Been dealing with symptoms daily for 2 years. Every single test negative (I have had them all except for a capsule endoscopy.)
On a daily I deal with diarrhea (sometimes can go up to 15 times a day just liquid), stomach cramps/pain, lots and lots of flatulence, sour egg (Sulphur burps), excessive gurgling and swooshing noises under my left ribcage. Some days I get extreme nausea too.
Ive tried the FODMAP & SCD diet. There seems to be no pattern with food.
I take alot of imodium/lomotil on a daily basis with anti spasmodics. Probiotics tend to make things much worse.
Ive been trying Grapefruit Seed Extract, Vitamin D3 & Calcium Supplements with little to no results.
Any help or guidance from someone with similar symptoms would be a real blessing at this point!
God Bless
Have you had gall bladder checked over also tested for coeliac disease?
15 times a day is a lot even with IBS can your doctor not give you some meds to control this?
I've suffered much the same as you for over ten years and have long since stopped all the tests that my GP kept sending me for.Now I have the strength to tell myself "if I'm still here and breathing after 10 years of these problems then it's not going to kill me!!"
Buscopan helps my cramps
Just remember it's talking to other suferers that can help as you don't feel so isolated then
God Bless
Carol,
I had my gallbladder removed in 2012 (I have tried the cholestyromy therapy with no success) and yes had biopsies and blood tests dont for celiac.
Alan,
Imodium & Lomotil can slow them down but on bad days it is like I am not even taking them. During a "flare up" I have taken 8 imodium (2 initially and 1 after every watery bowel movement) as well as several Lomotil (which is a narcotic that is stronger then Imodium for diarrhea but cannot be taken all the time) and STILL had a liquid bowel movement after all that. I take Bentylol for the cramps, doesn't do much but make me tired.
What sort of joke do your doctors or health professionals think your health is. There is seriously something a miss, all your symptoms fit a difficulty of some description. Have you been tested by anyone for coeliac disease? The symptoms stink of it! I wish you luck and I hope you get an answer that helps you. I have had difficulties for 10+ years, they now through a test have discovered I have got something else other than IBS or diverticulosis. I don't know what they're playing at yet but will find out at a meeting in 2 weeks.
Hi Sam,
Its very frustrating. And yes I have been biopsied internally and blood test for Celiac on two seperate occasions. Both times it came back negative.
Huh? You must have reallly had enough! I hope you get an answer soon. I know how you feel partly I was told I had IVF, then diverticulosis and now something else. What on earth are doctors playing at?