Hi Everyone (old & new!)
Sorry I havent been in touch. I really havent been feeling well especially with my Fibromyalgia and SLEEP! I am currently taking half a sleeping tablet every night.
Last night I didnt take one as I am extra sensitive to becoming addicted and thought I would do half a tablet every other night. What a disaster I must of only reached the REM (Dreaming) stage and spent the whole night there having a nightmare. My hubbie said I was throwing myself around the bed and shouting. He even said I was at the window looking out! :shock:
This has really freaked me out and yet again I am in a lot of pain this morning with poor body temperature. :oops:
Any words of advice?
Donna x
First of all I thought 'goody, the InsoMEia thread is back' and then I came in and read what an awful time Donna was having and I felt so sad. No one should have to put up with this, it is just not fair.
I absolutely HATE it when I don't sleep, it messes you up for the whole day and you feel awful.
Sorry, Donna, I have nothing useful to say and no helpful advice, but lots and lots of sympathy.
ME seems to reprogramme the sleep centre in your brain and it gets all garbled.
Sometimes I go to sleep fine and then after a few hours I wake for absolutely no sensible reason. After that I take ages to go back to sleep - if at all. I don't understand why I can fall asleep at 10 pm but not at 3 am? :roll:
Donna, I'm with you babe xxx
Hi there Donna
I'm really sorry that you are having such a rough time sleeping - it just destroys your day doesn't it and makes you feel short-tempered and grumpy 
I do wish I could come up with an idea to help you sleep :?
I'll have a think during the day
Meanwhile :hug:
Hi Donna,
So sorry to hear that you are having a rough time :cry:
How on earth do you manage to get up in the morning and go to work, especially full time :?:
I think you should continue with the sleeping tablets even though you are reluctant. :roll:
Sleep deprivation is awful :cry:
Thanks you lot! :D
I know no-one can wave a magic wand :cupid: but I really feel at times that people just dont understand. :?
I have laid down for nearly 2 hours today and my eyes are stinging :shock: but I just cant drop off. I have watched tv, read, had a bath you name I have done it but nothing is working. Once of a day Lavendar helped but no more!
I am going to go back to the 1 a night tablet - sod it! :cross:
I am due to return back to work next week and if I was to sum up my summer holidays I would say \"Everything has caught up with me\" :weird: I am VERY concerned at this moment in time about going back to work with so little sleep. :shock:
Anyway thanks again you lot! :hug:
Donna x
P.S I am sure you might be thinking that maybe I am trying too hard but it just simply isnt happening :cry:
No matter how little sleep i have had i still can't sleep during the day :cry: it's so frustrating. :roll:
Hi there again Donna
I know only too well hoiw wretched it is when you can't sleep ...... I was almost at the end of my tether :wah:
I think for the next few nights you must take a whole sleeping tablet - just to get you back on track. You mustn't keep worrying about getting addicted ..... to hell with that Donna ..... you are not going to get addicted full stop ..... but you may need to take them for a good while yet before you can even think about cutting back.
As I mentioned in an earlier posting (now extinct :roll: ) ... my GP maintained that some folk need the help of sleeping tablets to sleep full stop ....... and without them their quality was ziltch!
So please stop worrying about getting addicted cos that is causing you to be anxious too and it is fast becoming one horrible vicious circle :evil:
All of us nurses are advising the same thing ....... it's not going to hurt you for a good while yet ..... you just need to get some decent sleep and if that means you need a tablet ... so what!
Take care and night night and don't worry
Katie xx :sleepy:
Hi Donna nice to hear from you again, sorry you are having a bad time with your sleep, or lack of it. The :nurse: in me says keep taking 1 tablet for at least 2 weeks, you body needs to get into a routine of sleep. The alternative/ complementary therapist says try putting a few drops of camomile oil into your bath. You can build up a resistance to aromatherapy oils, just like you can with medication.
Good luck hope you get a good long deep :sleepy:
I saw an interview with Dame Eileen Atkins on This Morning a couple of weeks ago. she was saying she is a long term insomniac and never sleeps without medication. when she went into hospital they did not give it to her and she was climbing the walls.
Addicted or not she takes the medication, goes to sleep, wakes up and spends a productive day.
Morning everyone!
On your advice I have just rung my GP and requested a repeat prescription for a full 28 days (The other prescription was for only) and what the hell to it and I am going to take a full tablet for 2 whole weeks. I've had enough! The pain is gettin intolerable a times and I need to stop being stubborn and independant and go for it - just like our gold meadal winners at the Olympics :run:
Donna x
Good on you Donna, it can't be anywhere near as bad as what you are going through now. Good luck and sweet dreams. xx
Good to hear you so strong again Donna 
Go for it girl :P
If you get enough sleep then the pain may improve :wink:
Here's a hug :hug:
Well done Donna
Sleep is absolutely vital to recovering from this wretched illness, so even if it means resorting to a pill ...... so what!!
I'll take anything going just to feel a bit better :wink:
You are a busy working mum and sleep is your top priority :zzz:
Take care and sweet dreams
Hi
Again, I am late with this but....
I am convinced ME has its roots in a sleep disorder :zzz:
On holiday I took my sleeping tablets and felt great but having got over- tired at my sisters wedding I find they dont work as well. Why is that? I am so tired but cant sleep. I can feel every fibre pulsating and cant relax :cry:
It is as if I have gone too far to be helped by them some how :evil:
Any ideas
Dale xxx
Dale, my heartfelt sympathies. One thing that is needed is relaxation and a good thing for that is a holistic massage if you can get one.
It's horrid when you want to sleep and can't. I don't understand how I can fall asleep quite quickly, only to wake 2 or 3 hours later to lie awake for over an hour unable to get back again.
I wonder how Donna is doing, she hasn't been in for a few days. Perhaps she is asleep - I do hope so.
hello fellow insomniacs. sorry to hear of everyone's probs. My sleep isn't great at the moment either
i get really bad irritable leg syndrome and since ive not been able to exercise this has got even worse. then i wake up at weird times and cant get back to sleep. i wonder if anxiety has something to do with it too?
dale, i know the feeling of every nerve tingling, even when you're shattered. very frustrating. i can't think if i don't sleep properly and my master's dissertation is falling to pieces, aargh!! :evil:
Trees x
Trying to get to sleep when you are overtired is almost an impossibility, even if you don't have ME.
All I manage to do is toss and turn, and keep bashing my pillows back into a comfortable shape (which never works and is exhausting) and then the old bladder gets irritated and I have to keep popping to the loo and then lo and behold, the restless leg syndrome starts which is truly awful :weird: and of course the old brain is working overtime worrying about absolutely everything ........
At one point I was getting restless arms as well which was unbelievable - you just can't keep your limbs still :weird:
And then it's time to get up :wah: I'm just grateful I'm not having to up work, cos it's always worse when you know you've got an alarm clock waiting to go off :zzz: because you can bet your bottom dollar you will have been in a blissful sleep for at least half an hour when it does :roll:
We've all experienced it and I don't really know what the answer is :?
katie, i get restless leg in my arms too! :roll: and sometimes it feels like its in my whole body. it's so nasty. :evil:
isn't it odd when you start to realise that CFS sufferers share lots of the same problems? i spoke to a girl who had ME yesterday who mentioned IBS, which is also something I have. And I also remember getting tonsillitus again and again and again when I was a teenager, which again Im finding is really common amongst us.
there has GOT to be a cure out there somewhere - come on scientists!
Trees xx
Yes, it's like lots of little worms (or :spider: Teedie ) crawling under the skin ..... it has to be the worst thing ever. I do find that getting up and walking around does help slightly ... if you've got the energy, that is :roll:
Yes, the medics keeping on about being on the brink of a diagnostic blood test and then we hear no more :?
I get IBS too ...... BIG TIME ...... but we won't go into that cos everytime I have mentioned it in the past the thread rapidly becomes all rudey dudey :oops:
And then Alicia starts a DECORUM IN THE FORUM thread ...... which has about three sensible postings and then that also goes rapidly down the pan ....
It's so annoying you will probably never be able to read our old postings, Trees ...... they would really have cheered you up for starters :lol:
Take care
Katie xx
Yes, especially all the ME residential home ones with the pictures of Matron.
Can we start the Royal ME Home thread again please?
Katie, I thlought your magical magnetic thingy was helping you to sleep?