Hello again, I am the OP and st
I'll try again, phone playing up, switched to the tablet!! I started this thread almost 3 years ago. Something rather strange has happened to me since yesterday!! I had another attack, as strong as the first, this time in the spa pool not the swimming pool. Both attacks happened whilst I was "laying backwards", although this time there was definitely no water could have got into my ears...did suspect this might be the case first time, but had my fingers in my ears yesterday!!
Was totally devastated that it had struck again. My sinuses had been pretty blocked prior days so assume the virus has again got into the inner ear. Was extremely sick and unsteady all day yesterday, and was dreading laying down in bed. Did so, and turned very carefully last night and woke still feeling quite unsteady. Par for the course I guess.
This is where it gets strange. Knew from last time that the earlier you get moving again, the better for the compensation process. Have really fought against it all day and moved around the house as much as possible. Have a little ear pain and ears are still feeling full but I'm actually feeling quite steady already!! Can it really have disappeared this quickly?? Suppose I might be jumping the gun and will pay for it in the morning...
So has anyone else had a second bout, not just the occasional dizzy spells that most of us get occasionally, but a full blown knock out attack?? Is it usual for it to go almost as quickly as it arrived? I really thought I was in for weeks of torment again!
Hi
I was first diagnosed with Labrynthitus 1 year ago and have the odd spell of dizzyness, but one week into 2015 it has come back. I have now been off work for 5 weeks and am still getting very dizzy and sick. I cannot drive am signed off work. I am getting very low and am strarting to suffer from panic attacks and loss of confidence. I'm sure my work colleagues think that I am putting it on but unless you have had this condition noboby knows how it totally takes over your life.
Your link has been removed and I can't work out how to send a private msg (I can't see the encelope icon)!
Hello everyone
So sorry to hear of everyone's problems! I don't feel ill anymore after the initial awful symptoms 2 years ago and I've had the usual medication, MRI scan etc. I just wanted to ask if anyone else had labyrinthitis through a bacterial infection rather than a virus? Heaven knows how i contracted it, from a swimming pool perhaps? Also I get the occasional dizzy feeling now but my hearing has been affected. Sometimes it is OK and sometimes it isn't. I was visiting friends this weekend and could see that there was music playing very low but couldn't hear it at all. My husband says that sometimes I am complaining that the TV is too low and at other times too loud. Has anyone else had these problems
Hi Maggie, glad to hear that you're mainly well!! It is recognised that lab causes hearing problems, although mine is mainly tinnitus. I'm not sure that it's that easy to tell whether it's viral or bacterial, I guess you get a fever if it's bacterial? Much the same as a respiratory virus can be bacterial, I suppose it depends, though I think it transfers to the inner ear internally rather than in through the ear as a water-born virus would. I'm no expert though!!
I found that loud noises would make feel a little dizzy in the early days, and I too get complaints from the OH about the volume of the TV. After my latest brief episode I am going to ask my GP for a referral to ENT as although a hearing test is not showing a significant loss, I feel as though I am not hearing as I used to. I also get brief episodes of BPPV now, and do the Epley manoeuvre.
Have you had a recent hearing test?? You can get one for free in a well-known national opticians!!
Hi Dragon Thank you very much for your reply. At the time, about a year ago now, the NHS sent me to the balance nurse, which proved really helpful and also to the hearing nurse but I feel that I was fobbed off really with the hearing nurse i.e. not quite bad enough for a hearing aid but perhaps at some stage I should go to lip reading classes (and no need to bother us again!)!. I will go and get that hearing test, a good idea and maybe go back and bother the GP. By the way I didn't get any kind of fever just that my ear started to get itchy. I was in India for 2 weeks and on the plane home bent over to put headphones in when the horizon went diagonal one way and then the other. That was the start of it.
Maggie
Hi Heather,
I was diagnosed over a year ago as well. Thought by now I would be back at work. Like you I can not work or drive. Quick movements make me very dizzy. Laying on the right side is not good. Your comment about your colleagues is so true. I am at the point of not knowing what to do. My eyes hurt all the time and the headaches are getting worse I am on an anti depressant now. Hope you start to feel better soon!
Hi Erica,
My apologies for the late reply. I also have not been feeling very well since before Christmas and I just checked in the forum today. How have you been feeling? Are you feeling any better since your doctor's appointment?
I have been off work since Dec 11. I've been going to weekly Physio appointments which helps for a couple of days and then I'm back to feeling dizzy. It feels worse when I am stressed or anxious. My ears have been feeling a little better but I find that when my neck hurts I feel the pressure coming back around my eyes. It's hard to sleep night because I can't get comfortable. I try sleeping on my side or back sometimes, but it's still not comfortable. I even tried changing my pillow. Yesterday we went to visit my parents who live about an hour away, and the car ride was very uncomfortable. I felt very dizzy afterwards. I hope that we both feel better soon. I saw my ENT last month and he says that things are getting better, but I feel otherwise.
Hi
Yes - all of your symptoms I've had as a result of Botox.
Hi, my husband was 7 years old when he started to have spells of dizziness, etc. He is now 36 years old and is still fighting this disorder. We live in Texas. He has never been diagnosed with LAB, but has been to every doctor imaginable, including ENT has had MRI's, been on steroids,antibiotics, blood work, allergy testing and still no answers....So he stopped going to doctors since he was not getting any help. About 5 years ago, he started doing his own research. He came across candida yeast overgrowth forums and found that many people with this, had his same symptoms. He began his journey to tackle this with diet. He completely cut out ALL yeast And SUGAR! You would be shocked to realize that almost every food has yeast. This was the hardest thing he had ever done in his life. The first 2 weeks, he felt like he was dieing. His symptoms became worse, but that was to be expected, from what he had read. He stuck to it and by week 6, he was a different person. He felt good for the first time in his life. He stayed on this for about a year and was ecstatic that he had found the cure. Unfortunately, he has strayed from the diet and slowly but surely all of his symptoms are back with a vengeance. He has tried several times to go back on the diet but because it is extremely difficult, and with stress, anxiety, and depression, he has not had the will power to stay on it long enough to reap the results, and therefore falters. Within the last couple of years, the brain fog, spinning, and headaches have been dibilitating. He hasn't gone to the doctor in many years. He has decided to tackle this again, but from all sides. So, he is not only going to start his candida yeast/no sugar diet again, but is also going to doctors to see what they have to offer as well. Of course, that will be a long journey, since our Healthcare system in America SUCKS! But we will give it another shot. Just wondering if anyone else had done any research on candida yeast overgrowth????? Thanks!
hello was reading your symptons asnd they are exactly the same as mine just want to open this thread so i have some to chat that understands this very complex disorder is that ok would like to know are you still getting your visual problems with words ?
update as I haven't been on here for a while!
My hearing has deteriorated enough to wear a hearing aid now. Of course it could be age related but I do think the labyrinthitis has been a factor. I am managing well, however and have been to the pub with younger colleagues & great I could hear everything. I do my balance exercises very regularly. I was away in a snowstorm in Austria recently and without the normal visual cues, next day I had an attack...had to go to bed then got up and did all the balance exercises I could think of and it worked, I felt OK again. Obviously lab will always be there but I'm well enough to cope as long as I do the exercises. I have certainly been told that the inner ear doesn't work on one side. By the way never be fobbed off. I went to the Dr initially at the beginning of March 2012 but wasn't seen by a consultant til July. My ear was suctioned on three occasions before they could see the bacterial infection. Bacterial infections can be dangerous as they are so near the brain and should have been sorted long before.On a positive note, if you feel well enough do those exercises. I do know however that everyone is a bit different.
Good luck
Hi, Has anyone found that taking an anti anxiety/deoressant helped them at all????
I went out drikning about 8 weeks ago and got into bed happy and tipsy, to then feel what i called a brian shift, form then on i was light headed/dizzy for almost two weeks and it jsuut then went away over the space of say 3 to 4 days..... KI then had another drink! so stupid i know, and it all returned but worse, PLUS major anxiety. I did have anxiety the first time during the two weeks bout, BUT i didnt worry too mnuch and when the anxiety went away the feeling light heaededness and dizziness went away too. I do not have any vertigo issues whatsoever, ever so slight fulness in one eart and at night i can hear a very low buzz from my head or ears i dont know, when i close my ears i cannot hear it, so is that tinnitus or not.
I paid to see an ENT consultant who did the hallpike nad epley manouvres on me, and he basically told me that i didnt have lab or menieres, but is sending me for MRI, balance tests with a physio and hearing tests.
SO...... i am now jsut started taking citalopram (Celexa) 10mg two days ago in the hope that this is all anxiety????? time will tell but oh my goodness what a state i have gotten myself into over this lightheadedness/dizziness.
Oh the only other symptom i ahve is very light head behind the eye pressure and my eyes feels constantly tired no matter how much sleep ive had, i feel drowsy.
Any comments on this? is it my ears or what?
Thanks in advance,
Hi! I have the same reason for why I feel like this! I took ecstasy about 7 weeks ago and there hasn't been a day since thAt I've felt well and healthy. I went to the doctors and they diagnosed me with labryrinthitis a week after I started feeling like this. I've had blood tests and balance tests Nd I've been to hospital twice but no one is helping me. I know you posted this over a year ago now but my main concern is did you ever feel better again???? I just want to be okay again. I'm 19 and at university and o fear that I might not complete my degree.
Thanks in advance
Hi
Im really relieved to read your experience as I was diagnosed with a inner ear infection and later BPPV. Ive suffered a dreadful thick head issue ,light sensitivity,blurred vision,dry eyes,headache and vertigo . Ive been suffering with short term memory and concentration problems. My GP seems to think the memory concentration issue isnt a related problem but clearly many people on this forum suffer with it. After 6 weeks or more Ive been given a specialist referal . Any one else have memory issues related to this problem
Hi andrew, yes I do very much. My memory is terrible since this. Brain fog no concentration. Completely normal from what ive researched.
I think I have the same type of thing but I do not understand alot of your abbreviations. What is BPPV or lab? What is physio? What does six week wait went private mean? What is epley? What is dix-halpike? Yeah I can look all that up and i probably will but just reading your story it makes it really hard to understand. Just the opinion of someone who is trying to figure out what the hell is wrong with him. Besides the symptons u mentiones above I also get blurry/double vision. Thanks for sharing either way. Have a nice day and a great holiday season.
Hi Doug, as you have mentioned the holiday season then I guess you are in the US? I think that's part of the problem, I am referring to UK terms in the main, and to the UK health system!!
So lab is labyrinthitis, BPPV is a very similar condition that you can certainly google. Six week wait refers to the length of time that I would have to wait to see a physio(therapist) on the NHS (UK free health service) so I paid to see one sooner. Epley (manoeuvre) is a treatment for BPPV and Dix Halpike is a similar test to check which type of vertigo is present.
Hope that helps all you US folk, and happy holidays indeed!
Hello. Thanks for clearing that up. Yes I am in USA, New York. I have been dealing with some kind of dizzy head, double vision, ears going in and out kind of thing (hard to explain) for a long time now. I got MRI's and a lot of testing done but nothing yet. Been to ear doc, eye doc, neurologists and no diagnosis. I am getting fed up so I took to the internet to look for myself. I am sure a lot of people probably understood you just fine, i was just saying from my perspective. I am 35 but I look at 25 so I always get "oh you are too young to have any problems" when they say that it makes me think they are not really looking cause they think they won't find anything. My one doc is great but he is an hour drive away and it gets frustrating when they can't tell me how to fix it. Well again thank you, i appreciate you taking the time to clear that up for me. Have a wonderful day!!!