I have just come back from a dermatologist! She told me to ditch the douching and the coconut oil. I have lotion to put on and a different cream and not CLOB. I have lychen planus she said in my private area with a rash near. I mustn't have stress and I am also severely anxious. She recommends I go back on HRT and also that I see a psycho therapist! Sigh! This is the first day of the rest of my life........
I must get better now!
I have taken proper steps.
Hi Powerwoman
So do you have both Lichen Scleroris and Lichen Planus? Or just Lichen Planus. Did they tell you how to tell the differnece? I am glad you are getting some answers and hopefully some releif. I don't see my specialist (gyno) unti April. There are no Dermotologists around me that handle these diseases.
Hi power women
Hope your feeling more positive now you have seen the dermatologist, have you been on hrt before if you have did you find a difference with it.... How old are you do you have oral lichen planus as well X
Hello
I am 60 and was on HRT for many years since I was 40, as I had to have a total hysterectomy due to peritonitis. This was due to a failed IVF treatment that went terribly wrong. I nearly died in fact. Apart from that, I have had breast cancer, which I am clear of now. So all in all, I know about illness, and pain. This problem seems worse in some ways, as my immune system is fighting itself! I do feel that it was good to see the specialist and will feel better when I get the new cream tomorrow.
I think that psychologically if you douch with water and bi carab every time, it is damaging to your mental health, as you can't get away from the illness. In any case, it didn't work for me. I accept it does for some.
I don't have oral lichen planus, but I have oral thrush presently she said!
Karen, how old are you? x BTW my name is Jan. x
Hi Sue
This is how she said to tell the difference between LS and LP. If the white patches, are the same all the time, and do not change, it is most likely LS. If they change and sometimes are in one place, and then another, it is most likely LP. Also you can get a rash with LP. LP is more difficult to manage she said. Which do you have. Regards. Jan x
Sue
Where do you live that there are no dermotolagists?
Everywhere has these specialists???
You must get one if you have the problem?
Do not delay. This can be a serious illness.
Hi Powerwoman
I live in Edmonton, Alberta, Canada.
We do have dermotolagists but they don't like to deal in anything with the genitals. At least none in my area do. Seems like a catch 22 as we get referred to Gyno's who somewhat now about LS/LP but say it is a skin disease. We cannot also not just go to a specialist we have to be referred. I was sent for a referral to a Gyno last Oct/15 and just got the appointment set for April 11th. I am currently in Phoenix and was having a flare-up (more bum area) so was able to get into a GYNO right away. She immediately prescribed CLOB without looking at me. She did then examine me but only said it looked like I had Yeast and she did not see any white patches. She also asked if I always 'looked like that' down there? I was never in a habit of looking down there so I guess I am a little ignorant in how I should really look. Now I do look and can see that my labia minora seems smaller and little white spots are appearing on the edge and down fold of the labia majora. This whole thing just confuses me and I feel quite stupid
Hi Powerwoman
I had a biopsy and was told it is LS. But when I read reviews it said LS/LP can't be told apart from a biopsy. I do not have a lot confidence in the Doctor that did the biopsy. The while patch first was towards the perenium. That seem to clear up and just be red. Now I have some small white patched at base of vagina and inside the labia majora at the base of the fold and tip of labia minora just some white dots
Hi Sue
Is the clob working for you?
If it isn't, when I get my medicine tomorrow I could let you know what it is.
You aren't stupid. Do the spots change location or stay in the same place? That is the quesiton to determine whether it is is LP or LS
does it itch or is it painful?
Mine is extremely painful?
I just starting using the Clob yesterday. The spots on the labia were new. I will watch to see if they move. I also used the Clob around the anus area which is my most itchy and annoying but got a lot of burning. Others have told me not to use it there. I now just used Penatin (baby bum cream) on the bum/anal area and still got the burning and itch. Damm. I guess I am just going to have to see what works by trial and error. I am really worred about apply the Clob incorrectly
No not really painful. Maybe a bit of burning but mostly the Itch is the aggravating part. I think I might also have a hemmeroid which might also be causing the itch. The only thing that seems to help the itch is if I give in and scrach it (which I know is bad). Have a bit of blood when I wipe too much after a bowel movement
Hi Sue
I was told by a specialist to use the Clob on the annus area too.
The specialist today said you had to use the cream for 2 months without reducing it. Use only a very small amount once daily. Be careful as my hair is thinning because of this! God knows what the new medicine will do! Have you got a special moisturiser for the area? I could let you know what I have?
Hi Powerwoman
I will try the Clob again today on the anus area as I guess I should give it a chance since everything seems to sting. I am using Coconut Oil as a moisturiser. Seems to work good for me. I also have a cream I ordered online called Perrin's. Got the Perrin's before I got fully diagnosed as I had no relief. Pretty stinky cream and seemed to work at first but now not sure. The baking soda bath with 1/3 of BS seems to calm things down for me.
Coconut oil doesn't work for me. I have Doublebase Daylev Gel which seems to work ok. I think its a trial and error game.
Let me know how you get on with clob ointment. Regards. Jan x
Hi all I'm in Scotland. Been told never to douche as this in itself can upset the good bacteria in your vagina which according to my GP is self cleaning
I am finding trial and error is the way forward as I am now free of itching and down to Clob twice a week purely for maintenance and coconut oil to keep me moisturised morning after shower and again after my shower in the evening. I have cut out sugar and that's worked too. Oh and I use no soap down there to wash just Aquasol cream and rinse with water. I know not all of this works for everyone but just thought I'd mention ....
I suffer significant anal itching from time to time. I have a weaker steroid and I do use it in Anal area with good success. Could you ask for a weaker steroid?
Good idea. I have a weaker one so I will start with that first and then progress if I have to
Hi jan
I'm 58 this year and started the change in my early fortys, I had abnormal cells after a smear test and had colposcopy.... But they didn't recommend hrt don't think after having abnormal cells hrt goes well. Shortly after was diagnosed with LP.
Hi, sorry to hear that you have LS down below, that is a blow, but at least now you know for sure, Lynne that posts on here has the same.
I agree with her regarding the douching, I don't think that is a good idea for anyone. You will improve over time, everyone does, but it is stressful, no doubt, but we are here for you x