I am also relieved that other people are having similar experiences as me. I don't have an understanding husband and as a grand finale of not having sex for so long and all the ensuing arguments he smashed up the house last night and has now left me, he's convinced that I've got something much more sinister than this and as sex is so painful we have stopped, this was replaced with major arguing. We've only been married three years. Often I even dread passing urine as the pain is so bad it brings tears to my eyes. I wasn't diagnosed on NHS and had to get a private referral in the end. The GP's I started with hadn't a clue. but it was worth every penny of the £200 I paid to go private. I wish I could have the operation too. I am out of my mind with the worry of it all. I couldn't even have a smear test as the nurse couldn't get the equipment up. I don't feel like there's any future for anyone who suffers this, dermovate does relieve the pain and reduce swelling. But there must be more to life than dreading the impossibility of sex and dreading having a pee, every day of your life.
[quote:f8bb397ac7=\"Prada\"]I don't have an understanding husband and as a grand finale of not having sex for so long and all the ensuing arguments he smashed up the house last night and has now left me, he's convinced that I've got something much more sinister than this and as sex is so painful we have stopped, this was replaced with major arguing. We've only been married three years
What a great husband (not)
What an awful, selfish man. I am so sorry to hear how unsupportive he was.
I hope you have found solace in some of your friends or family. Make sure you get the help you need on the NHS, LS can be managed really well, and with the right help you should be able to get relief from your symptoms.
Good luck.
I've read elsewhere that pouring some warm water over yourself helps to take away the pain of urination. Hope this helps