRURIGO NODULARIS SUFFERERS!  I have had this for over 2 years now.  My family doctor saw that it wasn't any better and referred me to an Immunologist.  Two weeks late I had the CORRECT diagnosis.  Prurigo Nodularis translates to "itchy nodules".  It is just a name dermatologists give a condition that they don't know how to treat!  GET YOURSELF IN WITH AN IMMUNOLOGIST!  It is an immune response to something going on in your body and your immune system is attacking you!  It is some sort of auto-immune response or disease!  I don't that the name for mine yet - just found out this information.  I noticed that you mentioned Crohens Disease - that, too, is an auto-immune problem!  Hope this helps you.  I was flabbergasted to find out all this yesterday!  Good luck! 

29

Get in with an Immunologist!  This is just a name dermatologists give to something they don't know how to treat when nothing works!  This is an IMMUNE SYSTEM problem!  I've had this for over 2 years now.  My family doctor referred me to an allergist/immunologist.  Within two weeks, he had the information he needed from blood work.  He is treating me right now with Methotrexate, Amytrytolyn, and Folic Acid.  You wouldn't believe how much difference it has already made for me!  Repeat!  This is an immune system problem where your immune system starts attacking your body!  SEE AN IMMUNOLOGIST!!!

30

I have had PN for over 2 years now.  My family doctor saw that there was no difference for this time I spent with a dermatologist!  She referred me to an Immunologist!  After waiting two weeks for the blood work reports, I HAVE A DIAGNOSIS!  "Perigo Nodularis" is a name dermatologist give to this conditon - it means "itchy Nodules".  All they do is treat the SYMPTOMS not the CAUSE.  This NOT PN!  This is an auto-immune problem in your body in that it is attacking itself!  He immediately put me on Methotrexate, Amytryptolyn, and Folic Acid.  In the three weeks (3 WEEKS) I've been on this, the sores are 2/3 gone and the others are healing and fading!  And believe me - if they itch, I scratch!   Quit wasting your time and money with a dermatologist and get yourself in with an IMMUNOLOGIST!  If you need the name of a good one in TX, let me know!  Good Luck! 

31

It is so encouraging yet also disheartening to know that there are so many sufferers of this debilitating skin disease, which is exactly what it is. I later discovered from my father that he had it as a child whilst growing up in Barbados and that the clean and caustic sea baths helped kill any infection whilst a natural balm consisting of coconut and pineapple helped soothe the boils. Yves Rocher has created a fantastic organic sugar scrub with mandarin, lemon balm, and cedar which I use everyday as a steam cleaner to my face and shoulders. This has completely transformed my skin as it rebalances the essential oils and nutrients which your skin needs. The ingredients in the products are also renowned for healing scarring - and they have done just that! I have had to wait for nearly 20 years to get my skin complexion back to how it was when I was 18 years old. I absolutely swear by this product and I have used everything from Dermol - which eventually dries the skin and causes the skin cell to be dependent on reapplication - Synalar - which although effective, is an extremely powerful corticosteroid which causes premature skin aging due and potential skin damage due to thinning of the dermis - and light treatment - which was impossible for me to keep regular appointments as a full-time caregiver. There are no side-effects with the Yves Rocher products as they are completely natural. I had never used their products before until I began working for the company. After a visit from a very experienced and compassionate company rep I was given a range of their Plaisir nature botanical oils and scrubs as well as from their Riche Creme and Zero default range which has been produced under medical supervision. There used to be shops in the UK but you can only buy online or by telephone. I just wanted to share this recommendation with you as many UK dermatologists are ignorant about what products are available in the natural beauty industry. To prove how effective their products are, I stupidly diverted and used an alternative natural product as I had run out of my Yves Rocher and the nodules are back and flaring up with avengance. Another natural remedy which has apparently had excellent reviews on the market is Emuaid which is specifically for prurigo nodularis. I bought it once for my mother's severe pressure sores and it ecelerated the healing process within days as opposed to weeks. Diet can effect my skin condition, especially a high meat diet. Whenever I purge and eat mainly vegetables the conditon improves.

32

I have had PN for four years, been to six doctors and tried several ointments, prescriptions and every natural cure possible. I'm 65 years old and literally have never been ill... except for these itchy bumps. I've studied nutrition, been health conscious my entire life and don't eat any junk or processed foods. Recently I have water fasted, detoxed, tried a fruit juice diet and vegetables-only diet. Nothing helped! Now I am totally convinced it is related to my nervous system. Not that I am consciously nervous but (as one doctor put it) my skin is aggravated. Now mostly I drink organic herbal tea to relax and become less anxious and stressed. It seems to be helping; I'll keep you posted.

33

I have had success with Protopic ointment. The generic name is Tacrolimus. It is not a steroid. I see improvement after a few days, especially if the lesions are covered with gauze or bandaids.

34

My sister has also tried everything like you did: creams, light, Thalidomide which gave the opposite result giving a strange red rash. Inspite of what the doctors say we are inclined to think it's a strange parasites invasion into her skin, as the itching is not general in all the limbs or parts of body where she has nodules but selective and mostly still ocures at evenings and nights. Also because while curing her skin from infection on those nodules which she opens she extirpates a strange tiny material, almost transparent and long like a worm and after that the itching is gone from that nodule. The doctors do not explore that option too much and they are inclined to think this is a skin or autoimmune desease denominated prurigo nodularis.

This all took her will and hope to live a normal life and be able to sleep and relax

I don't know how she is holding on. We feel helpless too.

I think all this is because this type of desease is a silent one. There is no epidemic and luckily people do not die from this, thus the medicine doesn't give any solution.

35

Hi Sheri,

You posted 6 months ago...I am curious to know how you are doing now.  Are you still taking methotrexate ?  If no, how long did you have to take it?  What was the dosage?

i have read about using methotrexate but have not wanted to take a strong immunosuppressant.  However, I am at a point where I just need some relief from the itching.sores, and ugly skin.

36

I tried this for a 6 months at 100 a visit. No results. Ask about thalidomide. 

37

I am new to this forum but share the skin problem for 4 years now. There was no help for me so I begun researching natural ways to treat myself 3 years ago. I have found that the strongest oregano extract supplement is working. It works like Cheyenne pepper but gentle and from the inside. GNC carries a high dosage. I have a patented treatment that is not ready yet that I have been using for years and perfecting it for topical treatment. It heals the growth but I'm testing to fade it. I'm not a professional but have studied herbs for over 20 years. I am a patient and this was brought on through medication. Mogellons is not the answer. I have been through all medical fields. When they can't figure it out they name it that. I am 63 years of age and tried everything. Now I research almost constantly for an answer. I will let everyone know when I have a true answer naturally. God bless

38

Hi! I commented a while ago, but can't find my reply. Anyhow.

My partner has suffered from Prurigus Nodularis for 15 years now.

Had tried: Shots, Tapes, creams, lamps, etc, ect. Everything under the sun. We live in Ohio.

2 month ago I was watching a show calls: Hamilton Pharmacopedia, on Vice ( I like to learn new thing)

In one episode if I recall correctly called: The ... something of DMT...

In that episode I found a root. A legendary one about a tree call Mimosa tenuiflora, in the TV the people in Mexico call it: TEPEZCOHUITE .

I said, let's try it, who knows, I mean it won't do any harm.

We got the soap, one cream and the prouder it self, everything on amazon and legal. The powder we where combine with our own things (Aloe Vera extrac, and cocoa butter).

It's been a Month and the itching has little by little is gone. She was a point that she couldn't sleep.

This is working for HER. We do not advertise or own or have any economical gain by sharing this here. Everybody is entitled of their opinion and their own investigation.

NOBODY is like the other. If they recognize that gene therapy will be the answer for everything medical. It means that we need to focus on what works for us Individually.

This is another "thing" in a sea of possible solutions. This is the experience we had. Is working for now... let's see in 2 months.

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39

Thankyou for your information! I have had NP for 4 years. I have it on my scalp for the last 13 months the last 5 the nodules and sores have covered my entire scalp. It has been unbearable until recently when i was finally prescribed prednisone and methtrexalate. I am fearful of living with the pain and swelling i experienced for the last 5 months. Having the NP on my body is nothing compared to what i have gone through with my scalp!So i DEF appreciate the input u have shared! Hopefully i can have the same success!

40

Prednisone works! I was taking 50 mg a day for 2 wks and am now down to 40 mg for 2 wks. I have seen MAJOR improvement!!