Lupus and Working...Need some advice please!!

Allergies, blood and immune system
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Hi everyone, I'm Annabelle and I'm 23. I was diagnosed with Lupus when I was 10.

So the last year or two I have been really struggling to get a nice steady work balance and find myself in a constant cycle of:

New job, Over doing it - Having to leave or go off sick - Starting a new job (part-time) - Pushing myself to do more hours/Days etc because I like to be independent and support myself financially - To then ending up having to leave due to the repercussions of my S.L.E. 

I think that realistically to keep a steady balance and stop the silly cycle, around 20 hours a week would be pretty perfect.

I currently work with Autistic Young Adults as a support worker but its finally become apparent to me that this really isn't a sensible option due to physical and emotional stress.

I don't receive any benefits of any kind as I've always been too proud to as (silly I know) but in my mind its almost like I'm defeated! 

I also don't hold any formal qualifications as I was diagnosed during my time at school which had an impact and left me not being able to sit my GCSE's. 

So basically guys, I'd really love to hear your stories or some advice on what I could do career wise. Also because of the affect my Lupus has on me (not being able to hold down a full time position) would anyone be able to advise me on whether there are benefits that would help me slightly financially?

I don't usually talk to anyone accept from my Mum about all of this as its really having an effect on my pride etc so would be amazing to be able to speak to some of you.

 

Thank you!

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First of all don't put so much pressure on yourself. Lupus can be a very dibilitating illness and especially in times of Flare Ups.

I use to be a nursery nurse but found it too much lifting babies and up and down off the floor all day long.

I am currently working full time in an office. I find I struggle through-out the summer as this is when my flare ups occur.

Have you thought about a reception/admin/office job as usually they can have hours to suit.

You could also try do a spelling/grammer course and basis computer skills to get some qualifications under your belt.

I am the same as you being only 28 myself with a mortgage I don't want to claim benefits so I have never looked into it.

If you could get in with a local gov/nhs/schools etc they also pay sick pay which is something I don't have at the moment. Taking time off does affect my wages massively.

I am sure if you enquire with the local council etc they would be able to point you in the right direction on jobs, courses, benefits you can claim.

I hope you manage to find something honey!

Big Hugs xxx

 

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PS - I have only just found this forum myself but liking it so feel free to get in touch as and when.

Sometimes it's nice to speak to someone different.

smile

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Hi, I have worked 30 yrs full time, but I really did push myself!!  to do it, now 50 I don't work as I gave it up. Just not well enough to continue any longer. The key is to pace yourself and get lots of sleep. I hope you can find the balance x

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