For about seven years I've had LS. About four years ago I started having receding gum problems. A year ago my dentist found that two crowns had decayed between the crowns and the teeth and had to be pulled. It's been a year now and the pain is intense. One of the teeth had such deep roots that one root had to be drilled out after the surgeon found it had broken off. The rest of the teeth are now exposing part of the roots. I've lost 20 pounds because if I eat anything and it touches the exposed part of the root I have sharp shooting pain that goes up to my cheek bone. Just wondered if anyone else had such a problem. I'm at a point that I used to eat and enjoy food but am afraid to eat anything anymore.
I had it too. Receeding gums. But I started to first brush my teeth with a little bit of baking soda, later borax. Then rinsing with a few pinches of borax. All is healing well and the teeth and crowns are slowly recovering. At least I can chew normally again. LS down below and LP in the mouth. It's not fun.
Lp in the mouth how is that possible.
How do you get LS? How is that possible?
You ladies need to google lichen sclerosis vs lichen planus . The latter is oral.
Hello again Beverly, by chance a male that I was advising on the Women's Health / Lichen Sclerosus Forum sent me a link to an article regarding Oral LS. So generally you are correct, there are very few reported cases, and it is therefore defined as "extremely rare" - but is potentially possible. In these cases it can be present purely in the mouth, but sufferers most often have the usual LS issues of the anogenital region - oral does have the tell-tale whiteish patches too. The article has a little general information on LS and is freely available if you use the following search term: . - Lichen sclerosus of the oral cavity Case report and review of literature - Journal of Dermatological Case Reports
Pat, I don't know whether you live in the UK, but I wonder if you have had a consultation at your local Dental Hospital? Dental Hospitals obviously have a great deal of specialist knowledge, and at least part of their role is to teach the next generations of dentists, so they are aware of all of the latest techniques and treatment possibilities .......
Wee, the National Center for Biotechnology says "Lichen sclerosus (LS) and lichen planus (LP) are both immunologically mediated diseases with a preference for the genitalia.....The main difference between the two conditions is that LP has a propensity to involve the mucous membranes including the mouth and vagina which are rarely affected in LS. ....Erosive vulvovaginal LP is more challenging to treat. Second-line therapies include topical calcineurin inhibitors and systemic agents".
So, yes, apparently it's possible but not probable to have LS orally and it requires a biopsy to distinguish between the two(?) I still can't quite figure out the difference other than "mucous membranes" so I am now assuming a woman can get LP vaginally which is an extremely unpleasant thought. I'm pretty sure people who have posted have only mentioned their oral issues being LP. Maybe people with diagnosed oral LS will post. If I understand Hanny's post correctly she has LP and LS .
Pat, has your dentist identified specifically what you have orally? Sounds as though a biopsy would be required. Have you been given any oral medicine to control it? Wonder if he has dealt with cases of LP before. Has he/she said?
Thanks Hanny, You are right about "no fun." I have had both my dental surgeon and my Gyno do biopsy's and they show positive. I'm 81 so everything aches a little more but the mouth is really painful.
I have used borax for the vaginal area and never thought about the mouth. The dental surgeon gave me a script for Fluocinonide to rub on the gums, swish and then spit out. To tell the truth I was so involved with one of my children's problems I let my mouth down.
Thank you, I will try the borax.
Luck to all with this problem.
Bless you Beverly. I will be on it with all my doctors.
In this case two are not better than one.
Pat
Thank you again. No I haven't sought help through a Dental Hospital. Honestly I thought everyone would eventually have the ( LP?) Guess I'm just lucky. Pat
My dentist has given me Fluocinonide 0.05%. It does help but the stabbing pain is so bad I am using it every AM & PM. I had the condition before but the removal of the two teeth increased it. I have a lot of crowns due to the fact when my teeth were coming in I had Rhumatic Fever. If I lose another it would scare me to death.
My dentist has given me Fluocinonide 0.05%. It does help but the stabbing pain is so bad I am using it every AM & PM. I had the condition before but the removal of the two teeth increased it. I have a lot of crowns due to the fact when my teeth were coming in I had Rhumatic Fever. If I lose another it would scare me to death.
pat, was it positive for LS in the mouth or LP? I have had a few canker types sore on the inside of my bottom lip the past couple of weeks. Can't remember the last time I've had one. Now I'm starting to wonder....
pat, I think receding gums is very common with age. My father had great looking teeth but was a heavy smoker and clearly afraid of the dentist. By the time he got to his 80's he lost many of his teeth. I think LP is a whole different issue though. "....Lichen planus affects approximately 2 percent of the population. Although the disorder may occur in all age groups, women over the age 50 years are most commonly affected". American Academy of Oral Medicine We ladies are way ahead of the men when it comes to auto immune issues. Lucky us. Wonder if anyone has a theory as to why. Sorry this is happening to you.
Hi Beverly,
Yes I've had 2 biopsy's. One by my Gyno for LS and 2 for the LP. Both came back positive.
I do believe I have had the LP for longer than I thought and the dental surgeon agrees. I have had blood red gums for several years. The trama to the mouth in having the two teeth pulled just brought it to a head.
Getting used to oatmeal and mushy food hopefully for awhile only.
Lichen Planus. In fact I had a biopsy by another dental surgeon take a biopsy and when I went in for the results he said both biopsy's were malignant. I told him he only took one biopsy and he said I seen to remember that. I then went to another dental surgeon and he took one biopsy and sent it on to three labs, one being John Hopkins. All three came back with Lichen Planus. I have also been battling a UTI for four years and am in the process of taking a low dose antibiotic for another 90 days. Seems like the plumbing is going crazy. Other than those things going on I am very healthy just very uncomfortable.