Hi, just had a letter back from the hospital saying that my ph test was positive, and he's willing to refer me on for surgery. I'm just not sure which way to go now. Do I opt for LINX or Nissen? I know there's quite a few had both so just looking for a bit of advice. Thanks.
You can't have both, if you have had nissen it's non reversible and you can. Ever have LINX if you have LINX it IS refers able and you can have nissen but no one in their right mind should have nissen, I'm 12 weeks post LINX and off all meds I feel fantastic and it's laparoscopic Nissen is a major invasive surgery where they wrap ypur stomach around your aesophogus You can never burp again nor throw up the implications are great and it's a very scary procedure
linx is a totally new procedure but the critaria is sooooo strict
hope this helps
Sorry, realised that it would read like that but couldn't edit the post - meant to say that some had had one, some had had the other.
Hey Lovelane, did you have it on the NHS? I know you have to meet criteria. My consultant says he's not convinced by it but I am leaning this way as the recovery period is shorter and I have a 2 year old son. I want to go in armed with info if possible.
Yes I had it on the nhs. Not all hospitals do it, why is he not convinced ? It's a groundbreaking f procedure
I don't know why he isn't convinced - it's something he said in a previous appointment that I need to ask him about. Did you get referred out of the area you live in? I think there's only 3 nhs hospitals that do it. Just wondering how I go about getting referred to one of these.
Stella
Before we go scaring everyone. I would like to say there are a lot of people who have had Nissen (I had mine 6 weeks ago actually) very successfully.
I can burp, eat perfectly normally and was able to vomit (albeit liquid only after a self inflicted evening out). I also had my HH fixed. I have a great gastro surgeon who is very experienced. This op has been done for years and is proven to be fine (as long as you have a good surgeon). By he way Nissen is done via keyhole and I didn;t even need painkillers after 2 days
I was in the same dilemma deciding which to go for. Not being able to have an MRI scan and there being no Linx data post 5 years surgery made my decision.
It is a difficult decision to make but please do not be put off by Nissen.
Good luck
There are very helpful Facebook groups for both LINX & nissen, I can only tell you what my surgeon said, " nissen is a very invasive procedure" you must make your mind up, everyone and I mean everyone who has had LINX are happy with it, I don't think the same can be said about nissen, yes it's right you can't have an MRI procedure as it's a magnetic titanium band they implant but you can have ct scans and other investigations,also there is a new MRI device which I have Been told will be available in uk hospitals within 3 to 4 yrs allowing LINX patients to have mri
this os only my opinion and I'm biased but I think if you research both you will side with LINX every time
you have the right to be treated in any nhs hosp in the country you just need your authority to refer you
I had a consult on the LINX a few months ago. Seems it is a fairly new procedure and not many doctors in my area have preformed the surgery. There was not enough clinical data out there for me to take that risk on this new procedure. I think the main concern with some were the magnetic beads eventually going thru the esophagus.
The Nissen as I was told by my surgeon is the best tried and true method. I havent decided to have this done yet but if I do I will probably go with the Nissen because I wouldn't want a foreign object around my esophagus.
Andrea (USA)
Maybe you should look on the Nissen & linx sites what about pacemakers and artificial hips and pinned shoulders etc ?
Foreign bodies yes but also lifesavers I'd rather suffer reflux and gert than have Nissen those doctors that offer Nissen do so because they can't perform linx. It's far safer and less intrusive abd most of all it's reversible. Nissen means your stuck with it don't take my word for it research it yourself it's a no contest
Ask 2 or 3 surgery specialist doctors about LINX or Nissen. If you have hiatal hernia it is posibile that LINX is not very good.
I had linx I also had a 4cm hernia repaired at the same time
I have previously had STRETTA which doesnt seem to have worked as my pep test showed I was still refluxing so I am keen to try LINX and have the hernia repaired at same time would be wonderful ! Are you able to now eat and drink normally ? Can you tell me whereeabouts in UK you had your op done ? Thanks x
Thanks moonbuggy. It makes me feel better to see how you are doing, in case nissen is the route I take
I've heard the criteria is strict- what exactly is it? Plus where did you go?
Having had LINX 3 months ago I feel fantastic I can and now do eat and drink anything I want, no more meds either
i had mine done in the royal Devon and Exeter on the nhs I would recommend it to anyone thought the critariaas I've said is very strict
there is no way on this earth I would have nissen it frightened me whe it was explained and it scares me even more now I have spoken to many who have had it.
What was the criteria? Can you remember any of it ?
Great - I am in Torbay and I think I am Ok with the criteria having read the website - can you tell me who your consultant was ?
The critaria is you must not have barretts and there are several tests first to see if the LINX is suitable. They are. Barium swallow, ph test , mamiagram. There are more but the consultant is mr wajed, there are links to him on the RD&E website. I'm in budleigh so it's my local hosp
Anything you need to know please just ask I'm eternally grateful to mr wajed, I saw him Friday for my 12 week follow up and I'm part of a study to gain stats.