Im a 12 year old girl with scoliosis, and my back hurts SOO much..Im scared!

Bones, joints and muscles
1

Hey..im a 12 year old girl with scoliosis, ill tell you my story, whats wrong, and then ask you guys if you can help

here it goes.

STORY:

When i was in 5th grade (last year) i was diagnosed by my school nurse with scoliosis, i didnt think much of it, knowing that my spine was curved i just thought, hey? its just a curve..nothing more to it.

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i went into the doctor with my mom to get it checked out, but the doctors never called us back with results, after i got out of 5th grade i became homeschooled, to prevent me from bullies, and having to walk. i became really lazy not having recess and gym etc, and became slouching on the couch severly..i would always use my laptop, (causing me to look down) which put my neck in a very bad position, so as you may or may not have realized..i became to have clicking neck (clicking neck is basically when the muscles in your neck become to tight causing your neck to make cracking/popping sounds when you move it)

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blah blah blah, lets skip forward a bit, a random thing i remember, is one day i was behing a computer desk sitting in fetus position, and i tried to get out of it to go and get gfood, then ALL the bones in my body popped! it didnt hurt, but it popped. when i would move it felt as if my bones would shift. i grew out of it over time, then came school season, i went into sixth grade, i became slouching more and more on the couch, not being active AT ALL, day in day out, on the couch, over time my back started hurting MORE and MORE, its come to the point where i cant even walk for 4 minutes the max, without my back bursting in pain. also in the top of my back on the left side (not in my spine) there is a crack that wont leave! i keep having to crack it over and over!

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today (august-11-2016) i went in to get xrays, the doctor said i will get results tomorrow on how bad my curve is (because like i said idk what it is because they didnt tell me) then my mom and i are making a apointment.

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PROBLEM:

as i said, my back is very tight, i have a crack i cant get rid of, my back hurts to walk, my neck is tighter than ever! and i have scoliosis on top of it! i really want to be a dancer, but im afraid i wont be able to even achieve that because one: im 12 and i think im too late, and two: i have scoliosis! ALSO IMPORTANT: scoliosis can affect lungs..i already have asthma which i was diagnosed with at 7 years old, and latley on and off ive been having some shortness of breath issues here and there.

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im in complete tears everyday! i literally cant say how much i cry because of this! im trying to fix what i did! i know i messed up so much and this is all my fault! im literally crying while typing this and idk what to do! please help..ive tried other sites but no one responds..thanks..

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also if your wondering why a 12 year old is ont his site, and not her mom or something, its because im more determined than EVER, to fix what i did to myself. it would mean so much if you helped!!!

 

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ill tell you guys my results when i get them! my plan as of now which gives me alittle hope, is to go back to public school, get into dance, and something else i forgot while typing this lol..okay i hope someone reads this 

3

Hi Nicky,

When I was a child I had a chronically painful leg and couldn't stand or walk without being in agony, when I was 12 I was referred to a specialist who said I had scoliosis and I had 2 major operations on my spine. Like you, I was very scared and cried ALOT!

I am now 52 and although I still need to be careful and look after myself I have had a good, happy life. What I would like to say to you as you are now going through what I went through is that everything WILL be ok, whatever happens. Any operations are a challenge to you physically and mentally and you WILL get through this and be ok. I was bullied too and these idiots don't understand because they have no idea what you're experiencing and what a hero you truly are, in years to come they will stay idiots and you I'll grow to continue to be a special, enlightened person.

I have since found out my children and I have Marfans Syndrome which explains the many different health issues we have. Do relax and accept the unique human being you are and that it is ALL POSITIVE. Do pay attention to your body and what works for you and what doesn't help; new habits like the way you sit, stand, sleep, walk, shop, etc are a positive challenge for you and you CAN do it. Be Happy   😀.

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first i would like to say ITS NOT YOUR FAULT (((((AT ALLLLL))))))),  second, YOU HAVE MY COMPASSION AND SYMPATHY.   scolliosis is a fairly common disease and it is almost always corrected by early surgery , if not to atleast  the point of making life normal , in most every respect.  it does affect the lungs quite a bit if surgery is not done.  the older you get the less likely surgery is going to able to help. surgeons place rods at either side of the spine. these rods are adjustable at certain stages.  also you may be able to get some legal help.  children by law in the united states are required to have a physical exam before going to school. its unlikely that if you had a yearly physical that doctors would miss that in your exam, and as a result of it they would have been compeled to intervein due to health liability issues if you had suffered a fall on school property.   this disease can be debilitating , painful, and in worst cases things can go wrong.  but the good part is , this disease can be VERY VERY SLOW IN ITS PROGRESSION.   ive known many people to have mild scolliosis and they do have normal lives.  you really need to have surgery before you become mid to teen to 20's.   take care . i hope you feel better.

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The best advice I can give is that you get yourself refered to a Consultant Rheumatologist if you have not been refere already.I have found over many years that they tend to be the gateway to progress. You should not be suffering like this at your age.

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Nicky,

None of this is your fault!!! Work with your doctors on getting better. Thoughts and prayers for you to feel better!