# IIH or chronic headaches?

**URL:** <https://community.patient.info/t/iih-or-chronic-headaches/779036>\
**Category:** Brain and nerves\
**Tags:** Idiopathic intracranial hypertension\
**Created:** [31 January 2022 20:04 UTC](https://community.patient.info/t/iih-or-chronic-headaches/779036 "2022-01-31T20:04:27Z")\
**Posts on this page:** 1\
**Page:** 1

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**Author:** ![nh\_user\_1415225](https://community.patient.info/letter_avatar_proxy/v4/letter/n/c2a13f/32.png) [@nh\_user\_1415225](https://community.patient.info/u/nh_user_1415225)\
**Post date:** [31 January 2022 20:04 UTC](https://community.patient.info/t/iih-or-chronic-headaches/779036/1 "2022-01-31T20:04:27Z")

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Hello, I am 22 years old and was admitted to hospital in November 2021 for intense headache, pressure behind the eyes, sensitivity to light and becoming confused and mixing my words up etc. I had CT and MRI which were all okay. Lumbar puncture with an opening pressure of 29 and had papilledema.  
I have since seen opthlamology and they explained the papilledema has gone and the lumbar puncture must have worked.  
I have seen neurology today and they have put me down as having chronic headaches and not IIH due to my opening pressure not being above 30.  
I have all the symptoms of IIH for the past 10 years but only went to the doctors last year.  
I have read about chronic headaches and i dont believe it is what I am experiencing. I have headaches everyday and extreme fatigued but the headaches get worse on occassions such as sleeping with less than 2 pillows etc.

I am thinking of calling my neurologist again to question why I am not being diagnosed with IIH but I am looking for some advice if possible please?

Thank you!