inflammation and hearing loss after tubes in ears surgery

Ears, nose and throat
1

For the past 2 months I've been diagnosed with bilateral ear infections, bilateral ear effusions, eustachian dysfunction and barotrauma. I had PETubes put in and lost my hearing before the tubes were inserted and now I hear even less plus I have terrible pain and inflammation and fatigue - the inflammation is not at the jaw but behind the ears and the jabbing pain is deep inside of my ears. I've had 2 ENTs look at me and neither can figure it out and one guessed at TMJ causing this now - I find it hard to believe that I am THIS fatigued with so little hearing and such pain on and in the ears from random TMJ nerves after all else that happened to me

2

Hi Satine, I'm just wondering if you are on any blood pressure tablets (or other pills)I have the same problem as you (nearly 4 years now) Since being on bp pills my ear plays me up almost every day of my life.  Like you I've seen specialists, waste of time, I really don't want tubes in my ear as I don't think it would help me and it's the drugs causing the problem, I know my ear will never be right again but it's the pain I hate most!! I do hope they find a solution for you.

3

I am not on any blood pressure pills. I am still at a loss for what to do, and now on top of it all  I officially can't collect unemployment unless I have a doctor's note releasing me from the previous one stating that I cannot work. Makes sense except I also can't file for short-term disability because I can't know this will be ongoing for 12+ months. Basically, I need a doctor to release me to work with conditions - and that means I don't have a hope to even collect anything or even work again until that's happened.

4

Hi Lesley can you describe in detail, your symptoms?

5

Hi Satine can you find an ENT who specialises in eustachian tube dysfunction in adults? I think it would be worth getting another opinion. Have you had a hearing test and tympanograms recorded? If so can you send them to me so I can have a look? It sounds like you have inflammation in your mastoid but I would have thought an ENT would have picked this up. What scans and tests have they performed and what was the outcome?