I am 47 yrs female and really suffering at moment had eye plugs fitted as my eyes stream all day hasn't helped which is disappointing I have trouble swallowing food unless I take a drink with each mouthfull I have lost 5 teeth in one month and have to shut my eyes when drying hair or opening oven door !!! I work full time I have discoid lupus on top of this I am just so tired all the time I have terrible hip pain which did not show anything wrong with an MRI !!! I can't believe all this i can't even drive to work without being in pain and tissues for my running eyes I just wondered if this continues how much longer I can work I just wondered if anyone else is so run down with sjorgens and considering their ability to work ?
Hi I have been off work since end of jan , I have applied for pip I could not work I couldn't walk across a small room with getting out of breath , I have had ct ,echocardiogram , chest ex ray ,lung function test , bloods , asthma test
every thing come back ok , I do have ,raynaulds , fibro , cronic fatigue , and sjorgens ,
I had lupus anti bodies in my bloods last august , but rummie is insistent I don't have lupus , my rumie and GP have both told me I am not fit for work ,I don't sleep all the time know but I did for the first month , I get pain everywhere sometimes just in hips though .i know I haven't got the energy to work , my hands don't always work very well I am waiting on lip biopsy and eye specialt my don't stream they are just bone dry had shimmer test done and the paper had no moisture at all been told I have connective tissue diesease ,social service have become involved with me as I live alone my children all live away and my youngest at uni ,and going to japan for a year in august . A friend saw how I was struggling and made some phone calls . I have a lady who call know weekly to see if I need a hand with things like changeling my bed etc . I kept going literally till I dropped I can't do that again , I have rent to pay but they can't put me on the street and I have been told not to worry and for the first time in my life I am listening ,things can be replaced in time if your not well enough to work listens to your body and put yourself first .i hope I have helped ,
Ps have you looked at health unloced site it is linked to lupus uk there is a lot of help on that site .
Hope you have a lovely time in japan not long till u go thank you for post as I recognise a lot of your symptoms just wish doctors could I am still working but have applied for pip which I doubt I will get but if I don't try I will never know !!! As I work in a school I have the summer break coming soon I can't wait to get a rest ,hope this finds u well x
Hey Jill, my name is Donna. Chronic Fatigue is a symptom of Sjogrens unfortunately. I live in TN (USA) and it is on the list of disabilities but still takes forever!