Hi Kyri ~
As far as the hair being effected, yes! I lost a lot of hair on Methotrexate and Plaquenil. I did lose all my eyebrows...not cute when a dark-haird person shows up w/o eyebrows...and penciling them on would only draw more attention. If she's losing a lot of hair, check with her doctor and make sure that's a side effect also, it could be from stress ...stress can do so many things to our bodies.
Again, I'm saying prayers for her and also you!
warmly
frustrated
i can't say that it's obvious she's lost hair, but the condition has changed which has gone dryer and the ends of her hair looks much finer...Does it eventually get back to normal?
That's how mine was at the beginning...it lost its shine and did get dryer...and that's part of the sjogren's disease. !!
Anyway, try to wrap her hair in Mayonnaise aka Mayo and the true Mayo not Miracle Whip...and make sure it isn't fat free etc...it has to be the real deal...cover her head in the mayo and wrap it in plastic wrap until it's all covered....leave it on for at least three hours and when she washes it, it will really smooth & feel shiny. Aftwards. wash hair and then put in a good conditioner, let sit while she washes her body. Rinse in as cold water as she can...You can do that as often as twice a month but the conditioner can be done daily...remember the cool water..or as cold as you can stand it. It may get worse before it gets better just be patient.
I just came back from the Dermatologist and found out that my sarcoidosis and sjogrens has spread to my skin (the largest organ of the human body)...it stinks. Not literally, just stinks that it's spreading. I'm going to put off seeing the Pulmanologist and Rheumatologist...I just don't want to hear bad news...might be a mistake...what do you think?
i really don't know what to say..You've been through so much from what you've been telling me..What level of Sjogren's are you? Primary or secondary?
Jeez...you think I'd learn by now to save, save save before I get up and do something...I was writing you what felt like a book and when I came back.....dernnit it was gone 
Seriously, I wrote for over 45 mins.! Well,I'm pretty tired right now but I will try to duplicate what i wrote later today...by the way, does it bother you when I post long messages? Please be honest because I don't want anyone to think to self "ugh, there she is again" lol I "could" try to shorten them if that's the case.
I will end in saying that I am secondary sjogrens and level 4 in sarcoidosis...it sucks but what can I do about it...Nodda! well, will write later...hope your daughter is feeling ok...and how is Mom holding up under this stress...it's bad enough when the adult is going through something horrific...but if I had to watch my daughters go through it...it would literally break my heart...so, how are you doing?
Talk soon
frustrated
no i don't have a problem with how much you write...mum is ok, worried like any other parent but very supportive. We're all looking forward to going on holiday to have a rest tomorrow..Hope you're ok and we'll chat in a couple of weeks when i return...Take Care
Have a nice, restful time 
My mum, now 83 has secondary, diagnosed 10 years ago, suffers mainly with dry eyes and the dry mouth and just about lives on liquid foods. She has lots of other symptoms too. I am 48 and diagnosed with primary in 2011, and secondary with RA and other symptoms in September 2014.