Knee Replacement - Pre-op, Post-op tips to share?

Hi everyone,  

My name is Jan and I am having my left knee replaced next month, total joint replacement.  I will also have the right one done but probably not until next year.

Can anyone share any adivce?  Tips?  Things you thought of after your operation that you wished you had thought of before the op?  Things to do in advance - or any shock surprises things you did not expect afterwards?  Good and bad?

How active are you in the first week or two?  Is it OK to rest with your leg up, and then do your exercises in between, or are you expected to be up moving all the time?     And how did you manage to sleep at night?  I read you are not meant to put a pillow under your knee.  How were you able to sleep comfortably?

Really, anything you can share would be helpful - even including the pain, good or bad - it just would help put my mind at ease a bit if i could know what to expect from those who have been through it.  It is probably not as bad as my imagination is. 

I am very nervous.  I broke both my knees when I was 19 (in 1979) and have had 9 or 10 surgeries since then - 4 or 5  just to fix them, and then more ti keep them ticking over and those ones were keyhole surgery which was a doddle - but I am remembering the pain I felt when the did the original ligament repairs and what not - the 4 or 5, they were very painful surgeries/recoveries - and I am very anxious remembering it - so anything to put my mind at ease is a good thing - even if it means knowing the cold hard truth!!  

So please - share away if you would - I would be so grateful.   

I should add I have become extremely sedentary - so have put weight on - and I know that will impede my recovery.  

Hi Jan! If you look on my profile you will see I have written all about my own personal experience of TKR. There is lots of good input here. Remember it is different for everyone, but i think it does help to prepare as much as you can. I wrote most of it post operatively and it was a very helpful project for me when I could not do much else! So it does help to line up books to read, TV to watch, or other things to keep your mind engaged, othewise it is very easy to succumb to anxiety! My own TKR was March 2017. "The very patient knee replacement story" is one page on my artist's blog. Skim reading recommended though! Are you in UK? It is also possible to look back on past pages on this forum, as each has a number. !

Total Knee Replacement...TKR.

Geez...where to start.  How about here...

https://patient.info/forums/discuss/the-tkr-experience-or-wish-i-had-another-kidney-stone--524499

This post has a lot in it...take your time.  Is this painful? Almost always.  There are a lucky few who squeak by.  Should I be scared? ABSOLUTELY NOT!!!  A few rules:

- Never compare your recovery to that of anyone else.  It's all very individual.  Even people who get a second knee done find that they have a different experience (better or worse) than from the first.

- Give up all expectations of what this will be like...especially with regards to time.  It usually takes a year for a full recovery.  Some do it faster, some take longer.  Do NOT start saying to yourself: "It's been 'x' months...I should be better!"  Don't ever think that way...gets you upset and depressed needlessly.  Be Zen: "I'll be better when I'm better."

- Prepare your home.  Microfiber silk sheets to slide in and out of bed effortlessly.  Ice packs.  Pillows.  Pre-cooked meals.  Others will give you more ideas.

- Be prepared for pain...the good thing is that they give you meds for it.  Talk to your doc BEFORE the surgery...like TODAY to make sure he/she will prescribe what you need for 30-60 days.  Too many of us have been left high and dry by docs who will not prescribe the necessary pain meds for the first two months.

- Physical Therapy starts soon after the op.  It's a painful process to break down the scar tissue.  The goal is zero degrees straight, 120 degrees or more bent.  Took me 10 weeks at 2x/week to get from -14 / +84 to -1 / +123.  It takes time, work and patience.

- Treat yourself well.  This is not an easy op.  If someone tells you that you should be better by now, club them with your cane.  Period.  Feels good...

There's so much more.  Click on my picture, go to Discussions and click See All.  Lots out there.  Plus...

LISTEN TO THE PEOPLE ON THIS FORUM!!!  We have a GREAT collection of experienced souls who have endured the pain and conquered the challenge.  If we could do it, so can you.  We're here for you...

Yes!!!  Jenny has a great blog out there.  Check it out!!!

I too, have had experience with TKR since Feb 16th of this year. Can say just lately, I have not had any swelling and don't sleep with pillow under my knee anymore. It's been 4 months of "Groundhog Day" for me. You'll be so glad and relieved when it's over. Each new day is a day towards complete recovery. Good luck!

Yep, love the club them with your cane bit! I had mine ready at all times. Never had to hit anyone with it though. Must have been the expression on my face! 😊😀😁😂😄

Patience! This might not sound like marvelous advice but at almost 6 weeks post op, it truley is the best advice I can offer. I have learned a great deal on this forum but since we are all different- my advice is-be patient with yourself, your recovery, and your expectations ( oh and maybe those around you because they really cannot completely understand what you're going through). Best wishes to you. Let us know how you are doing!

I am enjoying my new knee immensely now! Just a few weeks behind you! Very little swelling, nice sleep, walking and standing as I need to, it's all very exciting! Those first three months were such hard work, but now though still healing things are really falling into place!

Hi Pencej

As you have probably realised from the feedback we are all different in our recovery this forum is the best place to be

the best advice I can give you is try and be kind to yourself take any help you can get you will need it and remember this recovery is a marathon not a sprint.

i hope all goes well for you and wish you a speedy recovery.

Hi... I had my TKR in March.  They had me up and walking at the hospital the next morning (it was an afternoon surgery) I won't lie, it hurt.  So take your meds, ice your knee as much as possible.  I was using a walker when I got home from the hospital after the 2nd night. I have a very supportive family and I used the "brave face" for them which ended up actually helping me.  I  had 3 weeks (3x a week) of PT at home and then 6 weeks  (3x a week)  of PT at rehabilitation center.  I am now nearly 3 whole months post-op.  I still have knee pain but not nearly as bad as it was. Most pain comes from when I get up or if I sit too long and get stiff.  After the 3rd day home, I was able to sleep on my right side with a firm pillow resting against my right leg and my left leg on the pillow.  Be prepare to wake up often and no pillow under your knee.  It must be kept as straight as possible when resting.  My saving grace was a beside potty. I am about 50 lbs. overweight and I do not like exercise, but I promise you the best thing you can do is what the PT tells you to do.  I had my range of motion and leg extension on target by the 4th week.  I attribute that to riding my son's stationary bike for an hour a day (not all at one time) prior ro surgery.  Best wishes to you for a speedy recovery.  May God bless you!

Hi Jan. Lose as much excess weight as possible now and post op.No excuses. Diet is 80% of weight issues. Just do it. Eat unprocessed, real food and lots of fruit, veges, oats, prunes and lean protein. Medication can constipate!! Drink plenty of water. Take medication pre exercise. Don't forget. Research here and take responsibility for the recovery outcome. Do not miss exercising the knee. It is uncomfortable for the first couple of months. So that is why we usually need painkillers. Read Chico Marx's posts. Good luck lovee. x

Note on the meds...  Typically people are prescribed hydrocodone (Vicodin, Norco) or oxycodone (Percocet).  There are other similar meds in the UK.  Hydrocodone, Co-codamol in the UK along with Tramadol and others are based on the codeine molecule; oxycodone (Percocet) is based on the thebaine molecule (a synthetic codeine derivative).  All have similar painkilling effectiveness per identical dosage but anything pure codeine-based can be very constipating.  I can quote from NIH if you need it.  If you have that problem, switch from hydro to oxy.

PS: Except for the pure drugs (hydrocodone, oxycodone, codeine), all the brand names (Vicodin, etc.) are mixed with acetaminophen (Tylenol).  A dose labeled "5/325" contains 5mg of the opioid and 325mg Tylenol.

...and run them down with your walker...again...and again...and again...  Remember...this is YOUR recovery!  No one gets to tell you what to do with your pain or how long it "should" take you to get better.

Listen to the others...  Eat healthy, lose some weight, do some leg strengthening NOW, hydrate A LOT, take your meds on time, don't listen to ANY criticism, work with your PTs and on your own, get rid of expectations, ice and elevate.  It's tough for very many of us...few skate right through it.  Expect the worst...pray for the best...accept what is.

Hi Jan,

​I did not have a TKR, only a partial knee replacement - but the principles of recovery are the same - even though we are all different in how we recover.

​Understand one thing - this is butchery - 1st order butchery !

​Mine was right knee, medial compartment. I had a general anesthetic. I have a pre-existing medical condition, a heart arrythmia. I am on Warfarin (Coumadin) for life. I was operated on and cared for by a surgeon as an NHS patient in a private hospital. I just give you this background as an outline to show the challenge I presented my medical team.

​I was operated on on 6 Nov 2015, home after 3 days, stitches were the staple self disolving type. Dressing removed on 19 Nov 2015, return to hospital for PT review on 21 Nov 2015. Driving my car again on 29 Dec 2015 and on 26 Jan 2016 back at work driving a bus.

​The only PT I had was during the 3 days in hospital and that was intensive  - it was more like (boot camp) training in all the exercises I'd have to do at home. At discharge I was given a booklet explaining what had happened and what exercises had to be done, when, and their frequency. Surgical and hospital policy was that the patient had to achieve a 90 bend in the knee before discharge.

​The most significant thing you can do as an act of self help is what I did - get the leg muscles strengthened, lower and upper leg, prior to surgery. In other words present to the surgeoan a leg with the best possible strength in it as you can - all ready for him to butcher. YOU WILL need those strong leg muscles to work for you during recovery and rehab. I went once a week to my sports injury massage therapist for her to work on my leg.

​NEXT - as soon as you have the dressing off and it is confirmed there is no infection I went back to my massage therapist for her to start breaking up the scar tissue. She did this by gently massaging the incision line itself and all around it. THIS IS VITAL. She showed me what to do myself at home and recommended I use an Aloe Vera Gel.

​The point is this - if the scar tissue forms it will make your exercise program very painful and maybe even nearly impossible for you to get the bends and flexion you need to walk properly again.

​I decided to dedicate myself time at home exclusively to exercises and rehab. I did all my exercises exactly as instructed every day - WITHOUT FAIL - you have plenty of time as I'm sure you will realise. I was at it 5 times a day. I was on crutches continuously up until 29 December, very, very gradually weaning myself down to one crutch and then none. Then as soon as I could drive I tested myself along the (I live in Cornwall) South West Coastal path, hilly, rugged and very uneven. Very tiring, very uncomfortable and mildly painful but good exercise.

​I am one of those who likes to know things, yes, I knew why I was doing exercises and rehab PT but I wanted to know what it was doing to the inside of my leg. I went onto YouTube, and typed in the search box something like " exercises after knee replacement". there were shedloads of short videos which explained it all and gave me much more confidence in what I was doing.

​Yes, always adopt the RICE practice - Rest, Ice, Compression and Elevate, . Make sure your leg is raised, I went 2 pillows high and just used large packs of frozen peas. I never put a pillow under my knee, rather my heel on a pillow (or cushion), that way the knee joint stretches. Sleeping for me - I slept when I could, which wasn't often - not so much from pain but the toxins inside me from the GA made me continuously dizzy. Every time I put my head back I became dizzy. It wore off eventually. Because of the Warfarin I am severly restricted as to painkillers I can take - in hospital morphine and tramadol didn't do it for me - I ended up staying with CoCodomol 30/500. Plenty of constipation so a good fruit diet is advisable if you are that way inclined.

​Your exercises will all be different, all aimed at producing a different result. I found that sitting on a dining table chair (I have one with arms on ) and used that to practice my heel slides was excellent. also, from that position I was able to rest my heel on the arm of a lounge and press down on my knee just above the knee cap, and keep pressing it this helps you get flexion. ( a straight knee). Heel slides are illustrated on You tube and are vital to help you get the bend. to get anywhere near normal you have to aim for 130 degrees bend in your knee. Try it now, sit on a dining table chair, firstly sit with your bum right back then slide your leg back under the chair. Then sit in the middle and do it again and then sit at the front of the chair and do it again. Notice how in each seated position will give you a different bend in the knee. Another trick to help straighten your leg is to get a large towel roll it up, length wise, put your leg out straight, put the rolled towel under your foot and pull it back. This should have the effect of straightening your leg.

These explanations are probably not very good - do go to Youtube.

​Can't think of anything else Jan - except - may the force be with you.

Let me know how you go !

​John

I forgot.

​Don't use pain relief as a pill in the pocket to be taken as and when - take it all day every day - exactly as prescribed on the bit of paper in the packet. You'll be very lucky to get through your exercises if you don't.

​John

Totally agree...

https://patient.info/forums/discuss/staying-ahead-of-the-pain-563395

You have to "stay ahead of the pain"!!!

Hi Jan!

Goodness! I'm so sorry you had to deal with two broken knees and so many surgeries so early in your life! That must have been quite a difficult time for you.

I'm guessing that you pretty much could tell all of us a good many things about knees and recovery and surgery and PAIN!

It has been two years since my knee replacements were done, and I will tell you that I have ZERO regrets about my decision to have the surgeries! Sure, recovery takes quite awhile, swelling comes with the territory, and learning how to maneuver with a walker, doing exercises, and icing all bring new challenges. As I spend the day outside in my garden or shop or play with my little granddaughter I am grateful that I took the chance of getting my life back again!

Prayer was my constant throughout the entire experience. I put my worries in God's hands, and the calm and peace that I felt were incredible!

I tried to see humour in everything rather than be negative. ( Example: Four of us heading to the bathroom every half hour or so-- two nurses, one on each side of me, myself, and an aide dragging my IV pole) We all got to giggling each and every time because it was such a bizarre collection of characters, and I kept thinking we needed MUSIC and a BAND playing!)

I was VERY glad I brought 1) my polar fleece blanket (blood thinners made me REALLY CHILLY!), 2) my phone and charger, 3) my journal and pens, 4) lotion, 5) a good book to read, 6) my own soap and shampoo.

I tried to move around in bed to stretch, and once home I made it a point to walk around every half hour to hour throughout the day and usually several times each night. I kept a thermometer next to the bed and checked my temperature before bed, upon waking and anytime I needed to assure myself that I was NOT running a temperature. I did NOT want to get an infection, so I checked my temperature rather than just rely on how I felt.

My biggest surprise was how different my experiences were from knee to knee. First surgery (June 2015) was my left knee. Lots of swelling, very heavy feeling, quad took a long time to WAKE UP! Second knee surgery (October 2015) Worst knee but easiest surgery! Go figure! Minimal swelling and could move my leg in the recovery room! Still perplexed about how different things went!

I finally slept four hours straight at around nine weeks. At 12 weeks I slept about five hours in a row. I still am at about five hours because OTHER arthritic body parts wake me up. ( Knees are good, though!)

I had a GREAT physical therapist who really listened to me. She encouraged me to WANT to work. She was kind and extremely helpful in getting me strong, helping me develop good balance, and acknowledged often how I was steadily improving.I will always be grateful for her!

Don't let ANYONE bully you.

If something hurts, let them know.

Eat well.

Drink lots of water to flush out toxins.

Be patient.

Distract yourself if you are focusing on pain and feeling down. It gets better slowly but surely.

Come here often!

Wishing you a successful surgery!❤️

Hi Cheryl.  Thank you so much for such a nice, empathetic and informative reply - I really appreciate it and see a lot of value in what you said.  

I was discouraged by only sleeping half a night for so long, and sorry that its like that for you - I hope that starts improving soon....sleep is so important for heeling.  

I have a lot of replies to read!!  I am thankful for this forum.

smile  I will come often!  xx

Thank you!  smile

Hi Jenny,

Thanks so much for your reply.  smile  I will definatley check out your blog - thank you!  Great idea to write about it!  

I am in the UK.  Are you?  I was just wondering if this is primarily a USA or UK site myself.  smile

I am worried about the anxiety - I have a lot of anxiety already.  I have had so many ops in my life - rolleyes - not just on my knees, just unlucky - this is about number 20 - and I am just so tired of the whole thing, but I've got this one,  and then the other knee- and even a few more needed after that, so , hey ho.  Here we go!  lol

I will have a lok at your blog now!

 

Thank you so much for all the info and tips where to find more - I will have a lot of reading to do -= some great replies here.  Thanks Chico!  I will surely be spending some time around here I think!  smile