Hello. I apologize in advance for the long post, but I’ve found speaking to people who can relate helps me out a lot. I have been struggling with recurrent stomach issues for just over a year now. I am an 18 y/o female. I have been all over the place with diagnoses and ended up with a final diagnosis of IBS-D. I’m still not sure I believe it and I have really bad anxiety about my health. It is really exhausting and upsetting to be sick so often especially at such a young age.
I was doing well (haven’t had a flare since January) until a few days back. Stomach cramps began and I knew the diarrhea was going to come soon after. My main symptoms are upper abdominal cramping near my ribs, it is intermittent (comes for a few seconds than goes for a while), diarreah and occasionally a low grade fever. I have been sick around 8-9 times since last January. The first episode was awful. I was extremely ill, and not convinced that was the beginning of IBS, but was told cases of gastroenteritis could cause IBS.
However, I have had my stool tested. First I tested positive for Cdiff. Treated. Got sick again a month or so later and tested negative. Perhaps a false positive first time..? I have had an endoscopy and colonoscopy - no sign of IBD, no bacteria present in biopsies, slight inflammation in my stomach. Pelvic ultrasound - all normal. Blood tests & food allergy tests - normal every time except my CRP is occasionally slightly elevated.
Finally, my questions are:
could this really just be IBS or did we miss something? Should I request any other types of tests? My flares often last for a week or more. Cramping starts first and goes away first, leaving me with watery D.
What can I do to help this? I began taking probiotics which I believe may have helped push this flare back a few months. I’m not sure if I should take something like Imodium or just let it all out? Has anyone seen real improvement from a low FODMAP diet?
Thanks in advance. I’m a really worry wart and I’m really tired of being sick.