I have been diagnosed with PoTS for over a year now and my symptoms still aren’t 100% under control due to slow appointments and difficulty finding a doctor in my area with enough knowledge of the condition. This past three weeks I have been experiencing a severe increase in fatigue, I could probably sleep all day every day if I let myself. Not only this, but I’m experiencing a lot of joint pain when I get overly tired, which is affecting my mobility, I have to walk between 3-4 miles every day to get to and from university and I haven’t been able to attend due to the fatigue and pain.
Has anyone else with pots experienced this? What could be causing it? Do you have any suggestions on how I can help the symptoms?
Yeah most days I struggle to go down stairs or to the toilet never mind walking miles don’t no how you manage it
Yeah, it hasn’t been an issue since my diagnosis. A little fatigue and a few collapses but nothing that really affected my life, I was hoping I had a milder type of pots but this past few weeks have been a reality check, I’ve been the same with stairs and moving around, to the point I’ve been sleeping on the couch to avoid the stairs most days.
Yep I get it everyday heart gets so powerful and painful I have to lay still and get very disorientated
Dr Noah Erickson in Ohio can help. Innovative family wellness
He will Skype with you if you love too far away
Unfortunately I’m based in the UK, I think maybe that’s too far.