Idiopathic Neuropathy

Marie, there is really no test for it. In his wealth of experience in dealing with PN in NON-diabetics, this has proven to be the case though most frequently. I can ask him as he also happens to be one of my best friends from college. 

The burning was primarily in my toes, more towards the bigger toes. I have not worn sox for years...and I live in Chicago! I eventually just cut off the front of the toes of the socks, and wore them with my toes sticking out. Did not sleep with my feet under covers for years either. Pain was horrific. 

With my surgery on my left foot, I did not have pain radiating up my leg. But my right foot did, and this was the second one I had surgery on. Actually it was not pain, but a numbness around the side of the calf. He felt there was entrapment up there also, and did free up the nerve opening up on the calf. 

My right foot and calf were just done three weeks ago. 

My left foot was done in 9/16.

Marie, I am not a diabetic. So you have it WHERE in the legs? How far up? I never used Lyrica, heard it was very expensive and with major side effects. I took Neurontin for years without any side effects. Took tramadol as needed. 

My doctor is world renowned. He is chairman of the midwestern assc of podiatrists, and has taught liberally everywhere around the world. Whether he would think this is  your issue, you would probably have to call him. He is a true humanitarian and lives to help people. Even though he has 50 people working for him he always finds time for people. I am not sure he sleeps much. ha

You let me know how far you want to take this, or perhaps he can recommend someone with his skills wherever it is you live. I don't want to make him out to be a god but for me he rid my life of this horrific pain. 

What is the Dr name and where is he located?

https://www.footandankleinstitute.com/doctor

And all that work under him are trained by him and considered superior Podiatrists. Good luck. He would give you your best shot most likely. Again, he is not a god, but has dealt with PN a great deal. Says the surgery works 80% of the time. 

Is everyone aware now there is a PN society that advocates for us?

https://www.foundationforpn.org/

I believe there is an upcoming meeting where patients go to share stories and get educated on the latest and greatest methods. The next is in DC and you can listen in. 

I sent a reply but it IS WAITING TO BE MODERATED. I provided a link to his office and a link to a PN foundation which is an advocacy organization for PN sufferers. 

If that comment is blocked his name is Dr John Grady of Foot and Ankle Associates. Just g o o g l e him up. 

Thanks

Hi Woozydoll I know what masssager you are speaking about my husband found it at Costco we went back there and I tried it and we ended up purchasing one and yes it helps with the nerve pain and helps my knee pain  it’s for people who have neuropathy, Diabetic, poor circulation in legs and Feet , it really takes the pain away for a while we love ours it’s a god sin .

Hi Ken,

No I am not diabetic. I am diagnosed with idiopathic neuropathy. No known cause but I believe it could have been caused by the large amounts of the antibiotic CIPRO I took for many years.

Thanks for posting the docs name. I'll look into this.

Bill

Sherri so glad it works for you. I tell everyone that unless you have advanced neuropathy, you can't understand how the slightest relief is a blessing.

So true that, It is just like a mini miracle to not feel pain even for five minutes!! Wow, this dr is doing a lot of good, I sure hope he enjoys the impact he has on his patients! I am going to do a happy dance for him!! 🕊

Oddly, I took CIPRO and many other antibiotics to excess for years to treat various ailments. Nonetheless, there apparently was a direct causal effect with my problem with the entrapment of the peroneal nerve on top of the foot leading into the toes.