This has been the 4 th episode of diverticulitis since June 2016. For me I was diagnosed thru the ER. I was placed on Cipro and Flagyl for 10d . Each time I completed them and within 2 wks I was back in the Er and diverticulitis confirmed by CT scan. So another 14 days of antibiotics! I am so nauseous during treatment!! I have lost 25 # since Dec. I feel the treatment is as bad as the disease. I have found sucking on doublemint gum takes care of the metallic taste. Can you tell me of success stories re surgery? I think I would like to be proactive. Also stress is definitely a trigger for me!
I feel your pain, Katealso. I was dx first time Dec 21, 2017. I went to ER w severe abd pain. CT confirmed diverticulitis and rx Cipro and Flagyl. Colonoscopy followed 6 days later then immediate admission to hospital for IV antibiotics.
Went home a day later and things were or seemed fine until Feb 12. Pain returned. I went to my doc and he had me self-admit to the hospital where I remained for 4 more days of IV antibiotics and another CT. This is very frustrating. I work in healthcare. I just want to find an answer to this mystery disease. I now have an appt in April with a Gastroenterologist. I hope and pray there is an answer with him that my GS couldn't find. Until then, one day at a time plus a great probiotic.
Would you mind sharing what antibiotics they had you on in hospital?
I get so sick from the Flagyl and cipro!
The gastric and pcp recommend seeing a surgeon and have an appt Mar 8 th. 3 months is too much
Hi. I had 18" of colon removed 9 years ago. I didn't have to have a stoma. Have been much better up until 3 weeks ago when I had my first bad flare up since. However , at the time of my surgery the dd was confined to that part of my colon, and now it is dotted all over, which means I wouldn't escape as lucky with further surgery so trying to avoid it at all costs.
Hi Val,
How old were you when you had the surgery? Would you do it again? And were you strict with diet and exercise since your surgery? That’s my fear that it would come back! Sorry you have to go through this again!
I would be happy to. I take pics of EVERYTHING.
1. MetroniDazole 500mg
2. Piperacillin and Tazobactam 3.375 gr
piggybacked with 0.9% Sodium Chloride Inj (mini bag)
4. 0.9% Sodium Chloride Inj. 1000 mL.
I had it for 4 days via IV. Then they sent me home with the Cipro and Flagyl for another 2 weeks.
I feel so spacey and weak. No appetite. I pray that I'm ok til I see the new Gastro doc. I hate feeling like this.
I agree about being spacey and weak and dizzy! I’ve said the treatment is bad as the disease! I hope you feel better soon!
It’s depressing
I was diagnosed with DD at 24 years old, I was stubborn and worked through the pain of a flare up. I didn't go to the ER until the 6th flare up , it had been hurting for 2 weeks and I came home and passed out in my living room floor. I stayed on a pretty strict diet and a year later it flared up again, another 6 days in the hospital. I had a colonoscopy done and it showed irreversible damage and a lot of scar tissue my ureter was fuzed to my sigmoid colon too. I tried to avoid surgery but just 3 months later it flared up again but was caught in time I wasn't hospitalized. I scheduled an appointment with a surgeon but it was 2 months out. It flared up again before my appointment time, I was hospitalized for 7 days and had a abscess. The surgeon came to me in the hospital and said he wanted the inflammation to go away before he done surgery, he gave me bactrim to take twice daily for 6 weeks after the standard cipro and flat until my surgery date. I did not want surgery, there can be many complications to it but I had no choice. They took out my entire sigmoid colon and part of my decending colon today, total of 16". My surgery was completed 14 hours ago, and I'm not going to lie I feel pretty rough. As far as pain goes its a fraction of what a flare up is.
Sorry about the grammatical errors. I'm really not that bad at writing. I got this phone yesterday, its 12AM, and I did not proof read it at all. Its been a long day, I wish you all the best of luck.
Wishing you a s0eedy recovery, but it takes a while you will have to be very careful and rest well when you return home x
I hope today is a better day! This is why I would rather it be elective. To avoid the complication of an abscess or perforation.. During the flare I am all about the surgery. Then after the pain is better and I’m off the antibiotics a few days I’m not so sure! Big decision! Hats off to you for even responding! Was it done laparoscopic or open? Did you have a colostomy? Keep us posted on your recovery!
It was done laparoscopicly, and I was lucky enough not to have a colostomy. So far its not to bad at all. I mean don't get me wrong I'm hurting but I'm use to pain,and its tolerable
You sound great! And I bet a big relief!
Wishing you a complete and quick recovery. I never thought I would look to have surgery but I’m so ready!
I haven't drank anything in 32 hours. The last thing I drank was that colon prep stuff .I have 4 incisions with staples, a catheter, 12 wires hooked to my torso and I'm sore enough that I feel like I was ran over by a car. In not exactly sure of your situation but I would try to avoid surgery if possible. Have you tried making a food log and recording every time you reintroduce a food back into your diet? Steak made my stomach hurt so I haven't ate it in 2 years,but I can eat hamburgers. Tracking everything can help you get control of this. You could also try something like myfitnesspal to help you track macro nutrients and calories, as well as easy to track fiber intake. Tracking fiber is highly beneficial to us withnDD.
Thank you Val. So it came back after 9 years? Im so worried this will happen to me. I'm very sorry to hear that. Didyou follow a good diet in the 9 good years you had? Did you watch your fibre intake? I feel like mine is going to come back bc it got bad enough to need surgery as young as I am. I'm probably going to eat mostly what I want too but eat a lot more fiber
Hi . Yes I had 7 years with no symptoms at all but I still had trouble with ibs.then 2 years ago I started getting the niggly pains on my left side , and had more scans and tests , and was told that whereas it was once contained to one price of colon , it's now dotted all over. I've managed to cope with it until this latest flare up, and it's knocked me for six this time. As for diet, I have eaten mostly what I wanted but always with moderation and variation. I'm now slowly on the mend from this flare and have declined seeing my surgeon again as the longer I can cope without the surgery the better. Hope this helps and please contact me again if I can give you any more info 're the surgery.
Hi I was 56, and I don't regret the surgery as I had 9 years symptom free but I wouldn't like to have further surgery now as I don't think I'd get away without a colostomy again. I just try and eat sensibly and in moderation and take fybogel to avoid constipation which is my biggest enemy.
Thanks for the reply Val, I may have already said this but I had irreversible scar tissue built up and had to have mine taken out yesterday and I'm 26. In trying to figure out how to never have another flare up. I do think the odds are against me since it was to point of having to have surgery, I'm afraid it will come back. I'm wondering if eating a lot of fibre will keep pressure levels down enough to keep them from forming?
Hey how was your day? Did they let you have anything to drink yet?
Yes this morning I was able to go on a clear liquid diet. I have drank tea, ate jello, and broth 3 times today. I have been drinking water in between and a Dr pepper. I'm really sore but its really not nearly as bad as a flare up. My biggest complaint is probably this dern catheter but it is supposed to come out in the morning. Thank you for asking.