My routine gynae exam revealed that I have LS..the dr gave me steroid cream to be used 2/day..I cant see any difference..the white areas havent changed. I am having a biopsy tomorrow and am petrified. Would love a few kind words. Many thanks!!
Hi Anna i was recently diagnosed and i too was petrified, especially when you hear the horror stories of what it can result in. Persevere with the steroid cream my consultant changed mine from betnovate which didnt work to dermovate which did, but it took a few weeks to get under control. The chances of anything sinister happening in the future are a very small % probably no more than anybody else ending up with some awful condition. I have had a lot of support from this site and to be honest at times its actually made me laugh!!
Be positive to quote someone else who told me we could have something a lot worse and with the right help and advise mine is now under control. ( i am a little obssessed and check on a regular basis though). Good luck
thank you so much for saying this! I am worried about the actual biopsy procedure...did you have this??
I had a biopsy under LA. The injection was painful but after that it was fine. The good thing is that i got clarification that all was well which is very reassuring. All the very best
thanks for replying.
I was diagnosed early this year and was very scared after reading things on the internet. I used Dermovate twice a day until there was a noticeable difference, then once a day for a month, then every other day and am not using once a week as a precautionary measure and feel fine. If I forget I notice it starting to flare up again but have been riding my bike and playing sport again as I did before.
hi there! how long did it take till you saw a noticeable difference?
The white patches may not revert back to pretty pink - but the steroids should stop the white patches from growing - or growing as fast Good luck and see my other post to you
Best wishes Sue DM
I think it was about 3 weeks. I was told to use an amount equal to the top of my finger to the first joint and ensure it is well rubbed in.
No i didnt need it in the end the dermovate cleared it up, but i was told i was going to need one originally.
GOOD LUCK Anna....warmest wishes to you. You will be fine. They will take good care of you. Don't worry!
Love Marey xxxxxxxxxxxxxxxxxxxxx
awww thanks for that!!!!
I think that given time the white might disappear as the skin regenerates, just like other scar tissue. That seems to have happened in my case - in places anyway.
welcome! When I was working in theatre a friend had her wisdom teeth removed...i put a very small bunch of flowers in a test tube on the counter facing the direction she would be looking....with a GOOD LUCK note beneath. she told me that as she drifted off, the colour of the flowers was the last thing she saw ..and that a tremendous sense of peace pervaded as she floated away under the anaesthetic.
So, although you're not having a general ...as the local anaesthetic proceedure advances I invite you to find a far off spot to locate and to fix on, and, as you do so, to visualise your favourite colour...purple is very healing ....let it eminate from that distant object and with half shut fluttering eyelids let the colour come towards you ....surrounding you ....and entering your body from all around. As you breathe in with slow steady breathes also breathe in white light specifically through your nostrils... to join with the purple haze... thus creating a rosy pink canvas in your mind's eye.
No need to chat or make any 'helpful' assistant feel better just explain by speaking in a very slow and far off voice that you're relaxing and visualising...saying this... or anything... in a really exaggeratedly slow voice is a very powerful trigger to your own endorphins which will rise to help and to relax you. In this way you can work on finding your inner peace..even in extremis!
Such practises are not only calming but healing too and your scar will be minimal. very best wishes with loads of love and hugs
marey xxxxxxxxxxxxxxxxxxxxxxxxxxxx
ps my note will be there waiting for you...even if you can't see it. Good luck ! Thinking of you x
thank you so much!!!
Yes good luck Anna everyone will be thinking about you.
Take care and i agree with Marey try not to worry.
xxxx
i suddenly have this very supportive group of women...doesnt get better than that!! Thanks so much everyone.
xx
Welcome, Anna. The biopsy is a good thing. They're just checking. Some doctors prefer to look at a biopsy before diagnosing LS definitively. Makes sense, since it means a lifelong prescription for a very low dose of steroids.
Once we're under the care of a gynae, there's almost zero chance the worst will happen, which is squamous cell carcinoma. It's women who've gone untreated with LS and then VIN, they are the ones who make up the cancer stats.
You're in excellent hands with the doctor – and with this great group. I had lots of those punch biopsies from my cervix twenty years ago. Not fun, but zero cancer.
Stay calm, take care of yourself, avoid the worst comfort foods (chocolate and chocolate – it's been almost unanimous on this forum that chocolate causes flare-ups) and you'll heal just fine.
My white patch is very small and comes and goes.
My dr saw the lesions last year but thought it was something else..she didnt tell me anything...so now I am really worried that it has already progressed...
you'll get things back under control!
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