I've been back on this Doxycycline 2 days after having 8 days off the Meds and I'm getting worse each day, I felt horrendous last time I was on it, felt the same off it, and now I feel even worse now I'm back on, so all in all I'm on my 5th week and haven't noticed a single bit of improvement, I started the Meds 10 days after noticing two rashes that spread, really at my wits end here, feel like I'm gunna drop dead, is it normal to feel this bad ?
They say the worse you feel means that the spirochete are dying off
which is to be a good thing.... even though it don't feel like it...
i am in same boat. Just started a week. Ago. Again on doxy
hope u feel better
How long have you been going through this, I felt terrible off the Meds as well as on, but right now I feel like I'm on my last legs, currently in the A&E Liverpool trying to get a 2nd opinion or some help
yes!
I've never had Doxy but yes Lyme is is bad and you feel terrible.
Some people feel terrible on doxycycline. Others less so.
But hang in there and things get easier. It doesn't happen overnight though.
Go back to Dr. Tell him how things are.
Get him to check your BP and pulse etc
maybe get to see a deratologist and have him do a skin scrape.
Tell the Dr what the worst thing is(it is itching/sickness/brain fog/pain or? and see if he can help with that.Are you having .lemons? and low carb diet?
Bath with epsom salts/ salt/ and a few drops of essential oils in the water(tea tree/ frankinsense/clove..
Try Dermol 200 or 500 in bath or shower.
No you'll not drop dead though sometimes you wish you could.
It will pass.
.
We get through it and come out the other side stronger though at the time it seems we;ll never be well again.
You will be.
get enough sleep. if you can't sleep ask the Dr for something to help you.
Hi Dave sorry to hear you're not feeling great after restarting doxy.
Firstly, if you're in anyway worried about how you feel on the doxy I would speak to your GP tomorrow. Secondly it could be that you're herxing eg the spirochetes are dying off which can cause you to feel unwell. If this is the case after discussing with your gp, Id try to detox as much as you can to get rid of the toxins caused by die off eg drink warm water and lemon, drink plenty of water, take epsom salt baths. There's other detox protocols out there but this is just a basic guide. Hope you get sorted soon.
Cheers Marie, i haven't felt great for weeks as you can probably imagine but I went the gym earlier done some weights, went for a run on the treadmill then 1hr with intervals in the Sauna, it was on the way home I felt like I was going to Faint, I feel that fatigued I could just lie on the floor here at the hospital, also feel a bit Nauseous and a strange pressure feeling behind my ears but no pain, just horrible fatigue and spaced out feeling, I've drank more lemon water than you could imagine 😕
I've only just seen the Doc on Monday when he gave another month Doxy, he'll be sick of the site of me, I'm at the A&E now waiting to be seen, hopefully by someone who may know a bit about these feelings I'm having, I've been using Epsom salts and drinking more than enough water with fresh lemon juice in, I've felt like this going on a month now, fed up and worried.
That all sounds very familiar dave,
i've had all of those including the ear thing. My lobes also swelled up and were red! . felt if I didn't sit down I'd pass out and all without Doxy.
As sarah says it's most likely die off.
To do all that exercise you're definitely not on last legs!
And if you are in hospital you are in safe place.
Dave,
Are both you and Lijom in the A and E??
You just have to eb glad that your Lyme is caught early and there is every chance you will be completely cured.
Once it gets your joints it's an added misery. so you will be spared all that.
Hopefully you'll only have to wait another three hours before you're seen.
No one can imagine how awful Lyme is until they have it.
Ah thanks Marie, you've been really helpful with your advice, really kind of you to give advice to others, especially as you sound like you've had it tough, there still some good people left in this world hey 😊👍
Hi Dave
Sorry to hear that you still not feeling well. I hope my story (so far) can help ....
I was bitten at the beginning of August, got terrible flu like symptoms the weekend after. After a few visits about my strange rash/bite the doc put me doc 3 weeks after and took my blood - one week later i was confirmed with Lymes.
I took a month of Doci and the GP doesn’t want to give me any more - finished last Thursday. My blood got sent away yesterday. I did feel horrible for a over a month and woke up every day feeling like I had the worst hangover, tingly and sore limbs, really dry eyes and mouth and very fatigued.
One week after I started taking the Doci I have taken (and I wasn't taking any supplements or vitamins before) - 1000mg of Vit C powder, Vit B complex, Vid D, Co - 0x 10 30 mg and a probiotic (strength 52 million). This advice was given to me by someone who is very knowledgeable about alternative health.
I don’t know if I am just lucky or if the supplements have made the difference but it could definitely be worth while trying.
But I’m feeling better every day. Not so dry eyes, not so tingly and better energy for sure. I'm feel like I'm on the mend.
I also loads of ginger, lemon and cranberry water. I hope this helps.
Hey Vee!! Thanks for the reply, really good to hear you sound like your on the mend, I would give me right arm to feel like that just now 😖
Throughout my 5 weeks on/off of Doxy I've been supplementing with multi vitamin, Vit D, Glucosamine, Omega 3, I've been drinking this Nutri green powder from a supp shop in my Nutri bullet, I've been guzzling Cranberry water and lemon water like it's going out of fashion, I've been running on the treadmill and going the Sauna 6 days a week as I was told that was great for Detoxing, fingers crossed I start feeling better soon and get back to work 🙏
Diagnosed a year and a half ago symptoms for a few years r u from east Liverpool.
I have had the pressure on one side of head. Went to Er. Had ct , came back good.. now. I have left side rib pain... had a cardiac work up to make sure all is well there, will find out. Couple weeks at appt on that cause chest feels heavy no pain , I get anxiety also any tips on how to stop the anxiety and. Does anyone's else have chest issues...
I'd forgotten about teh vit C until Vee mentioned it.
I take several grammes daily plus extra salt. and various vits and herbal stuff
The green juices are excellent too.
are you still waiting to be seen Dave>
and Lijom?
Dave i used to cry when i read what folks were going through but now there are no more tears(waste of water).
I just have hope because i'm sure this thing can be beat and evn if long term there are still ways to help ourselves and keep the spirochete levels low so one can live with it.
BUT better by far to discover and treat it early as then there is every hope of cure.
One day the Health Minister will realise just how many lives are affected by Lyme and send out new directives so patients get the treatment they need.
Let us know how things go..
Hi ya mate just seen your reply, yeah I've had the anxiety for years but I've had complete control of it in the main, I done a CBT course years ago all about turning negativity into positivity and being in control of your thoughts, but I have to admit my anxiety levels are through the roof with all this going on,
I feel a bit better now than earlier on, the doctor I spoke to said it is possible to be Lyme but my bloods have been sent to serology (lab) but he said keep taking the Doxycycline as it may take months to recover, just hope this dizzy drunk/drugged feeling goes,
Up to now I haven't had much pain, and I'm just praying it stays that way, keep us informed how your doing and hopefully we can keep our motivation up 👍
Yeah I'll definitely keep you informed, thanks very much again and I hope you have a good week, keep drinking that water 😊
Yes
to ALL those.
but chest xray clear, heart good, bloods all normal etc etc.
This is what Lyme does. It affects all parts of the body but hides in the cells and does strange things so just get rid of it with the meds and a strengthened immune system.
Anxiety comes with the disease. It's the fight or flight thing. We don't know what's making us feel so wretched.
You can't fly from it so you fight it with all you've got because it's too awful a thing to live with..
You worry about everything connected with it. It's natural.
Lyme mimics other diseases so medics rule all those out with blood tests, c scans etc and are left with = nothing because they haven't yet got the sophisticated testing know how .
We just want answers and to be made well again.
Being over anxious is genetic. Blame your parents/ g parents.
It makes life harder for us than it is for the happy go lucky souls.
Focus on other things. Music is good . Some try meditation. Others pray..
Deep breathing is good. warmth, massage, acupuncture helps some. Sun is good.
Find humour in things if you can.
There is no "I can't do it" You can do anything.
We have huge inner strength. It is there when we most need it.
Focus on getting well.
All the pains and strangeness we feel is part of the illness.
If need be get some medication that dulls the. anxiety.
Keep your mind occupied. write or sing. get some sun if you can . And sleep. You need lots of sleep.
.
.
I have trouble sleeping. I wake up all the time... I'm always tired
I am being treated by a rheumatologist right now.. live in Pa. and have not found a llmd that excepts. Insurance
with a 31 day treatment of. Doxy. Last time a year ago it was a. 21 day of doxy...