Is constant tingling in hands & feet a symptom of Raynauds?

I've had constant tingling and pins and needles in my hands and feet for several months, maybe as long as 6 months.  At first my GP thought it was caused by a vitamin B12 deficiency, but the blood test showed it isn't this.

As the weather turned colder I noticed that, when I get cold, my fingers turn white with blue tinges and are very painful.  When I warm them up again they go red and blotchy and the tingling increases.  

My GP has now said that I have Raynauds and this is what is causing the constant tingling.  I agree that my recent symptoms when cold sound like Raynauds, but I'm not sure about the tingling in my hands and feet that started long before the pain and whiteness.

Does anyone else have constant tingling or is it just when your hands are warming up again? 

I have raynauds but don't have the tingling that you describe, just colour changes and the dreaded chilblains.

No I don't, just the changing colour and the numbness followed by pain as the circulation comes back to normal.Good luck with this.

I was diagnoised 6 years ago.  Dr runned tests for Rheumatoid arthritis aND Lupus and they all ame back negative. I don't suffer from any tingling or pain. I just loose any kind of circulation to most of my fingers at the minimun expose to the cold.

Same here. I have been admitted to hospital four times for a flolan infusion, but gives you dreadful headaches

 

Hmmm, I will wait and see if more people reply, but the constant tingling looks like it is probably caused by something else then.

thank you for replying smile

Yes kirsty I would mention it to your GP. You may need further tests. Better to be safe than sorry however everyone is different and respond to illness and syndromes differently so wouldn't worry.

Hi Kirsty, Have you found out whether this is due to raynauds? i also have tingling in feet, which is worse at night and in the morning. Also, worse after a bath.

A different GP felt it warranted further investigation.  He thinks it is "probably fibromyalgia" but has referred me to neurology to rule out MS.  The neurology waiting list is about 8 months long but I should get seen some time this year!

Thanks for your reply Kirsty. I kept telling my GP that I thought it was something else as well as Raynuads. I thought it could be something called Peripheral neuropathy so he evenually sent me to have nerve conduction tests. I was convinced they would show something as tingling all the time but they didn't show anything. The neurologist doing the tests did say that my toes and feet were freezing and didn't look good-no colour. He said he thinks that it is a circulatory problem and will write to GP to refer me to a rhemotologist. I told him my GP said it's Raynauds and he said it could be or it could be another circulation condition. Anyway, my GP didn't refer me, despite me seeing the letter on the screen advising him to do so. He said that it is Raynauds and they wouldn't do anything apart from offer me Nifedipine as he has done. I wouldn't take it though as already have low blood pressure and have 2 young children to look after. Oh, also at the beginning, the GP said Fibromyalgia but when I saw another GP he prodded lots of different points of my body (none of them hurt) so he said deinitely not as no tender points. I have now been referred to ME/CFS clinic. Please let me know how you get on. I've kind of got used to this tingling but I know it's not right. 

Hi Kirsty and all: I don't have "constant" tingling, but at least 50-60% of the time and a good GP that retired had previously diagnosed me with Raynauds. Since that time, a year ago Nov., I started getting light headed, dizzy, burning/tingling in feet and hands, loss of appetite, blurry vision (on and off), weight loss, muscle spasms and weakness and "major" fatigue along with misc. other symptoms. I'm not over-weight and not diabetic. I started searching the internet, which was my worst mistake. Thought for sure I was developing MS or even worse, ALS. One doc told me I had a noro-virus. I sought another doc's opinion. And ultimately a 3rd. The 3rd doc suspected anxiety and ran a battery of tests including MRI with and without contrast, I think maybe more to passify me, since all of these symptoms were snow balling my anxiety and depression. MRI came out normal. Noting to indicate serious neurologic issues. He's since prescribed Zoloft, which has stopped the anxiety attacks. However, I still exhibit symptoms. That's just living with anxiety. If you look up anxiety symptoms, you will be amazed how it can mimic dozens of serious neuro diseases. My brain still sometimes thinks the worst. But that's part of the anxiety too. My point with all of this is, you may be dealing with anxiety also. Although if you search the Web, you will see that burning & tingling can happen with Raynauds also. I can't take fish oil, as I have high cholesterol. But Omega 3's like fish oil and flaxseed oil will help with the tingling. Oh and I actually do have Raynauds also.  My fingers and toes look like they're dead when they get cold. Again, fish oil and Co-Q10 liquid form. Red wine is good too )) Don't worry.  It only stirs up anxiety. You'd know it if you had MS. Many more obvious symptoms with that. Like Hulk Hogan used to say; Say your prayers, eat your vitamins, exercise and hang tough!

Has anyone had a lump in the throat feeling? It won't go away after this all started- just went to the rheumologist Thursday lots of blood work- it's just gotten colder here & if I stand too long on the tile it stings- I've been taking fish oil, using essential oils in bath, started making bone broth, nettle tea, organic detox tea, I was prescribed so many antibiotics after I had my root canal, the dr said I'm going to check you immunnity- since I've had tons mucus- sinus issues- jaw pain seeing to get a mouth guard for TMJ after this root canal and filling replaced- I swear the dentists think I'm crazy! I'm begging them to just file my tooth down to fit right!! It clicks! But could it be inflamed? Since my bloodwork shows inflammation? So we'll see!

Does yours sting only during cold weather? I'm having eye twitches- I have had 3 panic attacks in the last 2 months- that diet pill was dangerous! That's when this all started 2 months wasn't worth how I feel- if this is the cause? Or an underlining condition that just surfaced now?

I get pins and needles in both hands and feet. I thought it was bad circulation but the docs tell me my pulses in both arms and legs are strong. I have secondary Reynauds so the symptoms may differ from primary (please correct me if I'm wrong as I'm newly diagnosed) it's a horrible condition.

My partner has MS and it's amazing how many of our symptoms (I have JHS) are similar (minus the Reynauds) the fatigue is one of the hardest things to live with.

I finally saw the neurologist, he referred me for nerve conduction tests (large fibre were normal I haven't had the small fibre tests yet) and an MRI.  I haven't had the MRI results yet but I'm pretty sure I don't have MS, my GP said it needed ruling out, not that he thought I had it.

I now the raynauds diagnosis is accurate but I also know it doesn't account for all,of my symptoms, there is something else going on as well.

I'm glad you have found the source of your symptoms.  

It definitely sounds like you have more than just raynauds Lisa.  I hope you find out what it is soon.

Did you ever get the referral flower girl? I had the nerves conduction tests done as well and they were normal.  It's so annoying when GPs think they know better than the consultants.  My eye Dr requested an MRI in 2014 but the GP decided I didn't need it.  

Hi Lisa, as I'd mentioned to Kirsty in my previous reply, it sounds to me that your symptoms are likely stemming from anxiety as well. This site doesn't allow links to be posted. But if you search the web for "anxiety symptoms" or "Generalized Anxiety Disorder" symptoms, you will see how they can manifest themselves into dozens of symptoms, which can mimic serious diseases and disorders. The good news is, the symptoms and anxiety can be controlled. The first step is to recognize that's all it is. Then get some help from a "good" General Doc and a good therapist who deals with anxiety disorders.

Hi again Kirsty, please don't rule out anxiety as a potential cause.  My doc said some of his most chronic and sick patients are anxiety sufferers. I have Raynauds, but I also have anxiety. Through some of the techniques my therapist taught me, with focus, I can actully bring all of them down.  Especially when my brain allows me to realize it's "just anxiety".  There are millions of sufferers, many of which have "real symptoms". The bummer is, they are all created in our minds. But this can be controlled and fixed also.  I can absolutely testify, that when I am dwelling on how bad I feel, it all gets way worse, including the tingling and burning feet and hands. They all subside when I get myself grounded again.  It's a work in progress.  If you haven't discussed the possibility of anxiety with your doctor, I would suggest you do so. Best of luck to you!!