Hello everyone, I don't know if anyone of you has a similar condition. Actually I was suffering from weakness of bones and loss of weight. After I performed the blood tests, the result was low tsh (0.2), but normal Free t3 and t4!! Inaddition, the ultrasound revealed that my thyroid gland is large. The doctor said this is subclinical Graves. However, I am worried about this since I wasn't that convinced with this, so I'd like to hear from you if you have similar condition or even any idea about what is called subclinical hyperthyroidism.
Thanks in advance!
Ditto. I have been diagnosed with same. Going for biopsy and ultrasound next week on thyroid growths. However, no-one at the hospital has mentioned Graves and I have put weight on rather than lost it. I am under wythenshawe hospital, Manchester.
Thanks for replying, actully I did the ultrasound and I'm going through scintigraphy this week. I hope everything will go well with you. Between I am lebanese, and I would like to know the results of your biopsy and ultrasound, wish you the best!!
Hi Angel
I have the exact same disorder. My hyperthyroidism is the exact same lab numbers as yours..I had a uptake scan done last week...It was just above normal. Do you have any other symptoms? I have heart racing, taking a beta blockers... I am not liking it at all...It makes you tired and dizzy...My physician is considering putting me on antithyroid medication. How is your appetite??
Hi,
Thanks for replying. Concerning the other symptoms, I am suffering from fine hair which is falling out heavily, but I'm not sure if it's related to my thyroid condition. My appetite is very low, food means nothing to me. My heart beats are normal. Actually I am not sure if I would take any drug, I am going to see another doctor and then I'll decide. In fact, I am not understanding what would the drug change in my thyroid if the hormones are already within the normal range, and why should I remove my thyroid if it's functioning normally. It's larger than normal size, but this is not affecting its function. I am so happy that you are sharing your experience with me. I am a female (24 years old) and I am sorry for my bad english, since I am lebanese.
I hear Hair loss is very common unfortunately. I haven't had that yet.I am still quite weak. Better than one month ago. I had appetite either for six weeks.. Now I can eat better but not hungry. I eat small meals all day. I have been so sick I haven't worked for 2 months...I am also seeing a Naturopath Doctor... To help with nutrition and supplements.
Your English is very good...
Hi
Wondering how you are doing now? Have you seen the doctor again?
I am still feeling the same. Might start medication tomorrow, antithyroid.
Was just thinking of you. Audrey
Hi,
Well this is so kind of you! I have seen the doctor 2 days ago, my scintigraphy showed graves in its early stages, she said I don't have an emergency case since my thyroid is still functioning normally, but having a low tsh shuould be taken seriously and should be treated as it causes osteoperosis and heart diseases. So she suggested that either I start on methamezole (5 mg) or I'll wait a month and repeat the tsh test, if it shows a decrease, then I must start the treament. However, if the test shows the same tsh level (0.2), then we'll repeat the test every 3 months. Thats all.
I hope you are fine, and I am wondering if you have started your treatment.
Hoping to hear good news about you soon.
Thank you
Hi Angel,
Thanks for the reply. I have started treatment at 5 mg once a day . Started 10 days ago . I feel totally exhausted still . My symptoms change all the time . I make myself eat ... But my stomach is still nausea. Are you going to try the medication ?
How's your appetite now ?
Audrey
Really sorry for you, I am not going to start medication unless my tsh continues to decrease. In general my appetite is low, but I am trying to increase my food intake gradually, and it seems that this is working a little bit with me. I hope to gain wait soon, I am only 48 kg, but I feel comfortable now.
I Hope that you'll get better as soon as possible.
Angel
Could yplease private e mail me with the name of the endo at wythenshawe?
My TSH was 0.17 whn I was diagnosed with a sub clinical hyperthyroidism.
multinodular goitre had bee found as an incidental finding on a CTPA scan to exclude a pulmonary embolism.
An USS done recently sowed twenty nodules on the thyroid but as they are nt thought to be cancerous a biopsy has not been done.
My TSH was 0.17 three weeks ago and is now 0.047.
An endo sirgeon says I have a fluctuating thyroiditis. Does anyone know the managment and reatment please.
Jean
Hello everyone
I am very glad I found this thread.
I was diagnosed with subclinical hyperthyroidism / Graves' disease around June this year. I went to the doctors because my hair was falling out more than usual. I had a whole host of tests and the one that stood out was my TSH level (<0,01). My free T3 and T4 levels are within normal range so as far as I understand it, I don't really have a thyroid problem although I might develop hyperthyroidism. My thyroid is also very slightly enlarged and my antibody tests suggest graves. Anyway, I am losing large amounts of hair, I am afraid to wash it these days because it falls out in clumps. On top of that I have been going grey since 23 (now 29). I am very upset about it, particularly as I am getting married in October and my hair is really thinning. My doc tells me there is no correlation between my graves and hair loss (and greying), in effect saying I am not losing more hair than normal. I know I am though. I would be interested to hear how you are all getting on and whether you have suffered from hair loss and if you have managed to control it? Thank you all.
Something I should have included in my reply is that I had a repeat TSH test last week and the level was up to 0,16 (normal is >0,32). T3 and T4 still within range. However, I haven't noticed a change in the rate of hair loss. I wonder if my TSH will go back to normal...? My doctor does not want to put me on meds yet.
Dear Katie
I too have been diagnosed with subclinicl hypethyroidism.
Can I ask you what thyroid antibody tests were done and their levels.
I had a very slight hair loss but no noticeable thinning.
I am unsure as to why you are having loss of hair but have you sought any advice from a nutritionist about diet and vitamin supplements.
Are you prescribed anything for the subclinical hyperthyroidism?
Jean
Hi Jean
I hadn't heard of fluctuating thyroiditis until you mentioned it. It is mentioned here in this article about thyroid antibodies.
https://labtestsonline.org/understanding/analytes/thyroid-antibodies/tab/test/
The doctor hasn't prescribed me anything because my thyroid hormone levels are normal so there isn't anything to treat, in effect. I would prefer to not take meds unless I have to, especially with my wedding approaching. I would consider it however if it meant I could stop my hair loss. I have had all my vitamin and mineral levels tests and they are all normal. Having written this, I think I might go back to my endocrinologist for further advice.
Is your hair loss back to normal now?
As for the thyroid antibody tests, I have had:
1. TPO antibody - used to detect presence of an autoimmune disease such as hashimotos or graves. Interestingly this result was normal for me.
2. Thyroglobulin antibody - used to detect thyroid cancer. My result was normal.
3. TSH receptor antibodies - this was the only result that was not in range (3x normal levels). I don't know much about this antibody but it seems to be present in graves patients.
Perhaps you could ask for a Thyroglobulin antibody test just to be on the safe side, given that you have the nodules?
Katie
I too have received the same diagnosis. I saw an endocrine surgeon 'specialist' yesterday with an extraordinarily lack of respect, his lack of empathy not to mention his cold ,callous attitude and refusal to acknoweledge that it is in fact MANDATORY to treat subclinical hyperthyroidism in people aged 65 plus especially if they also have co morbidities such as osteoporosis and/or cardiac diseases.
How does one know in advance what a doctors attitude is going to be.
How does one avoid being referred to someone who basically appears not to be kept updated despit it being a requirement to maintein registration with the GMC?
Why is England so backward in endocrinology thyroid disorders care ?
Jean
Hi Jean
Perhaps you can ask for a second opinion from a different consultant? I have private healthcare treatment and am not receiving treatment but in my case I prefer not to. If I take meds to correct my TSH then I am likely to go hypo until a balance can be found. That said, I don't really know what the treatment is, do you know any more?
Hi there,
I have subclinical hyperthyroidism for almost 9 years now. But i have no symptoms such as tremors, or hair fall or any other. I am not on any treatment and the doctor i visited said i dont need to and i keep monitoring my levels every 6 months to one year
Does anyone out there have this condition.Im glad im not traking any medication for the same, but id like to be doubly sure that it is okay to not be treated.
Priya