How do you all cope with the loneliness this illness forces on you? I feel very isolated. I have a partner but he is backing off from me as my illness progresses. I've suffered with social anxiety for a long time which has never really gone down well with my other half. I feel he's blaming me for stoping him having a life. Not that I stop him doing anything. I don't think I've ever felt so lonely in my life. I've been through tough times. Times I never thought I'd get through but this is hard x
It is a horrible illness that can make you feel isolated, I hope your partner will come to realise how hard it is for you and stand by you. Please a good talk is needed here. When you I hope have good days make the best of them. Try and also see the big change of life style for your partner as well.
Good luck lets hope some medication will make you feel much better.
Cheers Rosie
i have the same , n understanding at all , when sex became a problem due to pain and fatigue i suggested going for advice because they know ways around things that yu proberly havent thought of, but he wouldnt go,
so now we sleep in seperate bedrooms and havent had sex for nearly 3 yrs,
i to feel really lonley and a lone, try and get him to have councilng as a couple if not then yur proberly end up like us diveded barely talking , and a lone together.
sorry cant be of more .
Thanks for your replies. It's sad that it becomes this way as you should really support each other. I understand it's hard for him too but I just feel I'm not getting any support and feel alone in dealing with this. I've told him I feel vulnerable and scared but it's made no difference. Ho hum.
me to your not alone, if i was in love with someone i would walk over hot coals for them not blame them for being ill. but sadly everyone dose not feel the same
. talk if you can my husband wont he just says really hurtful things like if your not happy you know where the door is,
so we dont talk except for day to day things , it makes my condition worse ,but houses arnt selling so got to put up with it. till the market picks up and we can sell and go our seperate ways, or one of us dies.
which ever comes first.
That's so sad Tina I really feel for you. If it's what you want I hope your house sells quickly so you can start a new life and feel contented. I get worse too when feeling stressed so I can understand how you feel. X
its not even on the market yet , cant get him to finish the decorating , i had someone in to do it once and they made a right mess ,and i am not up to it so we are at stale mate for now.
i long to be in a loving relationship , with the same interests , and lots of cuddles but proberly not going to happen i know i sound like a right old misery , i am not just so tired of being alone , as AL Green sang about in the 70s.
If your a right old misery than so am I :-))))) maybe we should start a club :-) x
yes the tired of being tired and in pain club.
Hi there loneliness firstly ITS GONNA BE OK .........
ITS NOT YOUR FAULT , it's not up to you to deal with this go online and look up a letter from a FYBROMYAGIA sufferer it's quite good to give to people around you I fond it helped no one understood me and I live in the middle of no where so put it in the local shop they soon started to realise who I was and now people are a lot politer look it up see how you get on and remember YOUR NOT ALONE
I'll be in your club piggin men ... Two things to remember girls ... WHAT HAVE MEN AND BEER BOTTLES GOT IN COMMON ,........ there both empty from the neck up.....
ALSO IF WE TREAT THEM AS ADULTS THEY WILL LET US DOWN SO ....... treat them as children that way anything above is a bonus lol think about it girls next time you look at them bet you smile mmmmmm
iv never heard of this ,but i wouldnt have the confidence to do what you did , i am embaresed my self about the condition because people link it with laziness and we all know its not true , but you can see people thinking ah just another excuse to be lazy . so itry not to tell people there only interested if it affects them just like my family. but i will look it up .
You don't have to put a name on the letter but just one person has to read that letter and understand it to know you they will then pick you out of a crowd from that letter alone not LAZZINESS ..... Look up the letters they are so good xxxxx
This made me laugh out loud x
Wow that was very brave of you and thank you I'll have a look x
men dont comuncate thats the problem.
but your right most men are pigs selfish ones, thats why natrue made women mothers.
Tired Teddy & Mrs doodles,
pardon me UR names on this thread & only the names, not the context , but scrolling the page rapidly seeing UR two names repeatedly in conversation..that's a good thing ...though I didn't eves drop on UR conversation. The names popping off the page as I scrolling down the page looked like some type on Disney character script..made me giggle! I needed that.
thankxs 
Hi Tina,
just popped in, hope u don't mind this interruption. This subject is rarely discussed. The loss of our health also has many losses in other ways. Heartbreaking and sad to know that we cannot get back what we were. Yet grateful we had some much when we could share our live more intimately. Life is a gift..
I have spent many sleepless nights realizing my illness has made a difference in our 33 years of marriage. I cannot bare the thought of not having my partner in my every moment of every day. I almost panic when I feel all the loss of the life we had in our youth.im very sad .
Yes I feel the loss it's so hard and so raw. We talk about it and each time we make progress. It takes time as we both have many health issues which just keep piling up.
We try to do one thing each day to make the others day brighter. A flower from the garden, or things to share from the web, even the dogs get in on the act. They help too!
I'm glad we made you laugh and now you've said yes we do lol :-)