thankyou for replying. I must sound so silly when there are other people in worse situations than i am.. i do apoligise. I just didn't know what to do or what to think. I will try and stay positive. Oh and my rhematoid- factor had been tested and it was okay as far as i know.
vicki28,
No need to apologise, I hope you didn't think I was hinting that you were complaining as that was absolutely not my intention; what I was getting at, is that people will understand your pain and desparation on this site, whereas the ordinary Joe is not sympathetic to people like us.
Remember there are always little things you can do to help yourself, such as watching posture, light stretching etc, whilst you are seeing all these specialists.
I suggested a memory foam pillow - I know you have a young family and money may be an issue, but you can pick them up for £30 or less and they DO help a majority of people. Please try one if you have not done so already. As I said, I got mine from Argos for only £30 and it has helped.
thnakyou. I woke up this morning and literally couldn't move. it took my about half an hour to be able to get up out of bed. My neck is hurting again and the front of it feels like its being pushed out. It sounds strange i know but i am waiting for a phone from my docotr about it. But oh my god my whole body huirts. My ribs feel like i have been punched in them several times and so does my back. Any clues?? On a lighter note its nice to have a place where you can talk about your situation with someonw that has similar issues to yourself. I mean ... how do you explain these things your going through when you don't look poorly or abnormal in anyway. I am not poorly i have never felt poorly all through this which is the strangest thing.
[quote:b987f876f2=\"vicki28\"] i found out that my mri neck scan came back with nothing , no nerves or anything being pinched just a loss of curvature in my neck. My blood tests have showed nothing but i managed to get an appointment on the 5th march to see a rhematologist in a private hospital through the nhs. I really am in a state though. I know that this maybe won't be cs but all the people i have seen thinks that its definately muscle/skeletol problems. Today the pain in my neck is back and my neck muscles feel tight.I am sick of taking anti-inflammatories and every other medicine know to man.. The chest pain is back and thats the scariest thing of all. My kids just want to know whats wrong with mummy and my husband is tring to understand and is helping so much but its hard to explain how all this feels. I wish there was just one word but there isn't and i am scared. 8 weeks ago i was healthy and active now i can't even walk my kids to school.
Hiya Vicki28,
I have been following your posts, and am sorry you are in so much pain, and do not seem to be getting anywhere with the medical profession, I hope you have better luck on the 5th March.
Have you tried some heat therapy on your back? Via hot water bottle , gel pouches etc, this can help relax your muscles a little.
If you are taking anti-inflammatories (NSAIDs) you need to take a tummy protecting tablet, as they can be quite aggessive on the stomach.
Wishing you all the best for the 5th.
I can get quite alot of chest/ rib pain with CS, but once I knew what it was I stopped panicking, it makes all the difference when you know the beast you are dealing with.
Emxx
i have just been to the doctors and they put me on different anti immflamatories. The rib/upper chest pain around my shouloder blades at the front is getting worse and i am using one of those microwave wrap things. I am bent over at the moment (quite a sight!!) because i canot sit or stand up striaght. It hurts so bad that i'm thinking of going to emergency department but i have been so much lately that they threw me out last time. My doctor says i need to be admitted but she can't do it herself. I am confused because i need to get better to look after my kids.
[quote:5056deb521=\"vicki28\"]i have just been to the doctors and they put me on different anti immflamatories. The rib/upper chest pain around my shouloder blades at the front is getting worse and i am using one of those microwave wrap things. I am bent over at the moment (quite a sight!!) because i canot sit or stand up striaght. It hurts so bad that i'm thinking of going to emergency department but i have been so much lately that they threw me out last time. My doctor says i need to be admitted but she can't do it herself. I am confused because i need to get better to look after my kids.
Vicki28,
Sorry, but I'm totally at at a loss as to why your gp cannot get you admitted to hospital, my gp did exactly this for me, 6 months ago.
The anti-inflams can take some time to kick in, but you still need a tummy protector or you'll end up with more problems!!
Why are they throwing you out of A+E ??
As you are in such severe pain I should get to A+E pronto!!!
Emxx
they said theres nothing they can do that they don'y have the grounds to admitt me through the emergency department. I need to be. My husband needs me to be as its stressing us all out and we don't have answers.
dear vicki, i am sorry to hear about your problems, as i read this it brought back such memories. when i first started suffering with cs i had the rib pain it felt like a really bad chest infection it hurt to breathe, which in turn makes you breathe shallow, and the shallower you breathe, the harder it is to take a deep breath. i have been suffering for the past 17yrs and it started when i was only31, i just woke up and couldnt move, at that time i had a one year old, and two little ones as well. your husband will notice what you are going through and just a few words from you should make it apparrent, but dont expect him to be a mind reader. make sure he knows what you cant do. you have only been suffering short time yet but as you get further on you will realise what your limitations are. there are so much more you can try yet, get your gp to refer you to your pain management centre, they are a god send. good luck vicki and keep us up to datewith your progress.
vicki28,
I have just logged back on - you poor thing, I really feel for you and you are suffering more than I have by the sounds of it.
Other posters are right, CS can cause some rib pain, I used to have it myself and my poor older sister had it quite a lot (she has a much worse case of CS than me).
Please take the advice above about heat therapy - I bet a lot of your pain is coming from muscle spasms; you need to keep the muscles as lose as you can and there is where heat is coming in.
Sorry I am harrassing you on another point, but PLEASE get a memory foam pillow if you do not have one, just try it.
On a final note, be damned if I would allow them to turn me away from A&E - I know you are in pain but there is where your husband can come in. I would INSIST you are seen and state quite rightly that you/your husband has paid into the system for years (presumably!).
Stick in there my darling, you wont be like this forever, you are clearly at a very rough point at the moment. The closest I came to agony was when that Osteopath injured me and pinched my nerve, I was screaming and that is saying something as I am a tough bloke normally. But it's all long gone, time will help if you help yourself in little ways.
i have just had to have blood tests taken again for auto immune diseases etc and bone. On top of that my throat feels odd. a little numb and thats not nice so i'm on penicillin for that. All these medicines can get so confusing
feeling not very well today i found out that i have lost curvature in my neck. It makes me so dizzy and unstable. My right foot keeps going hot and tingly and so does my wrists. my shoulders and arms feel like dead weights and i had enought!! i really have.!! I have no ides what is wrong with me and by the way you should never ever look on the ionternet for your symptoms. I have had everything from this to ms to mnd to cancer etc.!!! Sorry i don't mean to ve mad but i get very frustrated when your gp can;t tell you anything. I think they should be trained in the basics of these subject just so they can put your mind at ease a little bit. My mind (as you have probably gathered) is not at ease. Its all over the place and ruining my family. What do i do ??
Dear Vicki,
Please believe me when I say, I know exactly how you are feeling, I really do. I am in my latish 50's so I have no children or running around to do anymore, I can take my time and do things at my own pace now. Which I have to do, because I can't do any different because this horrible condition dictates how you live your life day to day, and each day you do it because as time goes by you begin to accept and deal with it, everyone I believe has a different coping strategy, you develop one over time, you'll do it Vicki, I know you will with the help of a good partner/supporter you'll get there, it will ( unfortunatly) become part of your everyday life.
Are you still going to the hospital on Thurs? Good luck, and don't forget to write down any questions you have for the neuro.
Good luck, you'll be fine
Wishing you some much needed pain free time soon
Keep your chin up
Emxx
Hi,
Read your posts and know and sympatise with the symptoms you describe. Very like what I experienced when I was first diagnosed with c/s many years ago. My neck was stiff and straight and tilted to one side for 3 weeks. Also had chest pains..especially in the morning. Just a couple of things that might help. Make sure you are not sleeping in a draught (open window, open fireplace, air vents etc) as this can aggravate and prolong the pain...even try sleeping somewhere different (sofa, lie lo etc. or even different room). This can shift the pain and stiffness, or even get rid of it. If it doesn't work, try again somewhere else. Never hurts to try and you might even discover a nice comfortable solution. If possible try using memory foam topper for mattress (£50 ish on internet) and a nice soft pillow which doesn't resist the straining in your neck. The more the neck can relax when you sleep, the better you should feel the next day. I have found,through trial and error, that taking a nap on the sofa with my head slightly raised on the arm can shift a headache or stiffness. If you can achieve some pain relief by changing your sleeping habits then you will not have to rely so much on painkillers which have their limitations and side effects.
If you have c/s (an xray or mri should confirm) then you might find that these painful episodes occur ocassionally and it's better you are prepared to tackle it in a way that suits you rather than totally relying on (if you read the c./s posts on this site!) unreliable and confusing doctors' advice. Good Luck.
Hey there,
My names jack, 22
I feel ya, i have injured my back at work from a fall on a roof. I have aggrivated shermans and have mild degenerative spondylosis of the lumbar,thoracic and cervical areas of the spine. I have been left in the dark aswell. Due to the wedge shaped vertebrae it causes them to wear away at a higher rate because the surfaces between vertebrae are not rounded causing cartridge to grind away. Its wonderful how serious doctors help you when you are in agony. Especially when your condition has caused foot drop from spurs and herniated discs putting pressure on the spinal cord. Foot drop is caused by an interferance or damage to the poraneal nerve.
I wish you luck and be persistent. This is not something you should just deal with.
Hi laura I was diagnosed at 24 and I'm in the same boat in so much pain and that I carnt find the information I want ether I wonder the same as I see everything say older people xx
We are all in the same boat I'm 24 and it took me a while to exsept it with all the morphine I'm on and I'm on crutches and my hole left side I don't sleep well at night carnt work and I do wonder were I'm ganna end up just don't over on it and push for answers from doc's and that
im 22. i got cervical spondylosis a year ago. it didnt cure . i want to be a athelete. but i doctor suggested me not to run or jump. i dont know how i got this thing. im looking for a permanent solution to it.
i consulted homeopathy. my pain got reduced but it is reoccurring when i play football. i already gave a 6 month break for physical exercises. but i want to play. what should i do.
im having lamb bone soup twice a week and avoided tasting salt( it melts bone).
all i want is a permanent solution to recover and play.
I Am 28, been a sports person all along. Never had any kinda problems at all. I work as an IT professional and 8 months of very long hours of work and bad sleeping posture or whatever the doctors say it's CS.
Worse part is none of the doctors said it could be CS when clearly all my symposiums directly point towards CS.
I had all kinds of pains in my body. I did not realize or may be ignored all the horrible pains for 3 months almost. One morning it hit me so bad that I couldn't get up from my bed. Severe head ache for months and joints pain and low back knees and foot. Basically the whole body you can say.
The kind of swelling I had on the side of the neck and shoulders were unimaginable.
What d hell are those muscle pulls or spasms whatever which jus triggers all the aches in the body. That's unbearable.
It's been a month that I've been home resting and with 17 sessions of physio I feel a bit better but I cannot say i am okay because I have different pains in diff body parents or joints everyday.
There is nothing on the net for young people having CS at all. Absolutely no help ! I don't think any doc actually helped me except for prescribing pain killers which are temporary help.
The doctors have told me I have straightened neck and I have no idea what I shud do to get back the curve ( pls help me with some exercise links that could help ) I am very worried ! I need to go abroad on work and with this pain I doubt if anything will work out for me.
I got an MRI which says I have STENOSIS in C3 and C4 without significant damanage to the nerves . If that is really the case why am I still suffering so much ?
My blood reports say that I have very less calcium and vitamins in my body as well.
Basically there is nothing much one can do, take heatwave therapy and electrowave therapy, it surely helps. You don't have to be scared. You cannot stop doing everything because of this. Life has to go on.
I will be resuming work day after and trust me, if you keep thinking about this it will only get worse cuz of ur stress levels.
Go to a physio ! Take all blood tests and ask for muscle exercises and light neck pain exercise. Pls get an MRI. ( the doc never advised me one, I did it on my own cu I knew something was really wrong)
Pls do it and see what's wrong first. You may have to go for traction too.
You will be okay ... trust me !
Hi there !
Sorry to hear your problems. I hope you are okay doing well.
I have lost the curvature of the neck aswell pls tell me what to do
How are you ?