Well no not a problem or good strength to go on as felt suicidal many times. I can't have any other biologics as after last one two months later I had symptoms that mirrored MS but lupus coagulation bloods tests etc showed I had sticky blood in brain .I now hospital now as had interruption to medication.mostly ok apart from can't walk without jerking so after 10 days and 34 ward moves I am down in haematology unit ward. These diseases suck
That should read 4 ward moves. .lol
I have been on it since September of 2014. I don't really feel like I am getting worse except I have more foot pain and lots of fatigue. So, maybe the mtx is working?
Gracious! I hope you have just great improvement from here on. Still on your lottery journey.
It's a whole new world to me. I hope your add-on improves things even more. Good luck.
To Sonya & All, you are all an inspiration to me. You are all warriors. You keep fighting this horrible disease day after day. After hearing your responses I know that I can handle this...but only if I take one day at a time. Thank you all.
Best of luck, I'm rooting for you! 🙂
ditto!!!!
Hi Sonya, I have been on 20mg of Methotrexate and although I have noticed my hair has thinned a little it has not affected me that much (although the hairs on my arms have thinned too which is good lol). My Rheumatologist has taken me off it now though because of liver damage. What I can't understand is that other people say they are on folic acid every day but I was only taking folic acid the day after the MTX. I wonder why they took me off MTX instead of increasing the folate to reduce damage. Since stopping MTX I have a lot more pain. I still take Hydroxycloriquine and now Cimzia injections so I hope it settles down soon.
I don't know Mary. I wonder if the folic acid thing is a recent research finding? Don't know for sure but I think I read that somewhere but could be wrong. Or perhaps it was too late and dangerous for your liver, just folic acid wouldn't make it safe. I was started on only one day a week folic and Rheumatologist put me up just the other week because of my hair and also nausea/sleepiness extreme. I haven't noticed it working but who knows. Cimzia will take 12 weeks to show an effect is that right? So I hope it is really good for you. My very best wishes.
What I meant was I think so much folic acid might be a new idea but really I am very new to this so I don't know! But I'm sorry to hear about your liver and I hope that damage can be healed now.
Thanks Sonya, I hope so too. I will know if it's working in a few days when I have my next lot of bloods done later this month. I'm taking St Mary's Thistle too just to try and help it along. I've also been convinced to take turmeric tablets for inflammation reduction by so many people that I thought I would give it a go. Ido miss the MTX though. I know some people have reactions to it but all I felt was good.