Hi, I have been reading witht interest some of the comments posted by some people regarding vertigo and dizziness. My story started back in March of this year, I was watching my son play football and whilst driving back home I suddenly became extremely lightheaded felt like I was going to pass and my partner took me to A&E, the symptons have never gone and way have have only got worse, went to the doctor whom said that it was Labyrinthitis upon reading up about this condition it seemed like I had allt he symptons, one of which was anxiety which I have never suffered with before its is now five months on and I still have the dizzeness and lightheaded woozy feeling, the last few days have felt a little clumsy and off balance, I have ringing in my ears and popping some days and headaches I was prescribed diazapan for anxiety and then the doctors put me on citalopram which I only took for 4 weeks this didn't seem to help much so decided to stop taking them I haven't taken any medication for a week now as I wanted to see how I would get on without apart from panadol for heachaches, I finally have a referral to the ENT department which is in a couple of weeks time, I have just about had enough of feeling crap, before all of this was an active 47 year old have two children and recently got married back in June I just want this to go away and want to wake up in the morning feeling normal, I would ilke to add that I don't have any problems sleeping I best when still can anyone else shed any light on things thank you!
Hi Paulette, I can relate. Mine started on June 3rd it started as a warm sensation go up the right side of my neck like when you pull a muscle. Within minutes I felt a little dizzy, as the week progressed so did the dizziness. By the end of the week I was in the hospital for 3 days with every test and scan done only to determine that it was labrynthitis and it would go away in 4 to 6 weeks. I was referred to an ENT and did vestibular therapy. The therapy helped immensely with regaining my balance however we are now into October and the dizziness is still there. It's not nearly as bad though and even on some days I rarely notice it but it isn't completely gone. I'm still convinced that it has something to do with my neck but every dr. I spoke with has said otherwise. Like you sleeping or sitting still like watching tv doesn't bother me. It's when I'm up movingly around. I took medicene the first week and it didn't do much good. The ent advised that I not take it because it will take longer to recover. With labrythitis your inner ear is damaged and it throws off your center of balance so your brain needs to reevaluate its new balance and by moving around it helps do that.ive personally noticed that lack of sleep, stress and too much caffeine makes mine worse. Best of luck, it does get better with time and therapy helps a lot.
Hi hun!
My dizzies started in March too. I was out with my mum in llandudno on mothers day and bam it just hit me. Mine too has never gone away. I can't say it's worse but I do get good days and bad days (at the minute im having a bad week) I suffer with anxiety long term anyway but I went back on 40mg Citalopram a day and 20mg amitryptyline at night. I also take 5mg of betahistine three times a day.
I see ENT next week but my Dr is adamant its labyrinthitis but my brain is struggling to compensate for the damage it has done to my ears. I too want my life back as I'm a 37 year old single mum of 4 so being like this is no fun!
Are you on facebook? There is a fab support group on there called labyrinthitis support. Everyone is so friendly and helpful. It's also nice to know you aren't alone in suffering from this horrid thing.
So maybe i need to look up labyrinth. And yes i know mine has to do more with sinuses and allergies and head and ears cause when i take allergy meds with a decongestant its that much worse. I too have had anxiety ever since this lighheaded dizzy stuff started 9 years ago i get a warming sensation across chest and belly doesn't last long then the dizzy and lightheadedness starts. I am better laying down but i have kids and grandkids so i can sleep all the time.
I find im better laying down too but as you say you can't sleep all the time! It is a horrid thing to suffer from as no one can see it and most of the time we look fine! Xxx
Yes i took some decongestant last night and was even more dizzy and stuff like couldn't even do dishes thought i was gonna fall over and i got mad at the hubby cause he is like can i go to bed or do you want me to stay up with you 😡 no one understands what we go through.
I can relate to all your posts,and just wish I could feel normal again.The medications that I was prescribed really have not helped me at all,but every so often I feel quite a bit better,but then suddenly I feel off balance again.I also think it has a lot to do with my neck and it is always worse if I am tired or worried.Thoroughly fed up with all this as it stops me doing so much for fear of passing out.I never do!!
wish it would go ,just as quickly as it came,but no luck yet.
Thank you fory our reply it helps and I hope that you start to feel better soon I will take a look at that facebook page cheers
Here here well said ! Lets hope we start to get better soon as I have definately had enough of feeling like this thank you !
Hi, Does anyone know if we can make a full recovery from this
I think you can but the damage is always there. Which I think will reappear from time to time when we get sick or run down. Xx
Hi Paulette
Oh yeah we are familiar with those symptoms. Driving and feeling that way is frightening. I'm 42 almost 43 and I'm miserable. I can't even stand and have a conversation because I feel the f
Ground swaying and it feels like I'm going to faint. Anxiety kicks in after that , my vision gets alittle blury , headache , heart pounding. It's crap !! Don't know where this came from but it's affecting us. I've had stress test done ..ENT who told me it could be a brain tumor !!! I cried and I believed him. I've had sooo many ct scans,MRIs , blood work , lupus test. Everything OK. Ha, really ? Something's up if I'm feeling like this. Drs chop it down to stress anxiety depression. Right away prescribe anti depressants ...not saying anything negative about them but I know it's not all that tgats causing me to feel this way. My walk is unstable ...feels like I'm shaky inside. Ugh. Hope you feel better ...let us know what ENT says. Take care.
Hi Paulette, I feel everything you described. I have all those symptoms and I have had all those tests done too. 3 Drs said I have anxiety and need to be on an anti depressant. Well of course I have anxiety because I don't feel NORMAL anymore!!!
i feel like I don't have a brain, I can't think straight. I feel like I am not in this world and when I try to talk to someone, I feel like I'm not there with them. I get blurry vision, headache and heart palpatations. I have to take deep breaths all the time to try to get that strange sensation I have in my brain. It feels like.....you know that feeling like you are falling or someone just scared you...... That's how I feel all thru my day. It's horrible. Driving is scary because I feel like I'm not here in this world. My neck also hurts. I wonder if that's the anxiety, stress part of this sickness. I have pity parties a lot. 😩😂
I feel like that too Brenda. Right know as I'm typing ...my head feels strange and I get nauseous. Feels like I'm standing on the edge of a building and you get that woo feeling,that's the best I can describe. I'm feeling anxiety because of it. Drs always want to push pills...last Dr prescribed Prozac ...still sitting there , I have not taken one. But I'm feeling crappy right now. So tired of this
Thanks for your reply it helps to know that I am not going crazy, today I have had an appointment for an MRI Scan on 21st so if this doesn't show there is anything wrong with me I wonder whether all the anxiety lightheadedness etc will disappear ! will keep you all posted today I have been shopping with my husband and children and felt lightheaded allt he time but you just have to get on with it as hard as it is otherwise you will go crazy and tomorrow i am working all day in the local shop .
Hope your MRI goes ok. I've baked two banana loaves today and am really woozy/lightheaded. It's horrid but you're right you do have to try and carry on! Well done to you for still working, I had to give up work for the time being. Xx
Nope.....I don't think anyone does make a full recovery. I have been asking the same questions on boards like these for years and no one comes forward and says "Yep I've made a full recover"..It's not going to happen I'm afraid.
What you will do in time, is put up with it and learn to live with it and you will have better and bad days dependant on your mood and your general wellbeing. As time goes on you'll have more better days than bad. When I say better, I don't mean symtom free, I just mean its better than the bad days.
I apologise for being gloomy but I am just being honest. I've had this since 2009 and although I am a lot better than I was, I still haven't made a full recovery.
The reason I won't make a full recovery is because my balance cells in my left ear were destroyed by a virus (That's how my ENT described it), then aint coming back, they're gone. I have to make do with the rest of me to compensate for this and this compensation takes a long, long time.
Thanks well done on baking, I'm doing okay but not 100% work helps me keep my mind of how I am feeling and I quite enjoy it. Hope you get back to work soon !
Hope all goes well with MRI. I struggle at work too. I feel so sick all day. Right now I'm feeling horrible. Feels like my brain is crashing against waves and I'm feeling nauseous ) : I really want this to stop. I feel miserable My stomach is bloated and nauseous , my head feels just ...ugh!!
So i have fluid behind my ear how do i get rid of it. I was on antibiotics and steroids and so i was told its no longer red but still has fluid but no dr will tell me how to get out the fluid and if its still there that would be why i still getting lightheadedness and dizziness. I even went to Wal-Mart yesterday and it sucked cause i had to ride in a wheelchair cause its worse when walking around. I told my oldest daughter its like i have heart issues or something like that periferal artery disease or however you spell that or some scary thing cause its got my anxiety through the roof 😩😭😪😥