Dear all,
6 months ago I was diagnosed with EARLY chronic Pancreatitis. The last few weeks I've been having the following complaints:
- incredible headaches
- extreme brain fog - I can barely wake up/
- cannot feel my legs, they are VERY heavy.
- pain in wrists
- neck pain
What the hell is going on? I'm worried I may not wake up...! Please help, I really would appreciate it. Thanking you all in advance.
I am glad to hear your in early stages...My husband had very bad pancreatitis and he complained of headaches, the doctors said it was the toxins from the pancreas, perhaps you might do a liquid diet, like veggie and fruit smoothies for a day or two...are you taking any meds - could be side effects from them?? Hope this will resolve for you. Good luck and God bless
Thanks for reaching out wildjflippin, I REALLY aapreciate it and I hope your husband is ok. I'm currently not on any meds....but I will see my professor in 2 weeks. Any idea why my legs feel so heavy and why the complete brain fog?
Lastly, my professor initially told me I can reverse this given time as there is no damage. Is that realistic? I've not touched alcohol in 8 months but don't seem to be improving and these symptoms definetily feel life threatening. I'm very concerned.
I really think the toxins from your pancreas can cause all kinds of things...You can surely do well if you stop drinking, eat a good diet and try and relax...easier said than done I know...The toxins can make you feel like cra*.... I think its all connected...but ask the doc what he thinks...keep us posted XOXO
also if you do facebook there is a group called Pancreatitis Pals and they are very knowledgable and caring, they might have some answers for you... they are in the UK as well (I am USA)
OK , well it would make sense, it's just so worrying - I haven't felt normal in months and every day i wake up I feel like utter sh&t, I can't remember the last time I woke up feeling fresh. Thanks a million for your time!
done, thanks so much!! have a great weekend.
Hi. My husband too hss early cp but although not told much I don't think it is curable. It's more about managing it now. Although hiw to manage is the conflicting bit I'm afraid. Remain positive and don't let it rule you is the best cure. Best wishes to you. Xx
So not curable even if only early and no damage?
hello dear jon.. i advise you to be on fat free diets for some times.. if you feel better u can cary on with low fats.. try to develop small meals habits..and just walk.. do this for one or max two weeks .. you will surely see the results.. dont get panic of what will happen .. have enzymes if malnutritions persists... dont worry ...
That's what we've been told. No damage to my husband. He had a pseudo cyst that was drained and no other damage and is not taking any meds. He has just had to have hus appendix out too. We hoped that it was just that and s misdiagnosis but I think it's just us wishing. The problem is that there isn't enough research into this. Acute pancreatitis can heal but once it's gone into chronic it's not. You just have to remain fit and healthy. Concentrate on a low fat diet. Don't have alcohol and sensibly exercise to reduce further damage to the pancreas. That's what we've found. We're now trying tocchange life habits. Not easy but a must really. X
Can I ask how your early chronic pancreatitis was diagnosed as I've had so many tests all come back normal and been suffering for 6 years.
It was diagnosed through endoscopy...
It was also only 'suspected' early CP
Ok thank you. I had one of those but it was 6 years ago when it all began and nothing showed. I recently had detailed MRI of pancreas and it was negative. Hoping I don't have it obviously but just don't believe where I get my pain can be ibs! Thanks for reply.
Thanks nataliefranc - I had an MRI last week which showed slight swelling on one side of the pancreas but teh prof said he was not concerned and that it would heal. Not sure I'm convinced...
I hope yours turns out not to be. From my reaserch and worry over the last 6 years it doesn't sound a nice disease at all wish they would find a cure
Thanks and I hope you feel better soon! Thanks for writting!
Hi. We had endoscopy upper and lower. Mri and ct as all came back normal apart from an ulcer which was treated abd healed. . Then had ultrasound endoscopy as they found a pseudo cyst. They said from the ultrasound endoscopy that it definitely wasn't pancreatic cancer and put early chronic pancreatitis and???? We saw the consultant last December and he said cp but told us little else. My husband has all the symptoms others mentioned. Pain, nausea, vomiting, loose stools occasionally. He had another routine mri in may and we are waiting to see the consultant still. However 3 weeks ago he got rushed in with appendicitis and had surgery to have his appendix out. He ignored the pain as he is used to the pain with cp. I'd like to think they were wrong but he still has the pain and has been sick once since he had his appendix out. He has a positive outlook so pretty much carries on as normal rather than let it rule him. I joined this forum as I need information and need to know what can happen. It's an amazing group. What you read on the Internet is a possibility but not a definite so don't allow it to bog you down with worry. Take each day as it comes. I do hope yours is curable. That would be amazing. My biggest wish is they would research and find a cure. I wasn't aware of how many sufferers there are until it affected us. Your not alone and the future is positive. Best wishes to you all xx
Theresaa - Best wishes for your husband, I hope things work out for you. This group seems great and just what I needed as I feel very alone in all this.
My bloodwork is always clean, no signs of any damage, just very slight swelling yet I feel awful and seem to only be going downhill. I can barely walk and it's now a year since the symptoms started. I feel like I'm going nowhere and havent gotten anywhere in terms of a real diagnosis.
Have a great sunday.