I got diagnosed with an ovarian cyst in about October last year, I had a laproscopy in November and got told I also had Endometriosis and I will soon feel better after being in pan for about three months, about a week later I went back to the doctor and told them I was still in agony, he told me it was just my wounds healing, so I left it for about two weeks after that i was in agony and went back to be told I need to wait for another Month. So back hone I went. Now to be honest this was getting ridiculous back then but now it is April and I have tried Danazol/Imlanol and pain killers, and now I just want to be out of pain i keep going back to the doctors and they keep just palming me off so now I am finding it hard to live with the pain so if any one out there would be able to help me I would be very great full.
You should have recovered months ago,, your GP should refer you back to the Gynecologist / Hospital because unless they've got x-ray vision they haven't got a clue what's going on How would you describe the pain? If the pain is really (or becomes) atrocious then the best place for you is A&E,, I mean at least they'd x-ray the area and do blood tests as well as (hopefully) fixing you up with some decent pain relief before packing you off home
I have been to the doctors as well as A&E a lot of times since my surgery, I am on very strong pain killers but they do not help with the pain I am also on Danazol as well as implanol, at the moment the only way I can see out of this pain is to kill myself at least it would all be over then.
Assuming no organic abnormality has been found during your multiple Doctor / A&E visits then it must be nerve damage causing Neuropathic Pain, your only hope is a medicine along the lines of Amitriptyline What 'very strong pain killers' have you been given?
I am not sure what they are called but it is the same strength as tramadol, they would have put me on tramadol but because I am allergic to one of the ingredients in it.
If this goes on for much longer than you must ask (beg?) your GP / Consultant to refer you to the Pain Management clinic because there really is no need for you to be left suffering like this In the meantime you must ask them to send you for a CT or MRI scan to get a more detailed look at what is going on in there and causing your condition,, frankly I'm not convinced they've looked or tried hard enough to resolve your issues, otherwise (based on my experience) they'll keep you fobbed off for years
I have tried so many times, I have begged them to sort me out be it referring me to someone else or to give me some decent pain killers at the moment the only thing that is keeping me going is my amazing boyfriend. It is just unbearable.
I dunno how they sleep at night I think part of the problem is that when patients who've had operations end up essentially worse the Doctors think you are blaming them when in reality you (we) can accept that sh*t happens sometimes but we'd just appreciate being enabled to carry on living some semblance of a normal life
I completely agree they are being so unfair, I have even be told by one of my doctors who I had a three minute appointment with that there was nothing wrong with me, how does she know that when she has not even examined me, the annoying thing is she says there is nothing wrong with me but why is she giving me strong pain killers after she has said that?
I had the same thing, I had an operation and ended up worse, I even got to see the pain management specialist who told me that 1) he can't give me anything because I'd probably overdose on it,, 2) (anyway) nothing causes pain like this and he's referring to a Psychiatrist :O Now it turns out that actually I'd been suffering from Angina and I've got a blood clot in my Heart and multiple clots in my Aorta causing chronic Bowel / Intestinal Ischaemia,, so nope it doesn't instill me with confidence in Doctors even so called specialists at all
All I'd advice you to do is go to see your GP every week and tell them whether you are or are not getting better an if so what are they going to do about it Be honest with them, tell them that you think you are being treated sub standardly and appallingly
Ridiculous as it sounds these are the only people who can help you
To be honest I ended up calling my GPs a disgrace and moved to another practice and since things have been a lot better,, these new lot even insist I go and see them,, it's quite unnerving :O I was like,, huh!? :D
What exact amounts of pain relief do you take in a day? You know you can take Ibuprofen, Paracetamol and Codeine (I presume) all together? Tramadol is available in liquid form Have you considered that your condition is getting you down and that an Antidepressant might help (both with the pain and to perk you up), you don't have to be like a totally depressed wreck, even if only for a couple of months?
I have changed my doctors all ready and even the new ones don't seem to care that much, I am on OxyNorm 5mg six times a day, I am also on zoladex, danazol, implanol, and I am also on antidepressants.
Hmm is that it,, 5 mg of Oxycodone every 4 hours,, that's not much at all you know You could take Paracetamol and Ibuprofen on top of that, yes it might really help
Hehe, I mightn't be the right person to ask because I'd just take as much pain relief as was required,, fcuk this tiny measly dose, what's the worst thing that can happen except feeling a bit stoned ;D If your GP moans tell them so what what do you expect I'm in flipping agony you jokers
Endometriosis grows in the presence of estrogen. I have been treated 6 x with a drug called depo Lupron. It is an intramuscular injection that you get once every month for 6 months. It turns off your ovaries and some call it "chemical castration" it puts you in chemical menopause and you have all menopausal symptoms like hot flashes. But it turns off your estrogen allowing the endometriosis lesions to die.
I was infertile because of the endometriosis but after the 4th course I got pregnant. 9 years of infertility. I was thrilled. Pregnancy also helps with the lesions but after about a year after delivery the endometriosis flared again. 2 more rounds of depo because I wanted one more child. My doctor said I should just have a total hysterectomy (including removal of my ovaries, which again turns off the estrogen).
Now days there are birth control pills that make you only have a period 4xyear. Wish I had this option. My endometriosis caused the worse pain during my period when the extrauterine lesions would slough causing peritonitis. Oh the pain was horrible. During my lap they found lesions on my bowel, bladder and the peritoneal wall.
I went ahead with the hyst and now am completely pain free. Kind of sad that I didn't have a third child but guess it just wasn't in the cards for me.
I know exactly how you feel, I am currently undergoing tests due to lower abdominmal pain, and by this I mean excrutiating pain. My GP believes I have endometriosis and has beleived that since the start of my problem!
I have been backwards and forwards to the GP and each time I have been prescribed stronger and stronger pain killers, this has lead to me now being on OraMorph and a 25mg Fentanyl patch.
I saw Gynaecology 3 months ago as I was referred by my GP, basically I was told I hadn't been in pain long enough and I had to give it another 2 months before they would reconsider doing a laproscopy. You can imagine how I felt about this, already have been in pain for 3 months and taking a concotion of pain killers, including Tramadol before I saw the consultant for the assesment.
Anyway, I have waited the 2 months I was told I would have to wait and I have been up to A&E twice... once to be told that I had a urine infection and was treated with antibiotics, which by the way didn't do a thing and the second time I was told that I am imagining the pain and I need to come off all the pain medication!!! Needless to say once again I wasn't very happy with the outcome so went back to my GP once again.
I have been to the GP 100's of times over the past 6 months and I feel I haven't got anywhere at all! I have been signed off work for 6 weeks as I am unable to function without the strong opioids! Which as you can guess have the added side effect of making me feel high! And not even a nice high! My appointment for review with the gynaecology has been moved back to the end of November, I have personally tried to contact them and move the appt, explaining my situation and that I am now on the strongest of opioid medication, I was told yet again that I couldn't be squeezed in and would just have to wait. My GP has now written to them and is yet to receive a reply as to whether or not my appt can be experdited.
I am discusted with the service I have been provided, despite my GP trying to do everything she possibly can for me the NHS is shocking!!
I hope that you get sorted soon. It is terrible that people have to go through so much pain, both physically and emotionally.