does anyone in the uk take lodotra for polymyalgia
I was wondering the same thing. I was going to ask my GP about whether she would give me a private script for it. I was also wondering about how much better it was than the normal immediate release pred.
Hi, I have not had a lot of luck regarding Lolotra, I know Eileen from Italy takes it and Barbara from Manchester but have not heard from anyone else, I have done as much research as possible and believe a couple of rheumatologists who specialise in PMR will give it to people who have problems taking regular preds but I really dont know I am seeing my Rheumy tomorrow and asking him if I can go on them privately I know the NHS will not pay for them and am guessing that this is why the trials have not been done in the uk, it has been passed in like 12 countries in europe,and defernately in the USA, sorry cant be of more help, for me health has to be number 1 and if these are better for me then I would be willing to pay, if anyone knows anymore please reply as soon as possible.
I believe that trials have been requested for PMR in UK but I notice some local areas try and discourage the use of Lodotra for rheumatoid arthritis, which has been passed, because of cost, suggesting the run of the mill pred instead. I have not got a GP appointment until the end of August. Five week waiting list now at my local surgery. My little brother said he would help pay for Lodotra which I thought was so kind.