Hi Sickanon,
I was diagnosed in October but when I think back, I had a virus in June/July that I wrote off to flu ect, so I really think I had been sick longer than I thought. It is very wearing on the spirit to be sick for so long. I did feel just like you scared to death of chronic fatigue, it is different for everyone, but you will recover, as hard as it is to believe now. I still remember the first day I felt a little normal, it was so strange and it didnt last long but at least I knew it was possible
. Another issue I had was low vitamin D, so statred taking supplements, I also drink green tea.
Message anytime this board is a great support system.
Thanks for your kind words. I have been sick for around six months now. The thought of being this sick for another six months ( or permanently ) is pretty frightening. Hopefully I will see some glimmer of recovery soon.
I have also spoken to my mom about some of what I've posted here. She still thinks I'll recover, and refuses to seriously investigate the possibility of Chronic Fatigue Syndrome till I've failed to recover within a year. I don't have the means financially to fund any further medical visits, so I have no choice but to wait for now. I will probably post here more, it's good to talk to others who know the reality of this debilitating illness
Hi Sickanon,
I felt the same way at six months and then I started having good hours and then days and now I am feeling much better, it will happen it just takes longer for some of us.
Hi sickanon and all the others replying on this thread. It gives me great comfort to read anything I can about gf/mono. And that it is normal to have it for a year. Chronic fatigue was a fear of mine but after speaking to people and reading others experiences I realise you have to listen to your body and go with the flow and I will recover , I am determined to recover. My glandular fever was a really nasty 40th birthday present, I woke up,with a sore throat last oct2016, diagnosed dec2016, so approx 7 months in. I didn't have a sore throat, but I do now and I'm up and down, I had a fantastic 4 weeks in April but then it's been pretty rubbish since then, so tired, hot legs, nausea, feeling unwell. I have, to a certain degree 'let go' and just go with it now, seeing as I can't do anything else and am just wishing the weeks away until it's gone..... You will get better, it's tough, I know, I hate it. Oh and the emotional side is awful, I can be so teary, but I will say I am mentally stable and positive. It just makes you cry. Stay strong, just think, you're six months in and someone out there is just starting their journey!!
Hi 40,
The depression is as bad as the sickness, mine went away when I started feeling better, I knew I was not depressed in the traditonal sense and that it as part of the illness, not fun at all, just now starting to feel like myself again. Be careful not to overdo as you recover.
Hi monotoo, yes not depressed in the traditional sense. And def part of the illness. I am slightly scared about the not over doing it, I think when I do feel really great I'm still going to take it easy, as I said in April, I had four amazing weeks, thought I was nearly better, then wham, it hit me again, so scary and frustrating.thanks for replying and for the support.
caroline
Hi Sickanon,
It's so tough I know, just sorry to hear things have been so hard at the moment. Definitely be reassured that the first 6 months, what you have went through, is by far the worst - things might not still be perfect right away from here but you will find the intensity will decrease and things will get easier, hopefully bit by bit or sometimes it just comes suddenly in a short space of time.
But remember you definitely WILL get better, your mom is right you will make a complete recovery still. And there is no doubt in my mind about that - Mono is right too, trust those that have been through it and have been in the same horrible position of feeling lack of progress and hope - trust me that will pass over and new strength and hope will come again.
Trust in God and remember just take it one day at a time, that's all you can do and not look too far ahead. Just hoping for a good and settled spell for you from now on - thinking of you.
Craig
Hey Caroline,
Thanks for sharing your story too, it's such a horrible illness. October seems to be such a common month for getting the virus, it was the same for me going back 10 years ago. I was the same as you by the next June I was up and down, thought at one point I was making progress but then went right back the way again. But then after a spell in July when I had some weird joint pain and muscle pain, I started to see some real lasting progress starting from August - just hoping that can be the same for you (if not even sooner).
Just wanted to write to offer hope and reassurance, that you will get better too and you have definitely weathered the worst of this after this length of time - so frustratingly weary and long lasting as it is and must have been. Thinking about you and remember there is still full recovery and health ahead - 40 is young and lots of life and happy times to look forward to ahead. God will bring healing I truly believe 
Craig
Hi Craig, thank you so much for taking the time to reply, it helps enormously when you're going through such a difficult illness.i feel like you have given me the hope that I will recover fully.... All I want is my normal life back, the amount of time to get over it is just so long. Thanks again to take the time seeing as your illness was 10 years ago!
Caroline.
You're very welcome Caroline, I remember how tough and life changing the whole experience was to go through and like so many others on here went through those terrible and seemingly endless months of wondering what was going on and if things would ever get better and feeling hopeless and helpless - the worst feelings in the world.
But definitely Caroline it is normal I've learned for your body to take this time feeling this way with this virus and then still make a full and complete recovery - and I do believe that will be the case for you. Would also recommend taking some good vitamins and herbs to boost your system, a good strong multi-vitamin, B complex vitamin for energy levels, high doses of Vitamin C (1000mg to 3000mg per day), and an immune boosting her like echinicea or siberian ginseng. These can only help your body cope with things better and strengthen again.
Thinking about you and hang in there, and I do fully believe truly honestly and genuinely that you will make a full recovery! Trust in God with that one!
Craig
Another update. Woke up this morning with my left side (under my ribcage) feeling tender. (Kinda like a stitch.) Suspect that my spleen is swollen again, after my own doctor told me in April that it was back to normal. Going to a local GP tomorrow to double check. My mom also called my own GP and he said it's likely my spleen again and it's normal for it to swell up and down. I'm concerned though that it means my health is deteriorating rather than improving. And until it's confirmed for definite by the doctor tomorrowx there's the possibility that something else horrible is wrong with me! Did the spleen swelling coming and going happen to anyone else here?
Hi Sick Anon,
I remember having all sorts of aches and pains around that area, key thing is not to panic because the spleen is an area full of glands so it can be normal for it to be painful when going through this, but definitely wise to get it checked by the doctor, they should be able to tell if it's swollen or not - but just to reassure it definitely doesn't mean things are deteroriating, remember it's all a bit zig-zag and up and down with this, sometimes just weird aches and pains come but then they will go again equally and overall each day is still a day towards recovery.
I do still fully believe in your recovery today Sick Anon, hold onto hope and I believe God will bring healing for you. Thinking of you and hang in there.
Craig
Hi sickanon, yes, I agree with Craig, I've had loads of different symptoms, which change. I never suffered sore throats in the beginning but have a constant one now! With ulcers. def go to gp though, it's great to talk to someone even if it's just to reassure you that it's all 'normal' as part of this virus. I haven't had spleen ache or pains but everyone suffers differently. Xx
Thanks for all the support everyone. Latest update, my spleen isn't swollen. So it's just the usual GF aches and pains. My doctor has recommended a reasonably affordable psychotherapist who lives locally. At this stage, I figure it's worth a shot. My doctor reckons that my stress and anxiety around this whole illness is hindering my recovery, and that if we worked on that, my physical health would improve.
Hey Sickanon / Caroline,
That's good to hear that your spleen isn't swollen Sickanon, take that as reassurance because I know that can be really worrying in terms of even how you move and everything - so hoping that can help you feel a bit more settled. And remember those weird pains in that area can be normal with the virus, and that they come and go, and will go again and will get to a point where they will disappear completely and won't return.
Yes anything like that is worth a try, it helps to talk to someone for sure, be that a therapist or a family member / friend - the important thing is you don't carry all this yourself, because it's such a traumatic experience to go through it really helps if someone can listen, the folk on the forum here are good in that respect but it's even more important to have someone to speak to in person.
And most important to you Sickanon and to you Caroline and everyone else, I still fully believe in your recovery and remember even in the darkest moments when it seems like there's little hope or improvement, things DO and WILL get better, it is normal for it to prolong like this unfortunately but most importantly it is equally normal for you to make a FULL AND TOTAL recovery after having went through that - and today is another day away from the day of infection and another day towards full recovery. Don't panic if it doesn't come right away, because it will come, I fully believe in that!! God will heal!!
Craig
Another update from me. I have been having a very bad flare up over the last three weeks. I have been experiencing acute muscle pains all over my body, but particularly in my head and back. Also a painful pains and needles all over, but especially in my arms and legs. Painkillers don't give me any relief. (Parar and Ibuprofen). Has anyone else experienced symptoms like these from post viral fatigue? I am going back to the doctor again, but mu appointment isn't for another fortnight.
*pins and needles feeling
*paracetamol and Ibuprofen
Hi, gosh, yes, I had the pins and needles feeling in both arms and legs, when I was at my lowest. As I'm slowly getting better it does go and occasionally it will be just my arms that ache. I've also suffered from three really painful stiff necks. I am going through a good stage right now, but progress is so slow, it can sometimes be hardly noticeable!! I'm 8 months in now..... And I was really frustrated at my last setback, thb, I thought it wouldn't happen to me, but I'm improving again.
Hi Sickanon,
I had the aches and pains too and a strange weakness in my arms and legs, it is such a vicious virus, I have been feeling better, but still get low enegy days from time to time, It will get bette.r as hard as it is to believe when you are going through it. How long have you been sick? I didnt start to see improvement until six and a half months and even then it was not consistent.