I have it in a number of levels.... feeling a bit low as not knowing what to expect or do about it as my doctors dont tell me anything. Im 46 and really worried and feel alone.
Hi Susie,
I wish I could respond, but I am also a newbie here and recently diagnosed so just sharing a word of sympathy and assuring you that the knowledgeable folk in this group will certainly give you no nonsense, strait forward opinions, as that is what I received. Give it a day or so and the group, I am sure will respond, probably with further questions initially but with some comon sense answers thereafter.
All the best,
Phil
Hello Susie.. This forum is brilliant for people with similar problems, Everyone is really supportive. Did you have an MRI scan? Is that how you were diagnosed? You may be offered epidurals which can often help to ease the pain. Have you seen a specialist as yet? What are your symptoms? You are not alone!!
Thankyou for your replie :-)
Join the club Susie,it does get you down and it's painful with it.I always think there is some one a lot worse than myself,I just know how you mean with doctors,some are really good but a lot could be a bit (a lot) more sympathetic.
Myself,I just keep taking the painkillers,as few as possible otherwise that leads to another problem.
Be assured you are not on your own,if that is any comfort.
Had CS for a long time and managed to live with it but the last year it's been very painful had a X-ray and it showed severe CS. Get no joy from my doctor he says you have to live with it you can't get a new neck. Some days it's so bad and I have to take the strong painkillers. I have Amitripline at night it helps you sleep but dosnt do much for the pain. There is a very good website for CS on face book as well. They are wonderful on there everyone is very supportive. You can get lots of info about CS on there. Don't feel alone there are lots of people with this condition. If you want info there is always someone on here who will help you good luck from Pauline xx
I had a spinal MRI scan and it shows i have it at levels C5/6 and C6-C7 causing narrowing of the neural on both.... my symptoms were pain in my neck and on lifting my arms up, burning feeling in back shoulder blades and stiffness. im also getting sharp pains in my neck/throat too.
Hi Susie
i normally just read other people's post on here rather than write my own but I thought I would reply as I also have spondylitis in C5/6 and C6/7 and C7/8 and have the same symptoms as you.
I am now 42 but was diagnosed when I was 35. I'm sure that your doctors and consultants will offer a wide range of treatments and hopefully some will work for you. The one thing this site does is make you realise that everybody's experience is different. Some get periods of no or little pain while others have constant pain.
After 7 yrs of seeing doctors I do t think there
Sorry got cut off. There aren't any straight answers everybody's experience is different.
i do understand about feeling alone. I had to give up work because of the spondylitis 6yrs ago and still feel very isolated. The only people I talk to are my daughter who is 22, my husband and my dad. Things were made worse when my mum died of cancer last year.
try and stay positive and take some of the good advice given by members of this site who have more experience and knowledge than me.
hope this helps.
juliet xx
Thankyou juliet :-} yes that helps alot and im sorry about your loss of your mother. I dont have much support family wise as my son is 17 and living the teen life bless him. xxx
Hi
yrs, I understand teenagers. There are always people on this site who will talk to you. I would be happy to.
Hi Suzie. I am also a sufferer of cs, and have been since I was 30yrs old. I am now 61 and mine has steadily progressed. I am due to have a CT scan tomorrow as I have bone spurs that need removing. I have not been able to work since the age of 42 as it has now become really bad. I also have it in my lumber spine as well, and it is really painful. I am taking a concoction of medication at the moment, 32 tablets a day, and I am still suffering. I have never been offered the injection though, why, I dont know. Keep on posting on hereand you will get plenty of advice. You take care and good luck
Hi susie
You will not be alone as long there are sites like this to offer other suffers help and guidance or maybe just to be there when you want a bit of a rant. I have sufferd for 50yrs (60 now) and I have learned to live with it it has not been easy I wont lie to you it has been hard some days are worse than others but when you know there will be no change but it will get worse in some cases you do and can survive. As for your son I have been there and done that three times give him time and he will come good for you lol. Next time you got to the drs make a note of what you want to ask him believe me it works,and dont be fobbed off!!. I found if you are going to do anything take your pain killers before you do it it helps to keep the pain down. Try heat, see about accupuncture as well also physio. your posture changes because we stoop when we are in pain it is a natural thing to do dont as it makes it worse.Try a pain clinic if there is a one near you and your gp can refer you as you will see a pain consultant there. If you just want some one to talk to I am here if needed. So take care hun and hope to read your next post soon
Hi there
i have cervical spondylosis from c3 /c7 and stenosis with myelopathy and was diagnosed last yr after 14 yrs of thinking it was muscular ended up in a and e and was finally diagnosed after x ray what I would advice is push and push to see a specialist get their name and get a cancelation I would be still waiting now if I didn't push the issue ... And don't think your alone share your thoughts and issues with people who understand and never forget there is always a light at the end of every dark tunnel
Hi i am also a CS patient. Dont feel low because, this is not cancer. but yes painful. If you know how to get rid of the pain then LG (life's good). Here are couple of steps that i followed, actually somehow i invented these steps and they do work.
I am also a CS patient. I have found following things relieving
a. In case of acute pain in the cervical region, I take a hot water bath. stand beneath the hot water shower with back facing the shower. the water should be slightly hotter than normal comfort level. This is the best for sudden relief.
b. Lie down on the bed facing towards ceiling with your head, neck and further 6 inches of back hanging down from the bed. close your eyes and take deep breath, hold for 5 seconds and relieve. do this for atleast 3-4 times.
c. lie on the bed and turn your head and try to look in the diagonal direction, which means consider your self sleeping north (head) to south (feet) , normally we exercise by turning the head east to west. Rather try to see an object kept at north-east and north-west.
d. Pranayam - You can search for anulom-vilom on you tube. If you are able to do this for two weeks in the morning for 15 minutes daily, the change is dramatic. there are other yoga excercises but this is best to begin with.
e. Sit on a chair with back straight and head straight. Simultaneously turn your head vertically up and take deep breath. When your head is facing the ceiling, hold the breath for 5 seconds and then turn your head down back to the original position with exhaling air. remember not to turn your head down. (We are people with Cervical spondolysis, we never bow down  
f. Massage the are right below the ears, i.e the side part of the neck with a pain relief ointment. also behind the ears.
g. Massage the shoulders with a menthol based pain relief ointment.
These are my experiences, i hope they are useful for all who suffer from this painful condition.
Hi there, I've just been diagnosed with Cervical Spondylosis - got this sharp pain in my right arm that went straight down to my fingertips, i could not lift my arm up at all. My Doctor send me for xrays on my neck and the result is CS. There is a grade 1 degenerative anterolisthesis of C4 on C5, and a slight
retrolisthesis of C5 on C6. There is reversal of the cervical lordosis. There is moderate stenosis of the right C6 exit foramen, and mild narrowing of multiple other foramina bilaterally - not quite sure what this mean exactly.
hi susie welcome to the site, i was diagnosed four years ago, but only now been told that the pain ive been experiencing in numerous places is due to the cs, my dr is hopeless as well, it is easy to feel down and alone but remember you arent we are all the same on here, and im sure we will all support you and encourage you every step of the way, i have found this site very helpful, ive even bought a book lol, i have learnt a lot about cs the last few weeks so if you have any questions please feel free to ask me ok, you are among friends here as im sure everyone will agree. but for now try not to worry, it does get painful during flare ups and you will get bad days but you will also get good days, and lots of them, you havnt sai where you are getting the pain at the moment, but if its youre back legs or anywhere really i find a warm bath helps a great deal, if you can manage it, and a slow short walk helps to, try not to sit down to much if you can, i find that makes it worse, i hope ive been of some help, and im on here everyday ok, if you want to chat take care and keep youre chin up you CAN do it ok, look after yourself hun, love tracey x
many thanks you have been a great help especially with the warm water that does help a great deal, i dont know if this is helpful to you but have you tried a tens machine i find it helps with headaches and neck paIin, keep up the good work love tracey x
hi juliet, sorry to hear of the loss of your mum, its hard isnt it, my dad too died of cancer last year, its a terrible illness, but please dont feel like you are alone ever, none of us might know each other personally but we all have something in common, so if you ever want to vent please feel free to pm me, maybe i could even give you my number or email , that if its allowed, all the best love tracey x
Hi Tracey
thanks for your reply. It has been a tough year. I find it hard to make my family understand how I feel as it is hard to describe the constant pain. I have often wondered if it is ok to give out email addresses, maybe someone could let me know as I would like to have someone to contact and talk to.