I'm scheduled for a surgery to remove HS from my left neck. How long did recovery take and has anyone else had this on the back of the neck?
Hey there I have had HS removal from my neck and my surgeon had no idea it could even grow back there! However, recovery did not take long, should just be stiched up or left open with applying a dressing to heal properly. My neck surgery was the last HS surgery before starting Humira. I would highly recommend looking into Humira if your flare ups continue! Since that surgery and taking Humira I have had zero problems! Knock on wood! I hope this helps, good luck in surgery! God Bless.
Hello my daughter has been suffering with HS for years. She recently had the first one her left armpit about 4 weeks ago. She's healing well it's just the groin area that's really causing her incredible pain. She's schedule to have gratin surgery this week to address the horrible outbreak that's into her thigh area. I wanted to see how you are doing and to get an update.
Thank you,
Deborah
Im so to know im nott the only 1 sufferin
Hi everyone, not sure if anyone still follows this thread but here goes.. I'm 32 and have suffered from hs for approx. 10 yrs. I recently started humira and isoretioin but haven't noticed any results yet for hs. I've taken the initial starter doses and next week will begin my maintenance dose of 40mg injections weekly. I have been considering a consultation for surgery so that's how I stumbled across this page. The pics on the internet are horrifying and my big question is if anyone has had reconstructive surgery after the excision and if so, did it look anywhere near "normal"? I know there is no cure and id be happy to get any relief but I also wonder about the aftermath "look" of the area. I'm primarily affected on the groin and buttocks, hope anyone has any thoughts... thanks-K
Hi I'm new here to but I have had hs since I was 13. And was miss diagnosed till I was 40. I'm 46. I had surgery at 40 where the surgeon only removed the infected sweat glands of my arm pit. This was done the conventional way with drainage and stitches. Before I had fully healed I had a new growth in the same arm just mm from the incision. 3 years ago with a new surgeon I had the other arm done, he removed all sweat glands within the armpit with drain tube and stitches. I encountered infection immediately from that surgery and had to have the stitches removed and my body had to grow it's own skin in place. Not wanting to scare u after the stitches were removed I had minimal pain and have healed so nicely and with no outbreak that I am currently doing my right arm with no grafts, stitches or drainage tubes. I'm excited about this as I don't have 2 open wounds ( like a graft) and it pretty much feels like the healing of a really bad skin scrape.
I don't know how to send u a picture but it is definitely a nice heal scar, smooth done this way if while healing dressing is done correctly to keep skin from puckering.
On the side note I'm from Canada and had to convince a doctor to go this route. As they have all believed stitches or grafts are the only way to go.
Good luck to you.
Hello I'm kenzi I'm 24 years old and I suffer from HS started getting it when I was 13 seen several doctors got a lot of them lanced open well I was getting them so bad in both arm pits where it would stay open at all times I'd get them like times a week. Well I just had surgery on both arm pits on Tuesday last week and I'm so beulyond happy I did first time in so long that I have gone this long without the pain in my arm pits
My question is sorrry I accidentally hit send before I was done how long did the draining last I got stiches and they left a little opening on an end of both of my armpits so I wasn't sure how long that lasted
Hello,
My daughter's left armpit was done in July. We didn't do tubes or stitching. The wound is healing nicely and is shrinking in size everyday. She has recently had the peri-anal surgery a few weeks ago it's a large open wound but it's healing slowly and I'm sure in a couple months I will have another great update. She still requires her right axilla to be excised. Our surgeon wants her body to heal and close those wounds naturally before we entertain any reconstructive or grafts. I'm lifting everyone who has been afflicted by this horrible disease.
Yes this disease is horrible I'm so glad I finally found out what it is it took over 10 years to find out what it was
I had HS on my buttocks starting when I was 22. I am 72 now and had a recurrence 10 years ago. The surgery I had at 25, after 3 years of failed therapies, removed everything right down to the muscle. This is the only way to get a "cure". I was given skin grafts, my butt wrapped in a ton of bandages, fed a liquid diet and kept still for 11 days in the hospital and, sure enuff, all the grafts took. I was free of HS untill 10 years ago. No skin surgeon I have seen was willing to do what was done to me 50 years ago. One regular knife surgery failed. That was 2 years ago. They wanted to give me a colostomy in the second attempt at removal. Screw them. I kept researching and found that CO2 laser surgery, a relatively new type of surgery for HS is having a very low recurrence rate.The low recurrence rate is due to the fact that this type of surgery produces little blood. Little blood means the surgeon can see much better and identify diseased tissue and sinus tracts much easier and remove all diseased tissue very precisely. I get my lesion removed at the Cleveland Clinic in Ohio in late October. It is not a big lesion and I am a good candidate for this type of surgery. Not everyone with HS is. The wound will be left open and should heal in 6-8 weeks I am told.
Hey Chuckles! Every procedure is different depending on the severity. The best way to look at it it as where the surgurey occurs the likely hood of it coming back is very very low. I had a removal under my right breast. There it was drained and the tunnels it makes were packed with a mesh-like meterial(forgot what it is called!" The doctor did that so that anything that was in my tracks all swelled up in the mesh he left the incision open so that I could take out an inch and cut it daily until all gone it then healed close on it own or some doctors may stitch it up. Now my breasts still get them just that overall area is low likeley just because the surrounding area has had the fluid fully drained and absorbed from the packing and cutting. He did an on site anesthesia and gave me an iv for the pain. You still feel it because it doesn't get totally numb.. I sure felt him cut but I have a high pain tolerance. That was my surgical experience
I feel the same as you so happy to have my left arm pain/ odor free and am excitedly waiting for the right to be the same. In answer to your question the other times I had them stitched and a drain the healing time depends on the severity of the incision, depth they were . On average 1-1/2 months.
I have a question ,where are you from and have you ever heard of a peko bandage, it's a vacuum bandage the draws the drainage into it and stimulates tissue for healing. It's a small motor and quite comfortable to use. Has almost cut my healing time in half for the first arm and seems to be doing the same with this open healing wound under my right arm.
We live in Seattle WA. I haven't heard of that kind of bandage. I plan to research it. This HS disease really needs to be on a national medical platform. Im keeping a digital diary of my daughters journey. I'm hopeful she's willing to share her story so more people can be diagnosed correctly and have access to support groups and cutting edge technology to improve the quality of Life for all affected by this..
I'm photo documenting this arm also as I truly believe this is as close to a cure as we have.
The bandage is Pico by Smith& nephew.
Moderator comment: I have removed the link(s) directing to site(s) unsuitable for inclusion in the forums. If users want this information please use the Private Message service to request the details.
http://patient.uservoice.com/knowledgebase/articles/398316-adding-links-to-posts
http://patient.uservoice.com/knowledgebase/articles/398331-private-messages
Please private message the link to. Thank you
Moderator comment: I have removed the email address as we do not publish these in the forums. If users wish to exchange contact details please use the Private Message service.
http://patient.uservoice.com/knowledgebase/articles/398331-private-messages
Some research on this bandage has it at very expensive and the negative pressure unit goes dead after 7 days. Please elaborate on your experience with this bandage. It does sound very positive in creating faster healing.
I'm from Saskatchewan, Canada so never had thought of the cost as it's covered for me. But after I had posted the question to Deborah I looked into it. Wow ya that's really expensive. But overall I'd be pushing or looking into if my private coverage would cover the cost. I believe it had cut down my healing time by half.
I have a 4 1/2 inch by 2 1/2 by approximately 1/8 inch deep incision done on September 7/2017. I was able to start using the pico last week Sept. 14 and at my bandage change on Sept. 18 I have new skin starting to form on the edges. The incision is kept clean and clear of sludge ( old drainage) .
3 years ago with my left arm I had been told it would take 6 months at least to heal over completely but after starting the pick it only took 4 months. And my scar is smooth and have been clear of cysts since. That incision was 4 by 3 and 1/2 inch deep when I started with the bandage.
And yes it does die after 7 days. The nurses here have experimented to see if it would last longer, it lasted 8 days. This is set this way I believe because it is not beneficial to leave any bandage on for longer as it can cause bacteria to form. Just my own belief.