Hi,
anyone tried the fodmap for ibs with fibrommyalgia, I am finding it hard at the moment to settle my ibs because of worrying about eating
Hi, Particia,
I've been battling IBS and reflux for quite a long time and what I've found most helpful is going gluten-free and not replacing it with processed gluten-free food (I avoid grain in general, except oats, which seems to help). I generally avoid fast food and deep frying. All the above rules are restrictive at first but when you learn to keep them, your stomach and bowels feel so much better (and I've lost 12 kg even though I've got hypothyroidism).
iam glad you have found away to help your self and yes to loose weight with your other condition is really good,
but i think it is all very personal , for me i have to leave all fruit alone the only veg i can manage is broc carrots cauliflower,green beans potatoes, i can have fried food but not everyday, i manage meat ok but eggs cripple me, i love nuts but they do the same
, and i so miss my curries,
salad gives me problems but only after i had a bout of shingles up till then i could eat it daily now i have to be carefull . its bloody nightmare, all we can do is trial and error
,gluten free made matters worse for me to . so there dose not seem to be any set pattern which is really annoying i am sure we all FM sufferers will agree.
all we can do is say what works for us and hope it helps someone else.
Hi Doris,
how do you replace fibre in your diet, I have read that going gluton free deprives you of essential vitamins.
I have ibsC so I am trying to balance my soluble and insoluble fibre, which is quite hard when you have been used to a high fibre diet and could eat what you like, about 12months ago that changed and have been trying to find a diet that suits me.. My Dr has referred me to a dietitian but knowing the dear old NHS don't know how long that will take
is going gluton free healthy, would be interested to hear from you concerning that.
Cooking for two people also puts difficulty in the way.
Best Wishes
Pat
Hi Tina,
You certainly have been through the mill, it is a nightmare as you say, I thought you only went gluton free with if you were diagnosed with certain digestive complaints.
did not mean to moan about the P&P on the digestive drops just thought £3.95 was a bit steep, mind you they all do it.
just tried a peppermint oil capsule for abdominal pain I seem to get it every day no matter what I eat, think it's worrying about what to eat.
Ibam willing to try anything within reason, but hope to find a simple diet to suit me.
One day they mightv even find a cure for Fibromyalgia, surely in this day and age it should not be beyond the scientists who come up with cures for
a lot of diseases.
Of to take my Laxido soon, oh what an interesting life we lead.
Best Wishes
Pat.
PS they say the weather is going cooler tomorrow, Hurrah.
Well, I only cook for myself so that's easy. I take some supplements that are supposed to help balance nervous system. I eat oats for fibre (they usually don't contain gluten, unless they're polluted with it), plenty of veg too. My blood test results show I'm in perfect health (ironically) so I'm not worried about vitamin deficiency.
i hope so luv its driving me mad, i agree with you the p&p is steep ,
but if your tummy kicks of or you have nausea i find they help , you can give them to children as well, much kinder than imodeum ,
peppermint kills me see everyones differant, i wouldnt hold my breath on a cure , theres no money init, big money in finding a cure for cancer,
thats where most of money is directed.
hope for cooler days, had to cancel my hairdressers appointment because its just been to hot for me to go out. feel faint if i get to hot.
you seem to be doing well, i hope it continues for you.
what supplements do you take i take q10 and b12 and a multi vit in a oral spray,
I am doing well, after balancing everything (work, leasure, diet, relationships etc.). The supplement I take is designed to boost nervous system and contains (among other things which I cannot translate from my native language) selenium, vitamins E, B (all spectrum) and some fatty acids. I've been taking it for 2 weeks now and will yet wait to see any results. I started to take not because I felt any deficiencies, but to try something new that might help and doesn't seem to smell of snake oil.
well it sounds like a good all rounder, cant do any harm. iv brougt selenium in an oral spray as well havnt started it yet . because its sposed to be good for the nervous system .
Hi Patricia,
You are in a pickle, worrying about eating is causing stress which is the dominant trigger for Fibro-flares and also for my IBS. I say my IBS as it can be foods for other people. Having had IBS for over 30 years I have found that it's a matter of trial and error to see what works for you. Sorry I couldn't give you a quick fix, there isn't one.
There is much anecdotal evidence that certain foods cause increased pain for Fibro sufferers, having discussed this with a consultant pain specialist received the following reply. There is no evidence to indicate that diet has a bearing on pain in Fibromyalgia patients. However, many people I've spoken to, or comments I've read in conversations such as these, state that certain foods aggravate their Fibro. Personally I don't seem to have differing levels of pain after certain foods or drinks, stress is the greatest offender for both. Having lived with IBS for so long I have found out what works for me. When I discussed this issue with my doctor he said that it's difficult and the only way you can find out for sure is to eliminate all foods and introduce them back into the diet one by one. My thought as I nodded and thanked him was, 'you must be flipping joking'. How does a person manage that as well as life, what a palava. Anyhow, I like my food too much. Joking aside, I do try to have freshly cooked foods. I've never been a fan of the ready meal as anything other than for really dire straits, they are full of salt and additives that I wouldn't put in home cooked food. I know that on a bad day it's near impossible to peel a carrot or potato but there are pre prepared veg available in most supermarkets. I am also fortunate to have a 17yr son who loves to cook, he will often jump into the breach when I'm too whacked.
And finally getting round to fodmap, I'm cynical as I have looked at the "good and bad foods" in the past and in order to keep my system happy ibs wise I would have to mix and match from both lists. I know that foods high in fat speed things up so if my gut is too sluggish I whack in a steak and chips with peanut M & M's to finish and that works brilliantly.
I hope you find what is right for you and that you don't experience too much pain during the process. I think that the best thing to do at the outset is to keep a food diary, that way you can see what you have eaten and when. Ensure that you have enough space to record any flares or unpleasant or painful ibs episodes. This may sound a bit daft but over time you may see a pattern.
Kindest regards,
Gin
You are lucky having someone to cook meals for you, I am 78 and have my husband of 82 to care for, who does not cook.
12 months ago i was leading a normal life, with very mild fibromyalgia and could eat anything, now have other complaints as well, just want to lead a normal as possible life with anxiety under control.
I think I will have to be more adventurous with food, and not keep eating the same things everyday, it's very boring.
what I miss most of all is not being able to drive, because of fog and balance.
I always have been a worrier but now it is out of control and need to help with it.
i spoke to a hypnotist this morning and might have some sessions to see whether that will help.
The NHS Psychiatrist I am seeing is not helping much as only see him every 6 to 8 weeks, have tried
several antidepressants but too many side effects and no benefits he said i was suffering from emotional distress.
what I need a more intense therapy, oh to win the lottery.
my daughter in law is a Specialist Nurse in long term conditions, and said that anxiety is learnt, and we have to reverse it. don! they make it sound easy. my son thinks all I need is more going on in my life, do not understand fibro at all. I know what I need is to get rid of this STRESS.
I live in Birmingham, they live in Melton Mowbray and want us to move nearer them, but could not face the upheaval at the moment..
You sound a very glass half full person, and humorous, good for you.
Best Wishes
Pat
Keep touch.
stress affects my ibs; but i noticed not eating chocolate, fried foods, spicy foods, all bakery type cookies, cakes, doughnuts etc... helps ALOT; also adding 'sprinkle fiber' to my food helps; made from apple pectin; gentle on stomach helps alot
have you tried eatng things on there own , like a few slices of lamb, or a portion of ol boiled potatoes with butter and see what happens , then try cobinning them and see if things are stil ok then you can tick things of like that.
its straight forward way of finding what gives you problem . make a list as u go a long then you can make a menu up when you have enough ticks
The thing I have got to do is get a handle on this stress, it's upsetting my stomach whatever I have.
i spoke to a Hypnotist this morning recommended by the group I go to and he seemed very experienced with anxiety and fibromyalgia.
my daughter in law said I have learnt it and he said what we learn we can unlearn, unfortunately can't get an appointment until next week could have done with one this week. That's how busy he is
my problem is getting enough food to keep my weight up! already lost 2 stone, and no clothes that fit me, anxiety uses so much energy trying to keep abreast with it is hard work. And it is doing my head in.
one of the X-Rays I had taken last last week shows I have moderate arthritis in my right hip,so a double whammy for pain.
Hate to come on this site and keep moaning, but glad to hear from other people.
Got a appointment at the dentist tomorrow and have to climb a flight of stairs. Hope nothing needs doing.
Thanks for your tips, what do you have for lunch and breakfast and snacks, It's hard to break old habits of what I used to eat
All bran with fruit for breakfast, wholemeal bread for lunch, Chicken tonight with mashed pots peas and carrots for dinner, fruit for snacks and a fortisips drink from the Drs.
Do you get much pain in the evening I seem to get it worse then.
bye for now
Pat
i think iv said before you can buy a decent hypnosis cd and do it at home which works well , its good back up as well if you cant make an appointment or get one .
plus if you start at home you have a good start before on the relaxtion before your appointment because it takes awhile to get to relax .you can get a decent one for about £10 from ebay.
I have a complete relaxation app on my iPad which I am doing every day, by Glen Harrold which is good, it's quite hard to relax even when you are listening to one. I also listen to the relaxation music on you tube., there are also some quite good sleep ones as well.
I am going to try a professional one to see if there is any difference, this one
Is also a Tai Chi Master, and does hold classes, he said the oldest member was 104!!!.
Thanks as always for your help
Pat
Meant to ask you have you tried professional hypnotist, I thought I remembered you saying you had.
My Daughter in Law Zoe, is having a baby in November and by now I would have been sewing and knitting but not this time, will have to buy this year.
but it won't be the same.
Pat
yes i have tried professional , the ones i use on cd are made by profesional hypnotists as well, i found being live one to one very hard work and for me imtimadting , and even if you dont feel that way .
your still looking at what £50 a session and it takes awhile for it to work.
congragtulations on your futrue grandchild .it dosent look like i will have any , my eldest is 30 and has R A SINCE she was 27, and my middle daughter dosent like kids my son is ASPERGERS [form of autisum]
mind you my second husband has 2 grandsons, one who is just two and has just had his iq tested ,its a 108 so got a genius in the family,not from steve side , his mum is extremly clever reads extinct languages .
did u see that awful programe tonight called blingying up baby , desgusting dressing up babies like barbie dolls compleat with spray tan from the age of two or is it just me.
Hi Pat,
I've just spent considerable time replying to your message as I have typed a bit then rested as my hands are painful today. Sadly a message popped up saying that an error had occurred and I have lost the whole message....arghhh! That glass half full has developed a leak, albeit temporarily ha ha.
I will give you a more comprehensive reply in the next couple of days as I can relate to much you have said. I have to give my hands a good rest now as I'm in need of a cuppa and wouldn't be able to lift it just now and through a straw isn't the same.
Best wishes,
Gin