im getting frustrated because i have these seizures and when i go to hospital all i get is tests. after that i get appointment after appointment
and referrals. but still the seizures keep going on and no solutions.
my husband has put numerous complaints in and get more appointments.
this has gone on for quite some time. i stopped breathing twice during the seizuires and was in hospital for 5 hours unconsious and on razapan all that time. so i need toget this sorted as soon as i can. the parramedics that took me to hospital thought i had epelepsy but consultants assumed different
I've been having NESD/NEAD Seizures for about 9 years..........and they are only NOW starting to be diagnosed/treated more effectively............It has been a lonnnng, slowwwww road to help......I can relate to your frustrations........ are yours non-epileptic also? have u seen a neurologist? had an EEG? been on any sizure meds yet?
I am VERY HAPPY TO REPORT that I now have a PSYCHIATRIST involved in helping in the DIAGNOSIS PROCESS. I've agreed to allow her to implement her THEORY of what is causing my EPISODES, and she recently started me on NEW MEDICATIONS, (yes, its is only a THEORY at this stage, since she doesnt know me yet, and i only had one appointment with her, but, in 9 years, that's all i've gotten so far is THEORIES..........HOWEVER, the GOOD NEWS is she appears to be DETERMINED to help me DISCOVER the ACTUAL DIAGNOSIS & find the EFFECTIVE TREATMENT for me).............I WILL KEEP YOU ALL POSTED