Invisible Illness Week Day 2 Picture Post

My pictures this week aren't particularly funny but it's a way I express my frustration.

Hi rose,thank you for the picture it did make me laugh and is very cute at sea time,how are you today?

Hi Lisa,

Glad I made someone laugh today.  I wish I could make make myself laugh.  All  I've done today is cry and I'll pay for that tomorrow.

  I feel lonely and depressed.  All my friends have moved, I saw the last one off today.  I've lost all my friends in less than one year.  People move to other cities for work and cheaper housing and one friend died.

They were a huge help to me in practical ways, like taking me out for drives to the park or beach, sometimes shopping when I felt up ito it.  They made me feel like I was still part of  humanity which I desperately need, as I'm housebound.  Now that's all gone.

No visitors anymore.

So I'm glad of this site that I can connect to likeminded people who have the same struggles and know that am not alone.

Thanks Lisa.

Rose

 

I feel for you,I'm lucky I have my family for support but I'm depressed and I have days where I just cry wishing I was well,I'm tearfull now as I managed to potter round to tidy up a bit and now I'm spinning around with dizziness and I'm so tired,I live in Worthing west Sussex but I guess miles away from you?

I live thousands of miles away in NZ.  I did live in England for some years, years ago, before I got sick., when I had a life.  And it was a great life.

I think all of us deal with grief at some level which causes depression.  We haven't just lost our health, we've lost our careers, social life, often family and friends, independence, often the chance of having children and sense of self worth and place in society. We've lost everything.

I describe it as being sent to prison for a crime you didn't commit except you don't know how long the sentence is.

You know, I used to read alot books about WW2 escapes from POW camps and how people survived terrible condtions, often the whole duration of WW2 and even longer. I used to think that if they can survive that, then so can I.

Those stories really inspire me, the strength of the human spirit under such hardship and suffering.  Unfortunately, I'm too exhausted to read much now.

But...tomorrow is another day.  The sun will shine, the birds will sing and who knows, the sun might shine on us too...just a little bit smile

 

That is far away from me,I know there are people far worse off than me but its like a living nightmare for me,I'm down and fed up,I have a 13 year old and 3 yr old and I manage to go to my mums with a lift everyday as my bf works I just lay on the sofa watching them play wanting to join in,it hurts I'm too tired and dizzy to join in,if it was just tiredness it wouldn't be that bad but been dizzy all the time scares the life out of me

It's funny, people have said to me things like, "there are people worse of than you, you know", if that somehow is supposed to make me feel better.  It never does.

  Because when you're sick, when you can hardly breathe, when  you can't feed yourself because you too exhausted, you have tunnel vision...you must focus on surviving the here and now... not thinking about children in Bangladesh!  So don't feel quilty.

I get faint more than dizzy and that's awful.  But I did feel dizzy the other day and  that scared me too so I know how you feel.  I don't know what causes that.

I really feel for you too with your children.  That's exhausting just being around them, they drain your energy.Then you can't  do all the normal things you want to do with them and for them.

 

HI Rose,

Thaks for the pic -  she's a cutie

Sorry you're feeling so down...hope today is a little better??  Do yo have any support groups in your area?   Know they are hard to set up and run 'cos  a lot of peolke are house bound if not bed bound....

Struggling to distinguish what is chronic and what is acute with me a the mo. as recovering from a bout of sinusitis that seems to have woken up all sorts of other symptoms again.   Work part time and dont want to go back too soon and then have to take more time off!   I so value my job...

Good wishes to you and have seen/heard that NZ is a beautiful country.

Someone just sent me this.  It's was perfect timing.  I really needed this today.  Hope this cheers you up.

My favourite is when people say you don't look ill and your walking around so you must be better,I have to go wash,Lou and do few things etc,I have to get my mum to help me or 13 yr old daughter to help its so frustrating I can't be helping them out like I should be. I feel sorry for people who are worse off but when your ill yourself you feel its the worst thing ever ,I had balance issues when I gave birth to my first born when I was 19 ,in hospital for 3 days and was treated with antibiotics and after two weeks was OK part from lightheadedness that never went but I still had a normal life until last Monday when I was bed bound,but dizziness and tiredness issues for 5months now

Lol yes I'm laughing and smiling, thank you. :-) I love animals so the funny pictures always make me laugh

Hi jcnps,

Glad you like the pic.

  I'm housebound so it's difficult getting to a support group but Im going to have to try somehow because I'm really need them now.

It's funny, but I was completely bedbound for three years and I wasn't depressed.  Then a made an incredible improvement and thought I was well on the way to recovery.

I had several relapses and although I'm not completely bedbound, I'm not as bad as I was before, but it's  having a huge effect on my state of mind.

I know what you mean about chronic or acute.  The body is a minefield and so intricate.

Thank you for your well wishers and comments.

 

Thanks Lisa for maing me lauh - one of my favourite sayings -' you dont look ill'

Mind yo we rarely look ill in our family - even days before my Mum died she was still looking 'well'    how deceptive looks can be!!!

Thank you -

Im only 32 so I try my hardest to wear make up everyday,straighten hair etc just so I don't look ill ,obviously works lol.under my make up my mum says I look quite grey in the face which is worrying, just done my leg stretches as I don't want to gain weight as might add to my health issues how are you today?

Hi Rose,

Can appreciate what you said about the effect on your state of mind...its the continous drip of the effects of the symptoms...sometimes it lays me very low. I feel like I just run out of energy to keep my spirits up; it seems to happen without me noticing until suddenly I hit the deck...everything in life seems flat and pointless and I'm just going through the motions

I then have to make myself stop....take stock and slowly start building up again.  I think I lose myself so easily and stop really taking  care of myself

I nearly forgot what I wanted to say to you which is htat there is a magazine on loine called Fibromyalia that has some very good aritcles in it - covers cfs/me as well - would recomend and you dont have to go far to get it!!

Hi jcnps,

Thanks for the info on the magazine.  Will look that up.

I know what it's like to stop caring for yourself beccause that requires energy.

Hi Lisa

Caugh between whats chronic and whats acute about this body at the moment!!      Certainly cute!

Do you realise how good you are - you put on makeup to make yourself look better - people say you dont look ill.......you're worked your magic!  But it doesnt necessarily help although if yuo had lots of peo9pole saying you looked ill you might feel even worse!

Stretches are good - will help to keep you supple - my body soo easily stiffens up when I stop excercising - even if I only do a little

How do you manage to shop and cook,do you have help?

Iam trying to stay strong for my family but inside I'm a mess I just want the dizziness to go away its ruining my life,I work at a care home and love my job and money but at the moment I can't work and scares me as I've always been independent,the tiredness is a little bonus for me lol. Where are you from?I'm in Worthing west Sussex uk