Hi all, I hope everyone is having a fairly good day.
I have cfs and fibromyalgia and I know it's common that these go hand in hand with each other.
\i have been in a major flare up for nearly 4 months now and feel at my wit's end. Tha pain is so bad I'm taking more painkillers than I should and the exhaustion is beyound word's.
I have had to get a cleaner in as I just can't seem to do anything, and believe me I can ill afford it.
Does anyone else have flare up's that get worse? I'm nerver paim or fatigue free but this is something unbearable.
Gentle hugs x
Hi Caroline, sorry you're struggling at the moment 😒. It sounds like a relapse. Your body is asking you to rest and it sounds like that's what you are doing. My doc sent me on a course called health minds. I don't know if they do this course where you live. It dealt with every aspect of chronic illness. It was hard to make the effort to attend but it has really benefitted me. Best thing was breathing and relaxation exercises. You can probably find these on Internet.
best wishes.
Sorr, course was called "healthy Minds"
Hi there I'm so sorry you feel so rough , I've only been diagnosed with fibromyalgia but I suffer so many of C,f,s, symptoms also , I've not got the strength to go through all the Drs appointments to be told I have c,f,s , I know in my heart I have it too , I can only tell you to take each day as it comes , rest a lot & don't go too mad when you have a little strength use it for something special , this is for the long haul , keep doing things that make you happy with me its baking ( I've friends that sew , knit e etc ) with these type of hobbies you can rest in between , I love to give cake to family it makes me feel as if I'm still of use & they taste pretty good if I say so myself
I'm sorry if you were expecting a magic pill to cure these horrible illnesses I've yet to find one but what I can say is you will have good days & you will learn how to make the best of these days !! I wish you all the very best
take care xxxx
Remember, it is just a flare. It will improve.
Hi dawn....Thank you for your caring reply it's nice to know that others understand and get where I'm coming from. I've been so long in this flare that I feel it will never end......although I know it will. I'm so sorry to hear you also have the awful disabilities and I wish you well and hope you have more good days than bad. Gentle hugs xx