Nothing new, still dealing with the same stuff and I can't believe this nightmare is not over. I just had a massage this past week and they said my upper back and neck are so tight and "how are u walking around like this". I still have a hard time believing this is all from my neck and tight muscles but that's what I keep being told. I feel so bad some days and no improvement with the 24/7 head pressure. Maybe one of these days I'll get a cat scan just to be sure.
I was waking up with a headache and going to bed with one, so there was no oxygen going to my brain. I think you need to go see your Doctor as soon as posible.I been using a CPAP for about 1 year now and it did help with my headaches, hope you feel better
Stumbled upon you post because like you I'm looking for answers. Unlike you, doctors don't scare me.
I've been in & out of check ups and seen various specialists since Thanksgiving of 2016, so far 2 ENT's have pointed at Meneir's syndrome (which I defiantly disagree with) and another has pointed moreso at either a cochlear disturbance or draining.
Beyond that I have been on prednisone, ranitidine & triamterene for almost 2 months. The prednisone is a nightmare blessing. I have never been on steroids before in my life so 20mg/day messes me up. Yet there is no fullness in my ear or pain throughout my head or neck.
I did pull some help from friends in the pharmaceutical field and they pointed out increasing potassium intake and watching sodium levels. Also to increase immune system support either by supplement or foods.
With that I've written off any fast foods, sodas, pre-workout mixes. Added plenty of vitamin c rich fruits & vegtables. All cooked meats are low in fat or trimmed and drink tea & water.
Not at 100% while these Dr's try to figure out what is wrong with me but I'm preparing for a bounce back that would embarrass Lazarus.
Your symptons sound very familiar to me. Mine come and go - I found that my chiro helps relieve the skull pain with neck manipulation. I understand that the facial tingling is related to the nerves at the base of the skull around c1.
Some of the tension could also be related to Anxiety. I have that as well - general anxiety disorder. This comes and goes and is usually related to how I am feeling about my health! My doc told me about cognitive behavioral therapy - this can help deal with the anxiety, so I am embarking on that to see if it helps. It could be worth your considering?
All the best anyway.
Same symptoms for about 2 months now, went to a neurologist today and they said I might have Post Concussion Syndrome.
Hi,
About 4 months ago I stopped seeing my chiropractor due to wanting to try Osteopathy instead. A the chirpractic apointment they would adjust my neck most to one side and my lumbar aswell, after a couple weeks of not seeing the chiropractor I had noticed a pain in the right side of my neck and had really tight neck muscles and always felt the need to crack my neck and stretch it. It has gradually become worse and I feel somewhat similar symptoms to you in that my right ear always feels blocked and I find it harder to hear, as well as in my right eye I feel like one of the muscles is tight and I tend to roll my eyes around to stretch them and it relieves the tightness.
I was just wondering if you have tried an osteopath, as I have had two treatments only on soft tissue in my neck and it has seemed to really help, I didnt let them crack my neck as I didnt want to aggravate the condition but they said my C2 was slightly out, rotated and dropped. I am going to let them try adjust my neck at my next appointment and see if this helps,
But I think in your case it could be neurological and would be interesting to see what they would have to say also
Thanks
I've been having similar issues which started in fall 2016 but worsened in the last few months. My experience is on the left side of the head and eye, where there is almost always always a feeling of discomfort and puffiness, feels swollen, left face feels numb. Sometimes I experience headaches in that region where it feels like someone lit a fire in my head and it's sharp shooting burning pain at the entire left side of my head and increased eye pain and pressure on that left eye. These are not migraines but I'm also a migraine sufferer. These headaches impact my ability to do daily tasks include working, I have poorer balance and coordination, mildly slurred speech, dizziness, sometimes problems walking straight, stumbling. I've burned myself twice while trying to fix simple meals during these headaches, sometimes tearing sometimes on left eye. I've seen a regular neurologist who cleared me, then a neuro ophthalmologist who cleared me (with the exception that I have to repeat an eye test to check for glaucoma ) and over the last month I'm seeing a headache specialist who is also a neurologist. My last MRI was February 2017 but I'm repeating the MRI in 2 weeks. The headache specialist has put me on Indomethocin over the last 4-5 weeks but im not sure it's helping- he's increased the dosage to 3 pills recently. I'm also on Rizatryptan as a "rescue" med which seems to lessen the intensity of the pain. The pain and sensation while it's always there , the headaches are sudden and without warning ( which is what the Rizatryptan helps with). I'm also looking for answers because I cannot live like this. I wish you all luck. Hope we all get better soon.
Ok I have all the symptoms everyone is talking about, I have gone to a neurologist, I have had an MRI, I've been on the steroids, I've been on the muscle relaxers, and have had a PT work with my neck for six weeks, that worked while she was doing the therapy but as soon as she was done the pain was still there. I have been told I have Meneires as well, as it started with loss of hearing in one ear, but that was also believed to have been caused by too many decongestants perscribed by my primary physician for a severe cold i had. I have done the chiropractor adjusting my back and my neck, that works for a temporary relief. I have been told it's my posture and seen a PT for working on strengthening that. I wish someone could tell me what it is caused from the discomfort/tightness in my left side of my neck. I've tried different pillows, I've moved my monitor at work, adjusted my chair, nothing seems to work. ANYBODY have any clue what this is?
I'm still waiting on my MRI. In the meantime I saw optometrist who said severe astigmatism in Left eye (which can lead to headaches)
My MRI is coming up( I will keep you all posted on the results)
VERY IMPORTANT: my Vitamin D levels are low (now starting D3 ) and my Vitamin B levels are Very high (stopping my Vitamin B complex which one neurologist put me on) . The current neurologist who is also a headache specialist is the one who's Checking these levels and he says overload or deficiencies in Vitamins could cause headaches
Last week I lost vision for several minutes in my left eye as a result of headache (like a migraine symptom) and my right eye was blurry.
What's the latest?
Well my MRI came back normal, my hemicrania nerve seems ok. The headache specialist/neurologist now addded Magnesium 500mg
Saw ophthalmologist this week he's sending me for vascular work up. Kind of checking to see if TIA type thing could cause the vision loss which they called amarousis . In the process of doing that cardiovascular workup. They also added a baby aspirin which my cardio agreed with until we know more. I have Mitral valve prolapse and never had an incident. For the record I'm healthy and exercise eat right etc, no abnormal sugars or lipids ever. Seeing neuro-ophthalmologist in couple months . They said my presentation is atypical. My repeated field test came back with normal results. I am doing everything they tell me but nothing changes. Last visit with the headache neurologist which was last weeek, he suggested licocaine injections during the flare ups - not a fan of the idea but we'll see. He also gave Raglan for the headaches. Still struggling . I really hope others are finding answers
Have you gotten any answers yet? I've been dealing with this for several months now and I'm getting worried. I thought it was a sinus infection because Iv'e been having this popping sensation followed by some extremely short term relief.
Hi . Wow I can't believe so many of us are suffering like this. No real updates since my last update 14 days ago. I'm due for a repeat echocardiogram in 2 weeks, seeing the neuro ophthalmologist around the same time, retina specialist in August, they said my case isn't typical so meaning they have no idea what's causing my headaches. The eye specialists are working to determine why I lost my vision (it was during a headache episode)
The headache specialist hasn't given me any other plans except to try lidocaine.
What have your MDs said?
Have you researched Occipital Neuralgia
Having some of the same symptoms as all of you. But some different. Mine isn't so much a headache as it is tenderness on my right side though. Swollen lymph glands at base of skull onright. Tenderness extends up into my head on the right side under my ear kind of. My ear does also feel kind of weird inside and the pain radiates down from the lymph node into shoulder muscle. Almost a numbness there where my neck is swollen. . Noticed the discomfort slightly yesterday. But woke up this morning with it really seeming extreme.layed on an ice pack for a bit. Then in a heating pad. About to see if my tension headache relief pills will help any. Though like I said not a real headache. I'm trying not to worry about it. But it does feel really weird. I'm sure stressing doesn't help it heal. Just glad to not be totally alone in this. Even though your symptoms are a tad different. Thanks
Sounds so much like me. I stress over health. Last week I had an ultra sound on my neck. Nothing. He could see nothing, yet I feel the knot and the aches in that area as well as the ear discomfort still there. Facial stings still Goin on. But catscan, and ultra sound shows nothing..they all say a muscle in neck is what I'm feeling. Ibalso have had tinnitis since the catscan last year. Got it the day after the catscan. Next week I'm Goin for a scope because also get a feeling like something in my throat. Globus I think they call it..after this, I'm done. I'm tired of worrying and stressing over this..
I can so relate. Mine feels just like this. I also have a knot on my left side of neck..but catscan and ultra sound showed nothing but a muscle..3 drs told me it's a muscle from tension. Yet I get little pains at bottom.of skull, sometimes little pains in my left eye. Going for scope thurs for my throat which feels like it's swollen or like something in it..Jeesh, it never ends
It is a lymph node.
You've had an MRI? Let us know more about the results from your throat
Have you gone to the MD? What have they said? The first thing I did was go to urgent care because my MD was unavailable. You should definitely get checked out