Wish i could afford to retire between working trying to keep house in order im in soo much pain in my hands and fingers hips and my knee really really bad gets to the point i cant stand im limping cos im relying on my one side not to fall over its getting to the point i want to stay in bed but that wont pay the bills
I don't know what advice I can give, I find that faith and mind over matter work , but the pain is still there. Thinking of doing accupuncture before my thyroid dr. appt. I think there must be something to it if you think about how long it's been around.
Hi its something ihave to live with now cos i have been diagnosed with so many things i wake up in pain and go to bed in pain no win situation i guessed i had an over active thyroid years ago cosim vey small andmy sister is nearly 3 times bigger than me and she was diagnosed with underactive thyroidx
Awww Hotpicks, I know just too well (as I think we probably all do) how you are feeling. Juggling everything is way too much without experiencing total burnout.
I am myself contemplating on giving up work, In the past 9 months I have been off 4 months, back 2 months where I reduced my hours from 37 to 16 and am off again now . I am waiting for equipment to start homeworking but because I am now part time they weren't too keen and at the moment I am in alot of pain and don't even think I could cope with that.
It is a struggle financially and my independance is slowly slipping away, but it seems the harder we try to fight it/cope/live with Fibro the harder it attacks us even more
Feel better soon hun, gentle hugs x
Hi There,
I have just finished a Pain Management Program and during my flare ups I was hepled to learn some stretching excersises which didn't stop the flare up but is stemmed it so that I could get back on my feet. I really think that gentle stretching techeniques two or three times per day are going to help a little. I also have all the issues you have mentioned along with my neck, shoulders and Back. one of the best stretches for your hip is tsit on the floor legs stretched out flat in front of you and bring your bad leg up so that your foot is flat on the floor next to your knee and then lower your knee towards the floor sideways. If you can manage it try pressing on the knee whilst it is out and just feel for the point it starts to hurt, and just back off a little. A Pilates group teacher would help you with stretches so that you could continue them at home.
I hope this helps, as for the finger tips sorry I haven't found anything to stop the feeling that my nails are being pulled off yet.....
Hi it's difficult to cope when you're In pain. I took early retirement but it hasn't helped the pain. I don't have the work stress but sometimes that kept me going because I had no choice. Sometimes it was a distraction. This is the worst I've felt and I'm just praying it will pass soon .
Im desperate to sleep just to get away from the pain. I daren't take any pain tabs as I'm coming off Pregablin . I suppose I'll get through we do don't we
Thank you i will try them out im waiting to see pain management been waiting since before last christmaswhich is a joke sorry but im getting to theend of coping with the pain sending hugs
Sorry to hear you are not well fibro has a lot to answer to it robs you of your independence one of the reasons i work as well not relying on someone never have its always been the other way around sending hugsx
Hi HOTpicks
I know how you feel, lately my hands have been in pain daily, although I have been suffering for over 20yrs, the pains in my hands have not eased of late. As I usually have days with no pains then a few days with pains, ut it has been constant for a week or so now. My left knee I have osteoarthiritis and this seems to be lingering too, especially when going up and down stairs. It's so frustrating but I'm not allowing the Fibro get the better of me. I take regular breaks and try not to over do daily chores at home.
I too wish I could be a lady of leisure but bills still come in and have to be paid. With family to support it's not easy. One day at a time is my way forward.
Gentle hugs and take care x
It is hard i too have oesteoarthritis in my left knee which doesnt help my hands seem to be in pain constantly even when i stretch my fingers they r tight if i dont do the housework my hubby wouldnt do it and you would think i still had my children at home when i come home from work he works as well
Hi Hotpicks99 Really feel for you with how your feeling and trying to work also.Have you thought about trying to claim ESA and PIP. CAB would advise you and help with forms. many of us have had to give work because of fibro, some have even lost their jobs through fibro others that are working are struggling. If your working full time could you go part time and claim working tax credit. take care gentle hugs
Hi Hotpicks so sorry your in sooo much pain and having to work also makes it 100x worse. Have you thought about claimeing ESA AND PIP. I personally if I was you lok into claimeing 1 or both of them. There are help lines you could ring for help advice and people that are out their to help with form filling. Alot of us have had to give up work because of fibro, some people have lost their jobs through it. and others that are working are struggling.Some have gone from full time to part time.We have to be careful what advice we put as things keep going to the moderator. Their is another benefit you may be able to claim if your on a low icome. I cant name it as I tried in adifferent reply it went to the moderator for some reason. his reasonings on things baffle me at times to be honest when your trying to help some one. . have a google look up your local advice people if you know what I mean. take care gentle hugs x
Hi Kaz,
Regarding moderation and for info - there is a known issue where text without spaces between sentences are treated as links in some cases so get sent for mod. In your case it was PIP.CAB was trapped (and appears as a link here) so I edit a space in. It is an increasing issue due to phone/tablet etc usage and there is a fix in for this but if any "innocent" posts go for mod this will probably be the reason.
If a post gets caught like this and you cannot wait for approval you can use the private message service to pass info on.
Regards,
Alan
Hello Alan thank you for taking the time to explain the reason for what I put going to you. kind regards karen
Thanks for theinfo i will have look its like you have to prove you r dying before they even think of letting you have anything herehugsx
Hi Hotpicks99 its so hard now a days trying to get any help support, especially where benefits are concerned. I applied twice for dla and got turned down. so when I tried for pip I wasnt hopeful. but much to my surprise I did get it. I would sooner be out working if I could, Ive never had any benefits support and help in my life up until now Take care gentle hugs
Hi I had my pain management appt having been referred last October. I was prescribed Pregablin which I have stopped because the side effects were intolerable. I have been put on the waiting list for acupuncture but it's at least 10months wait. Whatever your situation in life pain is never easy. The hardest thing is to keep going and not give into it. On days when I feel defeated I do my best to get by in the knowledge I will feel strong again
Wish i could look forward but im in pain all the time cos as well as fibro im suffering with oesteoporosis oesteoarthritis and carpal tunnel syndrome the only ones keeping me going r my immediate family
Hi Hotpicks how are you doing hun. I know its hard going what with fibro and your other health problems. I treat my self now and again it helps to lift my spirits. also I think of people that are worse than me like children fighting cancer adults fighting cancer and all the people that are suffering in this world. it soon pulls my socks up makes me sit up and think.. Each day is a battle for us but with each day we get through another battle has been won. you can off load to us on here we will do all we can to support you. chin up hun keep fighting battle on. treat yourself to something nice. be kind to yourself. take care big hug coming to you x