I have pmr

My pain is completely gone on 10 mg in am. And 5 in pm but I have been feeling vet lightheaded....Could prednisone do that😁any one else have or had this problem?????

What time in the evening and morning do you take Pred. I take 5 mg at 10 pm and 10 mg at 7am. My pain comes back about 8 pm which makes it hard for me to go to sleep. Just wondering if i should take the evening dose earlier.

I have never gotten light headed on Pred.

I had a period of time feeling very lightheaded from time to time, but it was when I was at a much lower dose.  I was fine at the beginning, 15 mg in one dose.  

Yes, phyllis just another one of the many Pred side effects. Not as bad on lower doses. It or the PMR has also effected my balance. The devil's tic tacs, cannot live without them or normal with them. But we can b***h about them. Think positive and try to smile. 🙂

Hi Phyllis, I was very light headed I had been diagnosed with PMR but hadn't started prednisone yet, so I blamed the inflammation because I haven't felt like that since being on prednisone.

I’ve heard about feeling lightheaded on low doses before on this site.  I get so “fuzzy” so often and can never explain it to a doctor (I think most of them think “what do you expect at 78”).😡  I’m now on 4 mgs (again).  5 1/2 years with PMR.  Oh I do hope the “six” years the experts say is the upper time (usually) for PMR.  I know there are many of us who go on longer (grrrrrr!) but I’m not losing hope - yet!

You need to take the second part of the split dose (if it is prednisone) at least 2 hours before you expect the pain to return - it takes that long to reach its peak in the blood and work. Prednisolone works faster.

There are people who find they get spells of dizziness when taking pred - most of them get it a few hours after taking it though. However - as we keep saying, everyone is different.

Thank you, this is all new to me. Started on 20mg prednisone a day for PMR and pain went away in one day, then went to 15mg a day a month later, then all the pain came back. Went back to 20mg daily, no change. Doctor put me on 30mg daily for 30 days, pain did not go away until i split the dose 10mg at night and 20mg morning. Then Doctor put me back to 20mg for 3 weeks and i split the dose 5mg evening and 15mg morning. Now i am on 17.5mg daily, 5mg in the evening and 12.5 of morning. Pain is coming back just a little but i can live with it. The Doctor wants me to go to 15mg next week and i will split the dose 5mg evening and 10mg morning. The big reason i am trying to get low as i can on Prednisone, i have osteoporosis and it was getting worse before i started Prednisone. I am also starting on Fosamax next week but i am scared of the side effects. I already have a bad stomach and i am worried the Fosamax will only make it worse. How can i get my prednisone dose down as fast as possible without causing the pain to return. Also do you know the best medication for osteoporosis that has the least side effects. My stomach i am afraid will not take the Fosamax, i have to take rolaids and tums now and that doesn't go well with Fosamax. My Rhuemy and my GP seem to think all is well, just take the Fosamax and you will be fine, i am not that convinced.

Hi, on 2 occasions when I started to reduce the Pred, I felt very light headed /dizzy and nauseous. (I think I had chosen the wrong times, coinciding with physically exhausting and emotional times in my life eg moving house!) 3rd time, lucky. Good luck. Jane

" How can i get my prednisone dose down as fast as possible without causing the pain to return."

You can't - and your doctor is setting you up for another fail and return of symptoms. Every time you do it it may get harder to get the symptoms under control again. You have to go about it slowly to find the right dose without causing a steroid withdrawal flare or overshooting what you need - especially at the start. 

All the bone-building medications have potential side effects but some have more gastric ones than others. If you already have gastric problems why are they so keen to use oral bisphosphonates? There are others given by infusions which reduce that problem. And many people are on something like Forteo or Prolia while taking corticosteroids. 

You can also do a lot yourself - Anhaga on this forum got her t-scores from -2.1 to -1.6 in a year without taking bisphosphonates, just with diet, supplements, a weighted vest and the right exercise.

NEVER try to reduce when there is a lot going on - especially once you get below 10mg or so. Your adrenal function is likely to tbe a bit compromised and then dealing with stress just doesn't go well!

I have been feeling light-headed and get dizzy for the last 4 months. But I've been on Prednisone for a little over a year so I don't know if mine is caused by the prednisone.

I seem to get lightheaded, now and then, when I am having a PMR flare.  I don't think it's the pred.

EileenH, as always words of wisdom. I think I will slow my taper down. Have some more testing coming up do not need another flare. Ski season here has been poor, had one day on 14 inches of fresh light powder. Still positive and smiling. 🙂

We have plenty of snow - and now plenty of sun and it is a bit warm! Wish I could still go out there.

I wish you could also, skiing has been my favorite thing to do since I was 17, would hate to be so near and not be able to make a few turns. And skiing in the warm sun is unbelievable. Hope you and your husband are doing well.

Thinking positive with a smile. 🙂

I've been taking Fosamax once a week for 3 months.

Have had no problems with it.

What kind of supplements and diet did you do to help your osteoporosis. My osteoporosis is real bad in my back and neck and would like to rebuild my bones with diet, supplements and excercise. I am not sure exactly how to do it.