So I'm a female in my early 20s and I think I've got endometriosis or something anyway. The pain I get on my period is so severe I almost faint, vomit repeatedly, physically cannot walk - I literally crawl to the bathroom or sometimes can manage to get there bent double, urination is excruciating, get an intense sharp pain in a localised area in my lower right abdomen (I genuinely cannot imagine pain worse than this), I go extremely pale, shake a lot and sweat. Similar symptoms on ovulation just less extreme. ( although I don't get pain in my legs). I've been on the pill for a few years which has mostly cleared they symptoms.
However I experience almost daily nausea, sometimes vomiting and loss of appetite. Been the case for 2 years. To rule out the cause for this, I've had to do a process of elimination. We've currently ruled out all common causes of this and so I've now got to try going off the pill for a month or two to see if this nausea is a side effect. HOWEVER, I'm extremely nervous about this. Last year, I didn't take the pill for a month, I had forgotten just how severe the pain was and I was groaning in agony for hours. I genuinely thought I had an appendicitis. The pain was so bad I ended up going to hospital on IV painkillers (I cannot keep other drugs down because of the vomiting) which did relieve me. If the pain this time gets so bad, is going to A and E an option or is that a waste of time?
(I haven't been diagnosed with endometriosis though and have felt like I've been fobbed off and seen as exaggerating the pain by the doctors despite mentioning this to them for around 5 years. All I've had is 2 ultrasounds which didn't show cysts and this is as far as investigation has gone.)
I went to 2 doctors who told me bcuz I was not pregnant it was all in my head and I was a hypocondtiact. Then I went to a third doctor he did a procedure called a laparoscopy and they found endometrosis. I have tried different things and its ben years for me too and it still hurts and being on birth control didn't help and I felt worse after going off of it. It really sucks and for me chocolate seems to help. Also having people going thru same thing as support helps.
Endometriosis won't show on scans. I too went years in pain before getting a lovely GP who referred me and a specialist consultant who performed a laparoscopy which diagnosed severe endo. I'd go back to GP and say you don't want to be ending up in A and E taking their resources and you'd like to be referred properly. Good luck
I don't really want a diagnosis at A and E, I just mean in terms of pain relief because nothing I've been prescribed before has helped and I just don't know how I will cope with going through that level of pain again.
It's wrong that you are not being listened to but if pain that bad and they won't give you anything then it may be your only option for now but keep persuing to get referred and checked out further. It's wrong but make yourself a nuisance to gp so they do something even if it's to stop you bothering them, it make get you somewhere??
Hi, I have the exact same problem, where I am being sick, severe pain in my upper legs, lower back and stomach, my pain lasts up to anything between 3-5 days at a time and that is not being able to move, if I make it to the bathroom by crawling I then don't move from there for hours, I can't eat or drink anything for at least 2 days. Im now 22 so have suffered with it for just over 10 years and I've been going to doctors since I was about 13 and all the doctors I saw just said that it wouldn't get batter until I have had a baby, I then changed doctors at about 19 and had been put on every medication that I can think of and nothing had worked, Went back at forth to have blood tests but then got diagnosed with something called dysmenorrhoea (where the whomb contracts, so basically they discribribed it as like being in labour) about a year ago and got sent for scans and they did not find anything, but I do not believe this is normal. I went back and they have told me there is nothing they can do and I'll just have to put up with it but I am not happy with that answer and don't think coming from a doctor it is good enough. So every month I'm missing at least 3 days off work and very close to loosing my job over it. So I feel the same as you where I do not know what to do about going to hospital or not-sometimes I hope they will give me something as strong as morphine so the pain just stops!