My endo has stated that my blood results have come back stating that I’m at the higher end of the normal range and has advised me to decrease from 125mg to 100mg of thyroxine per day. I’ve been on 125mg for 1 year and have told him that I’ve felt hyper all year but he told me not to decrease as my bloods were in the normal range until finally my TSH level has gradually increased month on month to a point where he now believes me. Any way, I’m wondering how long it take for me to level out at 100mg and will I gradually get better or will I be all over the place emotionally for example until I’m level or is everyone different?. Thanks
Hmm this perplexes me.. which numbers are at the high end and what is the range...generally as TSH goes up you would want more thyroxine to lower the TSH.... lowering your dose of thyroxine should cause your TSH to increase even more... is it possible instead of feeling hyper for the last year you have been in range but still hypo? So many of the symptoms can over lap.
Do you have frees with ranges? And definitely, everyone is different.
Sorry I meant my T levels not TSH. I don’t know which level was high but my endo said I was high.
Hi james,
It can take about 6 weeks at the dose to get a good lab result. Each day the thyroid hormone will get out of your system it's hard to say exactly how many days but you should start to feel better soon. I am super sensitive so I feel increased and decreases almost immediately.
Ok, thanks
Sorry why do you know SO LITTLE ABOUT YOUR THYROID DISEASE AND LAB RESULTS? Confusing TSH results with T hormone results...Please read up on your disease get copy of your labs and have some understanding of what they means. Before the internet it wasn't as easy to get info had to go to librairies, bookstores etc. READ UP.
Hahaha!! Wow mar75090!! Who do you think you are talking too?! Are you looking for pick a fight with someone in order to entertain your Saturday. Why has my post angered you so much? Forums are for discussions and if you don’t like what I’ve written just scroll on. It’s not hard. Do you own this site? No, so keep quiet if you haven’t got anything productive to say. Having thyroid issues can make you have a lapse in concentration hence my mistake, does it really matter that much of it’s a typo. NoNn Do you know how Unwell I am? No!! If we all knew exactly what was wrong and read everything ourselves then these forums wouldn’t need to exist in the first place and no one would ask for advice would they. Why are you looking at forums if your the type of person who goes to libraries and know everything yourself? Trolling maybe? It sounds like you’re unwell and might need to start a post in the mental health forum or anger management forum. Take care lol
Just trying to tell you to take control dont have a doc telling you he's making changes and you dont even know what your results are. Get copies of labs you'll need them in the present and future. Educate yourself YOU DONT HV TO GO TO LIBRARIES it is online...thats what I was saying. Youll get better fdedback when you know your results. 25mcg is a big drop find out why he lowered ....what results. It's for your own good.
Hi James yes very rude as well I thought , however move on no point wasting time on a rude person , you were only asking a question
This forum is very good but if you can search a forum called health unblocked . They will advise you and are spot on .
💕
If everyone knew everything like you we wouldn’t need forums would we
Good day
Sorry wasnt bring rude but just trying to convey to him that he has to learn about this life altering disease. That getting your lab results is EXTREMELY important. Understanding them just as important. And when a doctor makes a change without giving results.it is unacceptable . You have to be your own advocate bc thyroid disease is a lot more than your thyroid gland it effects every cell in your body. Ignorance is not bliss in managing this disease. Maybe months down the road both of you will realize this.
Ps. Did you skip your dose the day of testing and took it AFTER. the blood draw? If not then your results may not be correct. Sometimes my doctor does thyroid tests randomly and I took my dose few hours before. The results are so different than when I skip that dose until blood draw is over. Just letting you know in case you didn't.
Thanks Clare, I will check it out.
I appreciate that you think you are trying to help but if you have someone who is dealing with a disease like this and they have extreme brain fog and find it hard to concentrate then things get a little difficult for them, they might not know or have the ability to educate themselves around this as much as you have until their are well. This is why we try go to forums and the internet to find out. Yes before we didn’t have this tool but we have it now and it’s useful to use. You should know that when you write in capital letters it’s classed as shouting. I’ve seen your previous posts to other people on your history and I can see you’re trying to help
But very harshly may I add. How often are you on here in order to allow yourself to get that angry over a post. Maybe take some time off as responses like that aren’t helping anyone. Finally, you should know that if you are hypo you would normally be dealing with some depression or if you are hyper you would be dealing with anxiety. Both are terrible! Someone people come on here because they would like some reassurance as their mind is all over the place, they don’t need someone like you having a go at them when they are reaching out. It will make people stop asking questions as they think they may be stupid etc...! Be kind! Life’s hard enough as it is.
Mar is right. You really have to know what’s what with thyroid disease, if you want to have any chance of advocating for yourself.
I’m sure you are right but there is a way of communicating it. I don’t know why this has escalated into this for. All I want to know if how long does it takes for your symptoms to adjust following a levothyroxine decrease? That’s all.
Excuse me but I am trying just like James to understand my illness and we have to start somewhere , it’s folk like you that put us off asking questions on these forums .. and yes you are rude .....,
Hi james,
I am sure in Mars own way he meant well. I think it's really all in how it is put. Like you said!
I have had hypo since I was 16 I am now 39. I have been without my thyroid due to cancer for 20 years. So i have had my fair share of crappy dr and levels all over the place and increases and decreases. I had to do tons of research. Like when I was prescribed levoxyl and I went for my refill of the med and started having symptoms I found it changed manufacturers and they had a filler added that I was allergic to. My doctor wouldn't have known that and i had to tell my doctor. I started getting all my labs and writing down how i felt on each one of them. It's a great reference because i dont fit their stereotypical ranges. I feel better toward hypothyroid range. So definitely start doing that so you will see where you feel the best. Keep it in a folder and take it with you to the doctors cause your working as a team to make you feel well again.
Ps I had a 25mcg that I didnt want many years ago. The doc said that this will relieve my bodily pains that I complained about. I was working at an extremely busy stressful job that I also loved. After a month had my TSH done with other labs at a diff office. I started to feel even crappier than before the decrease. It was really hard to get my results after calling numerous times. Finally got voice msg that everything was OK. But I didnt feel ok. Few weeks passed and I felt so terrible and could barely keep awake. Finally I called tht office back and asked for my TSH.results they were 35!!!!! That's why it's so important to have your results. If I had seen the results or asked for the numbers at least I wouldn't have suffered for months esp working at an energy draining job.
Ps A 25mcg drop may be just what you need, but it's a big drop. So if you start feeling.too hypo get your thyroid tests done ASAP. Why wait for x amount of time when you know there is something not right . A 25mcg drop was not right for me but I didnt feel like I needed the drop like you.