I left a message here 12-5 06 here's what's happened since last post.
ENT guy diagnosed Meniere's, great i thought now i can get some real help!! wrong. I was sent away with nothing no info no sujestions, nothing. i was told i would get an appointment for balance therupy and hearing aid but to expect a long wait, 10 weeks later and still no appointment. Had a cluster of attacks that lasted 3 weeks and become very depressed. Went to see the doctor and she advised me to take ST JOHNSWORT, so i took myself off to buy some, bearing in mind i have'nt worked for 6 weeks and income support have held up my claim because the doctor didnt fill in the sick notes correctly and my rent has not been paid and im living off savings, these ST JOHNSWORT cost £15 a bottle.However i purchased a bottle, not much use yet! back and forth to GP prescribed more serc, stemitol,cyclizine and a fact sheet about tinitus with a flyer advertising hearing aids at £400 each! my land lord has just served me a notice of possesion, so on top of nightly attacks constant dizziness and imbalance im having to visit DSS to find out whats happening with my claim, fill in endless forms to claim housing benifit that constantly get misslaid at their offices etc etc ect and the doctor tells me to avoid stress! thinking about the future is most disheartening and no matter how much energy i put into sorting out my life im held back by letters that go missing forms that havent arrived and phone calls from a department called IMPACT to help me get back into work. Im sick and tired of explaining what menier's is to people and trying to explain why i cant come for interviews at DSS etc im sick of it all, i dont have a partner to fall back on or help financially im on my own, shopping is a nightmare and i go late at night when tescos is empty and i wont have to wait to long at the checkout.I dont know how any one is feeling? i can only guess, but really needing help here.:headhurts:
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SNAP. I am the same as you. I have had very little help from doctors etc. I am sure they think it is all in my mind. My whole life has been turned upside down with this horrible condition. I have had to leave work as was ill so often and am having to live off savings. They wont last much longer!!!! People who dont have this condition just do not understand how bad it is. I hardly go out at all and cant make any plans as dont know when next attack gonna be. It affects me eyes a lot of the time so cant read any books to pass time and can only go on computer for very short periods. Has the St Johns Work had any effect yet??? Hope you are feeling a bit better as it really does get you very down and depressed
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hi
this sounds very familier.
the answer to your questions is yes ive given up work but...im visiting a dpw dr this friday depending on his report i might be thrown back into work!!...god knows how i will manage job seaking and full time work, will let you know.
every day is diffrent, sometimes im so unsteady and dizzy i stay in bed all day...sometimes i feel okish then i catch up with house work etc.
im on anti-depressants as the condition has ruined my life to be truthful.
hope you feel better soon linda.
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To the person who left message on 14/8/06...you had tried st johns wort......etc. and say you are needing help.
Please try serc, and if that doesn't work.see another doctor and ask about migraines.
I was told I had meniere's disease many years ago and was given dramamine.....which did help in those days, but now much later in life, i have been told migraines causes vertigo in 30% of peoples who have vertigo........ask you dr about propanolol (inderal).
Keep trying, and hang in there,:D
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Hi there, I am sorry to hear about y our distress... I feel your suffering. I was diagnosed w/ MD 10 yrs. ago at age 16. It has been a very uneven journey but my friends and family are very supportive. I know just as you may know, that this is very difficult to have- BUT honestly, it could be worse. I am very thankful that I have all my senses. My sight, my voice, my arms and legs, my personal thoughts and feelings and that I have the steagth to get up in the morning and walk and talk and read and listen to music- granted, when I fall ill I am really sick. I can not enjoy all these sense as usual. But I take it as time for myslef. Heck, i am using that "ill" time to catch up on my sleep! the point is, there is hope where there seems nothing else to hold on to. There will be a time and a day that you will no longer have to suffer from this MD so terribly. I am praying for you.
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[quote:a4dfb598a1=\"L.\"]hi
this sounds very familier.
the answer to your questions is yes ive given up work but...im visiting a dpw dr this friday depending on his report i might be thrown back into work!!...god knows how i will manage job seaking and full time work, will let you know.
every day is diffrent, sometimes im so unsteady and dizzy i stay in bed all day...sometimes i feel okish then i catch up with house work etc.
im on anti-depressants as the condition has ruined my life to be truthful.
hope you feel better soon linda.
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How did you get on ? Have you tryed to claim disabilty allownce?
Try to stay positive. Get in contact with some of the American support organisations they are so positive. Have you tried Magnesium supplements?